Celebrating Impact. Fueling Hope. Moving Forward Together
Welcome to the first edition of the Hydrocephalus Association’s Development Round-Up—your inside look at how donor support is driving life-changing hydrocephalus research, expanding education and awareness, and strengthening our community programs.
In each edition, we’ll celebrate the incredible generosity of our community, highlight opportunities to get involved, and reflect on the progress your support makes possible.
Thanks to your unwavering commitment, our 2025 Spring Appeal wrapped up at the end of June, with over 100 individuals stepping forward to support our mission. Together, we raised nearly $20,000, and your donations are already making a difference, driving critical research and providing meaningful resources for families affected by hydrocephalus. You can still contribute to the Spring Appeal here.
Behind every research grant is a family hoping for answers. Because of you, we’re moving closer to a future with better treatment options, deeper understanding, and, ultimately, a cure. We’re thrilled to share that the most recent funding cycle (2024) saw a record number of funding awards—an incredible milestone made possible by your generosity.
Another recent highlight was our HundredX campaign—a powerful reminder that small actions can make a big impact. By sharing brief surveys, you helped turn opinions into real dollars, raising an incredible $39,800 to support our work. We’re deeply grateful to each and every one of the 1,012 individuals who participated.
We’re especially excited to celebrate the three WALK sites that raised the most through this campaign:
- Louisville, Kentucky raised $6,131.20
- Denver, Colorado raised $4,446.40
- Cincinnati, Ohio raised $2,616
These teams went above and beyond to engage their communities and delivered outstanding results. Congratulations—and thank you!
As WALK season approaches, now is the perfect time to register, start a team, and begin fundraising. Every step you take builds awareness, strengthens connections, and brings hope for the hydrocephalus community. Click here to find a WALK near you or sign up for our virtual WALK
Looking for a creative, personalized way to support the hydrocephalus community? Games4Brains is our year-round, DIY fundraising program that empowers you to raise awareness and funds through the games you love. Whether you’re into video games, board games, or tabletop RPGs, you can turn your favorite pastime into a powerful tool for change.
Host a charity stream, organize a game night, or set your own fundraising challenge—your efforts will support research, advocacy, and family support programs.
Need help getting started? We’ve got you covered with marketing materials and downloadable resources to help you plan a fun, successful gaming fundraiser. Learn more here.
Every action, no matter how big or small, moves our mission forward!
Together, we’re funding research, supporting families, and building a stronger, more informed community. We’re deeply grateful for your partnership and look forward to sharing even more progress in the next Development Round-Up.
Opportunities to Get Involved
- National Make-A-Will Month in August: By making or updating your will for free and including a planned gift, you can safeguard the people and support the causes that matter most for decades to come.
- Hydrocephalus Awareness Month (September): Join us all month long as we raise awareness, elevate stories, and drive action for the hydrocephalus community. Be sure to mark your calendar for World Hydrocephalus Day on September 20—a global moment to unite, reflect, and advocate for change. Sign up for HAM2025 emails.
- Marine Corps Marathon (October 26): Cheer on Team HA or run to support hydrocephalus research and awareness. Learn more.
- Volunteer with HA: From event support to advocacy, we have roles to fit your interests and availability. Learn more.