Our Hydrocephalus Stories

Congenital hydrocephalus

Diane, 23

Congenital hydrocephalus
5th grade teacher

Over the years, I have learned many lessons. I have learned who I was, what can come of reaching for the stars and never taking no for an answer.

Acquired hydrocephalus

Matthew, 35

Acquired hydrocephalus from a brain bleed
Security Officer

I am married with 5 kids, working and doing things that doctors thought back then would not be possible.

Kid with hydrocephalus

Emma, 8

Acquired hydrocephalus
Third Grade Student

You learn that every time you think you know what to look for, you know how to be proactive, you know how to know that an episode is coming…you find out you don’t really know. You find out that as she grows, as she gets bigger, that things change. Every day is a learning experience.

Congenital hydrocephalus

Greg, 39

Congenital hydrocephalus
Bank Manager

It is part of who I am. It changes the way I do certain things but it does not define who I am as a person.

Teenager with hydrocephalus

Carly, 17

Acquired hydrocephalus from a brain bleed
High School Senior

Carly is a successful senior in High School who hopes for no more brain surgeries. Shunts quit; she doesn’t!

Share Your Hydrocephalus Story

Elliott, six months

Congenital hydrocephalus
Baby extraordinaire!

Elliott is now 6 months old, and he continues to amaze us everyday with is abilities and determination

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