hydrocephalus in kids
Sarah Ann and Mikell highlight how hydrocephalus can impact each of us differently as they raise awareness on ABC4 Utah and invite Utahns to participate in the 9th Annual Salt Lake City Hydrocephalus WALK.
Support is needed for research initiatives that aim to better understand the distribution and determinants of [hydrocephalus] and to develop new therapies and other interventions.
Ashley Sievert , a New Orleans makeup artist and beauty brand owner, will hold a benefit that will raise funds for a young Haitian=born toddler living with her adopted mother in the U.S.
If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.
Three children in Singapore with chronic health conditions are raising money for other children in dire financial need so that they can receive medical treatment. One of the children is a young boy has two shunts to treat his hydrocephalus.
Olympic Gold medalist Shawn Johnson East supported a fundraiser in Pelham, Alabama, to support the construction of a new gym and to benefit the Hydrocephalus Association.
What would it look like if we all worked together as one voice and made hydrocephalus a word that people know and are ultimately interested in curing?
Mr. Taurean Nixon of the Super Bowl Champion Denver Broncos will serve as the Inspirational Keynote Speaker at the National Conference on Hydrocephalus.
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
Tristen Pierce was born with a rare birth defect called rhombencephalosynapsis and has a shunt as part of his treatment plan. Despite numerous challenges, Tristen has proved to be a fighter.
Seattle area-based Cider Company Partners with National Patient Advocacy Organization to Raise Awareness for Incurable Brain Condition
Locust Cider founder, Jason Spears, announces a partnership with the Hydrocephalus Association to raise much needed awareness and funds for education and research.
On January 23rd, during the Weekend Update segment on NBC’s Saturday Night Live, Michael Che used the terms “window-licking water heads” to describe followers of Donald Trump. It caused our hydrocephalus community to take notice.
ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.
The largest hydrocephalus patient advocacy organization, the Hydrocephalus Association (HA), selects Diana Gray as the new Chief Executive Officer (CEO) to lead an aggressive growth strategy.
These two historic landmarks will be illuminated blue to commemorate Hydrocephalus Awareness Month 2015. Bethesda, MD | September 17, 2015 Niagara Falls and the Peace Bridge connecting the United States to Canada will be blue in honor of Hydrocephalus Awareness Month on the evening of Friday, September 18th. The lighting of these historic landmarks […]
Saint Louis Science Center’s James S. McDonnell Planetarium Lighting for Hydrocephalus Awareness will take place on September 18, 2015, at sunrise and sunset.
Connecticut, New York, Virginia, Tennessee, South Carolina, Illinois, and Colorado unite with local leaders of the Hydrocephalus Association to provide awareness for an incurable brain condition affecting over 1 million Americans
TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.