hydrocephalus

Local Chicago Family WALKS for Young Zane

Matthew Schwerha, reporting for The Doings Weekly, interviews Susan Yousif, who’s 2 year-old son has hydrocephalus, at the Chicago WALK, which took place on August 18, 2013 at Soldier’s Field.

CONTINUE READING

Announcing Our 2013 Research Grant Recipient

The Hydrocephalus Association (HA) has selected Timothy Vogel, M.D., from Cincinnati Children’s Hospital Medical Center, to receive funding for an additional research grant in HA’s 2013 grant cycle, for his work in basic science that improve our understanding of the root causes of hydrocephalus.

CONTINUE READING

You, the Healthcare Wizard and Finding the Perfect Plan

If you’re new to buying healthcare, finding the perfect plan can be like trying to find the Wizard without having a yellow brick road to guide you to the Emerald City, especially when you’re living with a pre-existing condition like hydrocephalus.

CONTINUE READING

Good Housekeeping Magazine Raises Awareness of Hydrocephalus

Cortney Pellettieri of Los Angeles, CA, is selected as one of 5 women committed to a cause and making a difference. She is the co-chair for the Los Angeles Hydrocephalus WALK, which will raise funds and awareness for a condition that affects 1 million Americans and is the leading cause for brain surgery in children.

CONTINUE READING

Tuscaloosa Teen Receives Companion Dog

Andrew Smith, 14, who has spina bifida and hydrocephalus, and his mom Donna welcome a 2 year old Labrador retriever/golden retriever mix into their home and family, reports TuscaloosaNews.com.

CONTINUE READING

Tucson Boy Receives 4,600 Birthday Wishes

Tucson News Now reports that Jacob Mockbee received 4,600 birthday wishes from around the world after his father and fellow police officers in Tucson, Arizona, raised a Facebook challenge to have 1,600 cards sent to Jacob for his 16th birthday. Jacob lives with spina bifida and hydrocephalus.

CONTINUE READING

China Working Toward a Spina Bifida and Hydrocephalus Network

The International Federation for Spina Bifida and Hydrocephalus (IF) and the China Disabled Persons’ Federation (CDPF) held a seminar on the care for children and adults with Spina Bifida and Hydrocephalus at the China Rehabilitation Research Center (CRRC) in Beijing. The CRRC will create a center for treatment within their hospital and is a first step toward creating a network in China.

CONTINUE READING

Two Canadian Rockers Tour Europe to Raise Awareness for Hydrocephalus

Two Canadian rockers, Danny Lamb and Jay Baty, will tour Europe to raise awareness for spina bifida and hydrocephalus.

CONTINUE READING

Young Boy Embodies Panhandle Spirit

Dillon Wades was born with cerebral palsy, epilepsy, and hydrocephalus, for which he has 2 shunts. ABC 7 affiliate ConnectAmarillo.com highlight the Wades family and their sons, Dillon and Connor, as examples of the Panhandle Spirit.

CONTINUE READING

Virginia Boy Granted Wish by the Make-A-Wish Foundation

Progress-index.com reports on ten-year-old Casey Wray of Colonial Heights, VA, who was given an all expense paid trip to to New Jersey to see WWE’s WrestleMania by the Make-A-Wish Foundation. Casey has hydrocephalus and, on the trip with his family, met other families from all over the world, including another little boy from Kansas with hydrocephalus.

CONTINUE READING

Over 2,500 New Cases of Hydrocephalus Reported in Uganda Each Year

New Vision, a Ugandan newspaper, reports that health estimates show over 2,500 new cases of hydrocephalus are reported each year. Since treatment can be cost prohibitive, Johnson Derek, the Executive Director for CURE hospital in Mbale, states that they have developed a way to assess families ability to pay and are providing children much needed medical help.

CONTINUE READING

Connection Found Between Congenital Hydrocephalus and a Genetic Defect

Researches from the Texas A&M Institute of Biosciences and Technology have found a connection between hydrocephalus and a genetic defect, a finding that may eventually lead to treatments for this form of hydrocephalus.

CONTINUE READING

I Smile Because You Are My Sibling…

The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.

CONTINUE READING

New Gravitational Shunt Valve Hits Market

Aesculap introduces a new gravitational shunt valve that allows for different pressure settings for the lying and the upright positions. The Miethke proSA valve is implanted in combination with fixed or adjustable valves.

CONTINUE READING

International Conference on Spina Bifida and Hydrocephalus

The International Federation for Spina Bifida and Hydrocephalus (IF) hosts it’s 24th international conference “Unite and Share” on June 28 and 29, 2013, in Izmir, Turkey. The conference will bring together healthcare professionals and individuals with spina bifida and hydrocephalus to share the latest knowledge and exchange their experiences.

CONTINUE READING

Teen Voices: Thankful I Found Teens Take Charge

From fundraisers, awareness and advocacy events to sharing personal stories and experiences on our website and social media networks, teens and young adults across the country are banning together to create a network of support for each other. Madeleine Darowiche shares how Teens Take Charge has benefited her life.

CONTINUE READING

Looking Back…Moving Forward: Commemorating 30 Years

Over the last 30 years, the Hydrocephalus Association has significantly impacted the health care and scientific communities as well as the lives of individuals affected by hydrocephalus. We look back on the last 30 years presented in a timeline of our significant milestones.

CONTINUE READING

Announcing Our 2013 Scientific and Medical Review Committee

The Hydrocephalus Association is excited to announce the formation of our 2013 Scientific and Medical Review Committee (SMRC) for our current grant opportunity in partnership with the Rudi Schulte Research Institute.

CONTINUE READING

Hydrocephalus Association at 30

In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?

CONTINUE READING

Researchers Find Link Between Climate and Brain Infection

Researchers are the first to demonstrate that climate can cause brain infection leading to post-infection hydrocephalus. The research took place in Uganda where rainfall rates were found to be a determinate factor in infection rates in infants.

CONTINUE READING

Dr. Michael Williams Named President of the International Society for Hydrocephalus and Cerebrospinal Fluid Disorders

The Hydrocephalus Association would like to congratulate Dr. Michael A. Williams on being named president of the International Society for Hydrocephalus and Cerebrospinal Fluid Disorders (ISHCSF). Dr. Williams is a member of the Hydrocephalus Association’s Medical Advisory Board.

CONTINUE READING

Have a Heart Home Builds Custom Home for Girl with Hydrocephalus

The Parker family received an early special holiday gift when the Have A Heart Home chose their family from a pool of applicants for a custom-built home in Utah. They were selected after they shared their moving story about their daughter, Emylie, who was born with myelomeningocele spina bifida, Arnold-Chiari II malformation and hydrocephalus.

CONTINUE READING

Local South Florida Family Interviewed by Local News Channel

The Rodger’s family are interviewed by ESPN760/WPTV NBC/West Palm Beach about Alex’s journey with hydrocephalus and the South Florida WALK, which took place on November 10, 2012.

CONTINUE READING

NCIS Creator’s Hydrocephalus Being Used in Court Case

The Hollywood Reporter reports on Donald Bellisario’s current court case suing CBS for revenue owed to him when he was denied the opportunity to work on NCIS: Los Angeles as outlined in his contract. CBS is requesting his medical records around his recent treatment for hydrocephalus to determine if he was able to do the work due to his medical condition.

CONTINUE READING

A Gift of Legacy: Join the Fudge Solomon Legacy Society

The Legacy Society provides an opportunity for supporters to ensure the organization’s research, support, advocacy and education work continues by placing a “future” gift to the Hydrocephalus Association in their wills, trusts or estate plans. As a member, you will demonstrate your commitment to HA’s mission to eliminate the challenges of hydrocephalus and help to […]

CONTINUE READING

New Cause of Hydrocephalus Discovered

The IowaNow reports that researchers at the University of Iowa Graduate Program in Neuroscience have discovered a new cause for hydrocephalus. Working with mice, the researchers identified a defect in the development of immature brain cells.

CONTINUE READING

College Graduates Celebrates with the Medical Team of Comer Children’s Hospital

Kimi Sorensen and her mom promised to have a party for the doctors, nurses and staff at the University of Chicago Medicine Comer Children’s Hospital when she graduated from college. And she did!

CONTINUE READING

12-year-old Girl Interviewed by NBC on Her Journey with Hydrocephalus

12-year-old Gabriela Montes Garzon is interviewed with her mother, HA’s own Amanda Garzon, about her journey with hydrocephalus from being a preemie in the NICU to a 6th grader at The Diener School.

CONTINUE READING

Video Interview with Dr. Warf on his MacArthur Foundation Fellowship Award

The NINDS NIH posted a video on Dr. Benjamin Warf and his MacArthur Fellowship Award for his contribution to hydrocephalus research and treatment.

CONTINUE READING

Drug Shrinks Brain Tumors and Aids in Resolution of Hydrocephalus

A drug originally developed to prevent the rejection of transplanted organs has now been shown to dramatically reduce a particular kind of brain tumor in patients with tuberous sclerosis complex (TSC). Treating the tumor allows patients to also see improvement in the reduction or even elimination of hydrocephalus.

CONTINUE READING

Seizures and Hydrocephalus

November is Epilepsy Awareness month and the Hydrocephalus Association would like to address the topic of hydrocephalus and seizures. Seizures are not an uncommon occurrence in people with hydrocephalus. However, no correlations have been found between the number of shunt revisions or the site of shunt placement and the risk of developing seizures.

CONTINUE READING

A Gift of Encouragement: Expand HA’s Support & Community Education

When you are affected by hydrocephalus, sometimes the challenges can be overwhelming. You might have asked these very questions yourself: How do I find a doctor I can trust? What are my treatment options? What are the risks involved with shunt surgery? What are the symptoms of a shunt malfunction? Where can I find emotional support? Every day, people contact the Hydrocephalus Association to find answers and connect with others who can help them manage the ups and downs of living with hydrocephalus.

CONTINUE READING

Children’s Hospital in Houston Performs ETV/CPC Surgical Technique to Treat Hydrocephalus

Children’s Memorial Hermann Hospital in Houston, Texas, introduces the surgical treatment option of endoscopic third ventriculostomy (ETV) with choroid plexus cauterization (CPC) for hydrocephalus.

CONTINUE READING

Legendary Colombian Folk Musician Passes After Battle with Hydrocephalus

Colombian folk music legend Lizardo Diaz passed away at the age of 84 in Bogota after a long battle with hydrocephalus.

CONTINUE READING

APDC Helps Fund Self-Monitoring Shunt

The Atlanta Pediatric Device Consortium (APDC) is helping fund the development of a shunt that can be monitored wirelessly.

CONTINUE READING

Local ABC Affiliate Airs Announcement for the Birmingham WALK

The local ABC 33/40 news station in Birmingham, Alabama, aired a public service announcement hosted by Charles Daniel, meteorologist for the 5th Annual Birmingham Hydrocephalus WALK scheduled for Sunday, November 11, 2012.

CONTINUE READING

WWE Superstar John Cena Makes Tampa Child’s Wish Come True

The Kids Wish Network and the WWE allowed Maurice Wilson’s dream of meeting his favorite WWE wrestler, John Cena, come true. Maurice has had hydrocephalus since birth.

CONTINUE READING

The Riverfront Times Dispels Local St. Louis Legend

Local St. Louis teens had been seeking out a mythical family with large heads. Reporter Leah Greenbaum dispels the myth with a concise explanation of hydrocephalus.

CONTINUE READING

New Study in Iraq Finds Elevated Rates of Hydrocephalus and Neural Tube Defects

The Foreign Policy online magazine reports on a study by the University of Michigan’s Department of Obstetrics and Gynecology examines the prevalence of birth defects in the Iraqi cities of Basra and Fallujah. The study found that in Basra, hydrocephalus occurred six times more frequently in infants than compared to California rates of .6 infants of every 1,000 live births. Basra also had the highest ever reported number of incidences of neural tube defects (NTDs), brain and spinal cord conditions – 12 per 1,000 live births.

CONTINUE READING

John Evans, NYC Artist, Dies at 79

John Evans, a New York City East Village artist, dies at 79. Evans was best known for his collages which used materials ranging from newspaper clippings, business cards, product stickers and ticket stubs to bits of ephemera or random photos found on the East Village streets. Evans also had hydrocephalus.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options