We are on this journey together; therefore, I am proud to share that, because of you, we had a banner year in 2016 — funding more research, providing support to more families and greatly increasing the visibility of hydrocephalus.
I’m writing today to share our plans for 2017. We will take yet another major stride to find a cure for hydrocephalus and improve the lives of ALL affected by the condition.
The Hydrocephalus Association, the only national nonprofit committed to ending this condition, is fueled by members like you.
We’ve come a long way in 34 years … and you are an important part of our success. What started as a small network of concerned parents in 1983 has blossomed into the nation’s largest and most widely respected health advocacy organization devoted to meeting the needs of those affected by hydrocephalus. Today — with your support — we are the fastest growing hydrocephalus movement, representing over one million people. Although we’re proud of our accomplishments, as you know, there is so much more to do.
Your annual membership gift makes our work possible. We need your help to continue our plans. Imagine the impact we would have if every patient and family member renewed their support today!
Knowing we can count on you, this year we will fund over $1M to support hydrocephalus research. I hope you were able to join the most recent webinar for an overview of our efforts and to learn about genetic causes of congenital hydrocephalus (if you missed it, view now on www.hydroassoc.org). We are excited to continue our quest to fund more research on posthemorrhagic hydrocephalus, the leading cause of hydrocephalus in children. This year we are also investing in research on postinfectious hydrocephalus as well as in both the pediatric-focused Hydrocephalus Clinical Research Network (HCRN) and the Adult HCRN (AHCRN). We will not stop until we have a breakthrough!
Imagine: A gift of just $100 from every member would help us exceed $1,000,000 for meaningful research.
Every day your membership support of the Hydrocephalus Association helps newly diagnosed families across the nation who are seeking our support and encouragement. You make it possible for us to hire qualified staff, like a registered nurse who helps people get answers around the best quality of care. You provide families with free resources that range from how to educate teachers about hydrocephalus to a patient’s guide to Normal Pressure Hydrocephalus. You’re helping us collaborate with hospitals across America to launch Hydrocephalus Education Days, which bring families affected by hydrocephalus together to learn from medical experts and to support each other. And, thanks to you, we have already started to plan for the next National Conference on Hydrocephalus that will be held in Los Angeles, CA. More details to come!
Together, we are providing a source of comfort and refuge for ALL people affected by hydrocephalus through our toll-free hotline and email, informative publications, and online resources, including our physician directories.
Imagine: A gift of $75 from every member will ensure we can provide 1000 families this year with support and encouragement when they need it most.
This summer we will embark on the largest awareness campaign in the history of the organization to put hydrocephalus on the map. We have already engaged a Los Angeles-based public relations firm to support this effort and are very excited to reveal more details to you soon. We also have a busy year planned for advocating on Capitol Hill.
Imagine: A gift of $50 from every member will ensure we are able to launch a powerful awareness campaign and fully engage more elected officials and federal health agencies.
I hope you will take a moment right now to renew your commitment and send your annual membership gift to the Hydrocephalus Association today.
Knowing we can count on you for 2017, we promise to continue to devote every dollar to further critical research and support services to our growing community. For those who can, we hope you will also consider becoming a Sustaining Member by committing monthly to these efforts. Gifts of just $20 dollars a month will make a huge difference!
Will you please send your membership contribution for 2017? In return, you can count on us to do everything in our power to eliminate the challenges of living with hydrocephalus, now and well into the future.
Let’s make 2017 a year to remember! I look forward to hearing from you soon.