Posts Tagged ‘hydrocephalus’
Living Hydro: One Family’s Journey
Our Charlotte Hydrocephalus WALK Chair shares her daughter’s journey with hydrocephalus.
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Why I WALK – For a Better Tomorrow
The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.
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Splash Into Summer Fun with Summer Camp
Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.
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An Invisible Medical Condition and a Handicap Placard
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
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Hawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
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Announcing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
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Scientific Networks are Changing the Research Landscape
Together, the HA-funded HCRN, AHCRN, and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.
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Learning to Date Me
Bryant, our new guest blogger, shares openly about the unconditional support of his fiancee and resilience of their relationship as he lives with hydrocephalus.
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Is Your Doctor In Our Physician Directory?
Do you have a neurosurgeon, neurologist, or neuropsychologist that you LOVE? Invite your doctor to join the Hydrocephalus Association’s Physician Directory!
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Mary Decker Mentorship Award: Call for Nominations
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
Read MoreHydrocephalus Association Resident’s Prize Award
Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.
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Announcing our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Congratulations 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
Read MoreHappening NOW: First Annual Vision Dinner in New York City
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
Read MoreResearch UPDATE: Exploring Alternative Treatments
In our third installment of the Mentored Young Investigator (MYI) blog series, we showcase 2009…
Read MoreHCRN Update: Shunt Infection Risk and Treatment in Children
Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.
Read MoreYou, the Healthcare Wizard and Finding the Perfect Plan
If you’re new to buying healthcare, finding the perfect plan can be like trying to find the Wizard without having a yellow brick road to guide you to the Emerald City, especially when you’re living with a pre-existing condition like hydrocephalus.
Read MoreI Smile Because You Are My Sibling…
The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.
Read MoreHydrocephalus Association at 30
In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?
Read MoreVoices from Our Community: David Walters Shares his Hydrocephalus Story
David Walters was diagnosed with hydrocephalus at 2 weeks old and has had one shunt revision. He is an active teenager and member of the Hydrocephalus Association Teens Take Charge program. Read his story.
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