Because of the country’s high numbers of children with hydrocephalus, doctors, including Dr. David Limbrick of St. Louis Children’s Hospital, traveled to Uganda so they could learn the technique. Two years ago, Limbrick traveled 8,000 miles to the East African country for more than a week of intensive training.
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
Philip Brooks, a teen HA community member, recounts his experience during Rare Disease Week, when hundreds of people gathered to advocate for hydrocephalus and other conditions.
The Duchess, who has been the patron of the charity since 1973, will meet some of the charity’s members among the 250 delegates attending the launch.
Muhimbili Orthopedic Institute (MOI), in collaboration with Friends of Children with Cancer (FOCC), has launched a special camp to conduct operations for the children with neurosurgical problems.
A certain type of hydrocephalus can cause a person to lose the ability to walk and talk normally. And because the symptoms are similar to dementia or Parkinson’s, it’s a condition that can be easily overlooked. But if doctors properly diagnose N.P.H. , they can often reverse it.
Elyse was selected as one of two children to serve as this year’s “National Ambassador of Hydrocephalus Awareness,” for the Pediatric Hydrocephalus Foundation, to help raise the level of awareness and education about Hydrocephalus in the United States.
Angel Raynoso spent his 30th birthday in the hospital. The day before, he’d had a seizure, was rushed to intensive care and had emergency surgery to relieve pressure on his brain.
Older Americans around the country are being misdiagnosed with Alzheimer’s and Parkinson’s. Normal Pressure Hydrocephalus can display similar symptoms, but is treatable.
Gikonko is the only health center with facilities to treat the medical condition; other medical centers treat hydrocephalus, but most of them refer patients to Gikonko Health Centre where specialists are based.
Elementary school student Aiden Tanz was given an all-expense paid trip to Orlando, Florida for him and his family through Make-A-Wish Foundation. The Tanzes visited three parks: Walt Disney World, Universal Studios and Sea World.
Doctors in Brazil have discovered hydrocephalus in two babies with congenital malformation. Some suspect the ongoing Zika pandemic in the country caused these cases.
Researchers have shown that computerized cognitive rehabilitation (a program to help brain-injured or otherwise cognitively impaired individuals to restore normal functioning) can improve attention and executive functioning in brain injury survivors including traumatic brain injury (TBI) and stroke.
An Australian family has welcomed the aid of Senator Bob Day in pushing for a national shunt registry. One of Day’s staff members lost a child to the complications of hydrocephalus.
Barrett O’Connor, a Hydrocephalus Association-nominated patient advocate, is serving on the latest panel reviewing applications for medical research at the DoD.
The mobile health industry, along with remote monitoring and telehealth systems, has a wide impact on reducing hospitalizations and emergency room visits throughout the healthcare spectrum by improving communication and care coordination among specialists, doctors, nurses, and others.
University of North Carolina has been awarded a grant to fund a study for neurotoxin action. Lead Scientist Dr. Bahr hopes the recent grants will push forward traumatic brain injury program and Alzheimer’s research.
Local volunteers joined forces with elected state representatives in Connecticut, New York, Tennessee, Virginia, South Carolina, Colorado and Illinois to proclaim September as Hydrocephalus Awareness Month.
TTC Blogger Madeleine Darowiche shares her insights about the challenge of accepting yourself and where you are today, in order to grow tomorrow.
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Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.
TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.
In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.
In this installment of our video blog series, Through a Mother’s Eye’s, Debby Buffa shares her personal journey of raising two daughters with hydrocephalus. Make sure to read the list of resources included below the video.
In this installment of our video blog series Debby offers tips and suggestions on how to prepare yourself and your child’s educational team for school.
Meet our newest TTC Blogger Emily Lucht! She shares her journey’s extra baggage. Read what she means and let’s start a conversation using #TalkTTC.