normal pressure hydrocephalus

Practice Random Acts of Kindness

The Hydrocephalus Association challenges you to practice random acts of kindness leading up to Valentine’s Day! Let’s have some fun!

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New Sensor Works with Shunt to Monitor Brain Pressure

Researchers at the Fraunhofer Institute for Microelectronic Circuits and Systems IMS in Duisburg, Germany, working jointly with Christoph Miethke GmbH and Aesculap AG, engineered a cerebral pressure sensor that is implanted with a shunt that allows physicians to read brain pressure using a hand-held meter.

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Meet the Medical Chairs of the 13th National Conference on Hydrocephalus

The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.

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2013: A Year in Review

As we wrap up 2013, Dawn Mancuso, CEO, Hydrocephalus Association, reflects back on (and marvels at) all that has happened this past year for the hydrocephalus community.

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The Gift of a Voice

For 30 years, the Hydrocephalus Association has served as the voice for one million patients, raising critical awareness and advocating for greater resources to fund research and better treatment options. We have accomplished so much but yet there is still much to do.

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Portland: Here We Come! 2014 Hydrocephalus Conference

SAVE THE DATE: The 13th National Conference on Hydrocephalus will take place in Portland, Oregon, on July 9-11, 2014! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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Active Lifestyle Magazine features Educational Video on NPH

Active Lifestyles Magazine, through OrangeTV, interviews Dr. John Fleming of Florida Hospital about Normal Pressure Hydrocephalus.

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What if it isn’t Alzheimer’s or Parkinson’s? Understanding Normal Pressure Hydrocephalus

The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.

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Alzheimer’s Weekly Features Normal Pressure Hydrocephalus

Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.

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Adult Hydrocephalus and the Development of a Research Network

Adult Hydrocephalus and the Development of a Research Network

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Leadership Award for Two Founding Members of HA

Emily and Russel Fudge receive the Vision Award for Leadership for being part of the initial group of founding members of the Hydrocephalus Association. They received the award at the Hydrocephalus Association’s First Annual Vision Dinner held in New York City on October 10, 2013.

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Finding Treatment for Normal Pressure Hydrocephalus

The Barrow Normal Pressure Hydrocephalus Blog from the Barrow Neurological Institute shares the journey of Walter Pries, diagnosed and treated for Normal Pressure Hydrocephalus.

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Neurologist Specializing in CTE Receives Champion of Hope Award

Dr. Barry Jordan of Burke Rehabilitation Hospital will be honored with the Champion of Hope award by the Brain Injury Association of New York State (BIANYS). He has extensive experience in the diagnosis and treatment of brain injuries, including chronic traumatic encephalopathy (CTE), a progressive degenerative disease which can develop into Normal Pressure Hydrocephalus (NPH).

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A Diagnosis of NPH after a Successful Recovery from Brain Cancer

The Brigham and Women’s Hospital Health Blog, Health Hub, features the story of Susan Sontag, diagnosed with Normal Pressure Hydrocephalus (NPH) after a successful recovery from what she was told was terminal brain cancer.

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L.A. King Players Will Attend L.A. WALK for Hydrocephalus

Los Angeles Kings hockey players are scheduled to participate in the inaugural Los Angeles Hydrocephalus Association WALK on September 29, 2013 to help raise awareness of hydrocephalus and the 1 million Americans living with this condition.

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Louisville WALK Chair Interviewed by Local TV Station

Brittney Neidig, our Hydrocephalus Association Louisville, Kentucky WALK Chair, is interviewed by Johnny Archer of WHAS11 News, about the upcoming WALK which took place on September 28, 2013, at the Louisville Zoo.

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NEW Hydrocephalus Educational Webinar Launch

The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!

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Gala Dinner Early Fundraiser for New Mexico WALK

The Rio Rancho Observer interviews the Hydrocephalus Association New Mexico WALK Chair, Kathy Carillo, about the upcoming WALK and a smaller fundraising dinner she is organizing to galvanize her team. The keynote speaker for the dinner, Sonja McCully, a librarian at Rio Rancho Public Schools, was misdiagnosed with Alzheimer’s, then eventually correctly diagnosed with normal pressure hydrocephalus.

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NPH Featured on Boston National Public Radio Show

National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).

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Boston Globe Shares Local Man’s Journey with NPH

Boston Globe health reporter, Kay Lazar, shares the story of Jim Lambert’s journey of misdiagnosed Normal Pressure Hydrocephalus, after an initial diagnosis of Alzheimer’s.

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Diagnosing Normal Pressure Hydrocephalus

The Boston Globe provides a concise description of Normal Pressure Hydrocephalus and the steps taken to diagnosis the condition.

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Children and Adults Facing the Challenges of Hydrocephalus

Eboni Graham with The Amarillo Globe News reports on the challenges both children and adults face living with hydrocephalus. She focuses on Noah Goswick, 3 years old, who acquired hydrocephalus from a brain hemorrhage after a premature birth, and Beverly Cobb, who lives with normal pressure hydrocephalus (NPH).

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Research UPDATE: Researchers in Hydrocephalus Convene in Greece

The International Society for Hydrocephalus and CSF Disorders (ISHCSF) held its 5th annual meeting June 28th – July 2nd in Athens, Greece. The meeting brought together hydrocephalus researchers from around the world to discuss the current state of research for all types of hydrocephalus.

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Research UPDATE: Improving Diagnosis of NPH Through Imaging

Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]

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Dr. Adam Mednick Interviewed About NPH on Connecticut Morning News Program

Dr. Adam Mednick is interviewed by WTIC Fox Connecticut about the diagnosis and treatment of Normal Pressure Hydrocephalus.

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Connecticut Neurologist on a Mission to Educate about NPH

News 8 out of Connecticut reports that Dr. Adam Mednick has just published a book on Normal Pressure Hydrocephalus (NPH) and is making it a goal to educate other doctors so patients are properly screened and diagnosed.

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Normal Pressure Hydrocephalus Featured in The Saturday Evening Post

An article in The Saturday Evening Post plays an important role in educating the public and raising awareness about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH, often referred to as the reversible form of dementia.

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Water on the Brain?

TTC Advisory Council Member Madeleine Darowiche shares her recent experience with her mom and a man with Normal Pressure Hydrocephalus.

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Looking Back…Moving Forward: Focusing on the PATIENT

As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with one of our earliest supporters, Dr. Marvin Sussman, former Director of Research and Technology at Cordis Neuroscience Business (now Integra LifeSciences) and member of the HA Board of Directors for 13 years.

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Looking Back…Moving Forward: Six Years After My Shunt Was Installed

In this two part blog, Gilda Katz opens by sharing her journey of being diagnosed with Normal Pressure Hydrocephalus and the importance of her interactions with the Hydrocephalus Association. A must read for individuals living with NPH, recently diagnosed with NPH, or concerned about symptoms of memory loss, confusion, incontinence, and a troubling gait.

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The Intrepid Traveler: Machu Pichu, Here I Come!

Travel Journal Entry #1: Planning my trip to Machu Pichu, Peru. Avid walker, intrepid traveler, and currently treated for Normal Pressure Hydrocephalus, Gina shares her plans for visiting Machu Pichu. Travel suggestions and tips for individuals with hydrocephalus are also provided.

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The Right Questions to Ask When Caring for a Parent with Hydrocephalus

Jillian Keenan of The New York Times puts together a list of questions all adult children need to ask of their parents before a critical medical emergency takes place. In her case, her father had hydrocephalus.

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Looking Back…Moving Forward: Diagnosed with Hydrocephalus at 44

Our history as an association is a reflection of the richness and diversity of the engaged and committed members of our community. As we continue our interview series commemorating our 30th anniversary, we take a moment to hear reflections from individuals around the country who have interacted with the Hydrocephalus Association (HA) and supported HA throughout the years. This week we chat with Angela Lacey. who was 44 years old when she was diagnosed with normal pressure hydrocephalus (NPH).

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Brain 101: The Ventricles and CSF Flow

As a follow up to the previous article on the anatomy and physiology of the brain, the Hydrocephalus Association would like to continue our learning and explore the terms we so often hear when dealing with hydrocephalus.

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Online Presentation: Could Your Alzheimer’s or Parkinson’s Diagnosis Really Be NPH?

Memorial Hermann-Texas Medical Center hosts a recorded presentation by Dr. Dong H. Kim, director of the Mischer Neuroscience Institute and chief of neurosurgery, detailing the diagnosis of normal pressure hydrocephalus.

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Looking Back…Moving Forward: Prescribing Success

The Hydrocephalus Association’s Medical Advisory Board is comprised of nineteen esteemed medical professionals that work closely with our staff to support the educational needs of our members as well as help guide our research vision. As part of our interview series in commemoration of our 30th anniversary, Ashly Westrick, Research Manager, sits down with Dr. Michael Williams, Medical Advisory Board member and co-chair of our recent national conference, “Getting to the Heart of Hydrocephalus”.

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Wife Fights for Husband’s NPH Diagnosis

Houston’s ABC affiliate KTRK reports on Ron Shillcutt, a Houston resident initially diagnosed with dementia and then found to have Normal Pressure Hydrocephalus (NPH).

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Living with Undiagnosed Normal Pressure Hydrocephalus

Rhode Island NBC channel 10 shares Roberta Healy’s story of being living for years with undiagnosed with Normal Pressure Hydrocephalus (NPH).

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Looking Back…Moving Forward: You’re Not In This Alone

As we look back and commemorate 30 years of supporting, educating, connecting and informing families, we ask where we would be without our volunteers. Our volunteer leaders across the country have helped weave the rich tapestry of our HA history. This week we sit down with our Virginia Support Group Leader, Annie Mason.

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New Protocol with Adjustable Shunt Reduces Cases of Subdural Effusion

Medwire news reports on a research study that shows that an adjustable Strata valve shunt set at the highest setting and slowly calibrated down in a patient being treated for idiopathic normal pressure hydrocephalus (INPH) reduces the cases of subdural effusion and shows improvement in gait and/or cognitive function.

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