Calendar of Events
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Virtual Event
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Virtual Event
This bimonthly grassroots patient advocate meetup brings together individuals passionate about improving the lives of… |
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We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
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1 event,
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We are bringing together teens across the US to check in and laugh a little! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
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¡Únete a nuestra reunión de apoyo virtual! La asociación está aquí para apoyar a todos los afectados por la hidrocefalia, incluyendo a nuestra comunidad de habla hispana! Unámonos para construir un círculo de apoyo para nuestras familias. |
1 event,
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We all need to see new faces, old friends and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
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2 events,
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Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Join us for some lively conversation. We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
1 event,
Featured
Summer Camp: Camp Head Strong
Featured
A fun, supportive, and empowering summer camp for children and teens living with hydrocephalus.
$550 – $1250
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1 event,
Featured
Summer Camp: Camp Head Strong
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This virtual meetup is designed to support and to learn more about the impacts of the L1CAM syndrome on families within our community. Join us on the 3rd Tuesday of every 3 months! |
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We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH! |
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Join us on the 3rd Thursday of every month. This is a Virtual Meetup OPEN TO parents of young adult and adult children ages 19 and above living with hydrocephalus and any type of disability. |
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Join our midlife women living with hydrocephalus on the 3rd Saturday every month! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
1 event,
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Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
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Join men living with hydrocephalus on the 4th Wednesday every month! This group is a safe place where men can share their experiences, support one another, and enjoy the company of those men that understand the journey of living with hydrocephalus. |
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Join us on the 4th Thursday every 3 months to explore Therapeutic Tools such as: Meditation + Mindfulness, Somatic Movement, Pranayama Breathwork, and Pain Management! |
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2 events,
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Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Join us for some lively conversation. We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
2 events,
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Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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We are bringing together parents of young adults across the US together! Join us on the 4th Sunday of every month. This is a Virtual Meetup OPEN TO parents of young adult children ages 19- 29 living with hydrocephalus. |
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Please join the UCI virtual NPH support group led by Dr. Jefferson Chen, Vice Chair of the Department of Neurological Surgery. The group is design for those living with NPH in Orange County, CA and beyond! |
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Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |
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1 event,
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We are bringing together teens across the US to check in and laugh a little! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. |




