Events
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Virtual Meetup | Teens are getting together, Let’s Stay Connected!
We are bringing together teens across the US to check in and laugh a little! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Adults with Hydrocephalus (Western)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Our Shared Journey: Parent Support Group
This can be a challenging time for both parents and kids alike. Join other parents to exchange experiences and support one another. This group is designed for parents of children ages 0- 18.
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Hydrocephalus Advocacy Update
Virtual EventWant to deep dive into Congressional and legislative issues that impact the hydrocephalus community? Join us for our quarterly Advocacy Update.
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Virtual Meetup | State of North Carolina Community Meet-Up
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Adults with Hydrocephalus (Mid-Atlantic & New England)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | NPH Meet-up, Join us for a conversation!
We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH!
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Virtual Meetup | Supportive Families Embracing Disability Journeys
Join us on the 3rd Thursday of every month. This is a Virtual Meetup OPEN TO parents of young adult and adult children ages 19 and above living with hydrocephalus and any type of disability.
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2026 Grandma’s Marathon
The 2026 Grandma’s Marathon is officially sold out! The only way to secure your bib is through the Charity Partners Program — and we’re thrilled to be one of them!
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Virtual Meetup | Sharing the Journey Women’s Group Age 40+
Join our midlife women living with hydrocephalus on the 3rd Saturday every month! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Adults with Hydrocephalus Meet-Up (Rocky Mountain/Midwest)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Orange County, CA NPH Support Group Meeting
Please join the UCI virtual NPH support group led by Dr. Jefferson Chen, Vice Chair of the Department of Neurological Surgery. The group is design for those living with NPH in Orange County, CA and beyond!