Hydrocephalus Publications & Products
The Hydrocephalus Association produces a wide assortment of publications and products to help you learn about—and live with—hydrocephalus.
All of the booklets and fact sheets published by the Association are available here for you to download. If you are unable to open the PDF files from the links provided below, we will be happy to mail them to you. Please email your request.
Your contribution helps raise hydrocephalus awareness and supports the Hydrocephalus Association’s mission to eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, education and advocacy for individuals, families and professionals dealing with hydrocephalus.
We are currently experiencing technical difficulties. If you find yourself unable to download any of our material, please email us at [email protected] to request an electronic copy. We apologize for any inconvenience.
The Association publishes a quarterly newsletter highlighting developments within our community.
We also publish booklets and fact sheets addressing specific issues.
Our online physician directories provide contact information for neurosurgeons and neurologists who treat hydrocephalus.
To help you prepare for an initial appointment we have put together lists of questions for your doctor.
Hydrocephalus Coloring Book
‘JUST LIKE ANY OTHER BEAGLE’ is a children’s coloring book that tells the story of Barney, a young beagle with hydrocephalus. This coloring book is printed by Integra as a service to the medical community. It was designed to help children with hydrocephalus (and their parents, brothers and sisters) better understand this condition. We would like to thank Integra for allowing us to share this with our community. Barney the Beagle comes in both English and Spanish editions.
Boozle the Hydro Bear
Boozle bear, a teddy bear with a shunt, was developed by Dory Kranz and Sarah Zadorozynj of the Hydrocephalus Association. Boozle serves as a teaching tool for doctors, nurses, parents and children. Anyone can easily perform “surgery” on Boozle with an actual shunt inserted from the head to the abdomen. Although Boozle was just recently introduced, the Association has already received amazing reviews from medical professionals,parents and children.
To order Boozle, call (888) 598-3789 or send an email.
The Hydrocephalus Association’s “Awareness Pins”, made from shunt tubing, come attached to a card that outlines a few key statistics about hydrocephalus. You can raise awareness by giving these pins to family, friends, even your government representatives. A set of 10 pins, with informative cards, can be purchased for $30. We make each pin by hand, so please be patient if it takes us a little time to fill your order.
To order pins, call (888) 598-3789 or send an email.
HA Greeting Cards
The HA greeting cards feature artwork from talented young artists affected by hydrocephalus. The cards are available for purchase and all proceeds go toward a financial aid fund for individuals and families who otherwise cannot afford to attend the next HA Conference
The 12-card set is an assortment of 3 unique, blank note cards and comes with 12 white envelopes. Note card dimensions are 4 ¼ x 5 ½ (when folded). Envelope dimensions are 4 3/8 x 5 ¾. The cards are white with a matte finish.