NPH and Caregivers

A normal pressure hydrocephalus (NPH) diagnosis is complex and frustrating. Normal pressure hydrocephalus symptoms like gait disturbance, mild dementia and incontinence also occur with other conditions that affect people over 60 years of age often making diagnosis confusing. These conditions can also coexist with hydrocephalus, further complicating diagnosis and making treatment difficult.

For those living with NPH and their caregivers, staying informed about the condition is essential to managing care. The challenges of living with a chronic illness or caring for a chronically ill parent or spouse are stressful for all involved. Adults with hydrocephalus may resent their dependence on a spouse, child or other family member. Acknowledging emotional responses to this chronic and potentially disabling condition can help all those involved.

Helpful Resources

The Hydrocephalus Association provides essential tools and resources that enable you to have more control of your life. We provide the following documentation and can help connect you with resources for questions or issues you may encounter.



Learn more about normal pressure hydrocephalus, treatment options, and ongoing management.

Physicians Directories

Connect with the right healthcare professional to ensure excellent care for all of your clinical needs. We offer Physician Directories as a resource for both families and clinicians.

Hydrocephalus Resource Library (HRL)

Find educational articles about a variety of topics related to hydrocephalus.

Trending Topics

What are the topics we are receiving the most inquiries on right now? Through blogs, articles and videos, we provide you with information from medical professionals and Hydrocephalus Association support staff on the topics that are important to you.


Be informed and current about hydrocephalus by tuning into interactive, free webinars on a variety of topics.

Community Networks

Connect with people who are living with normal pressure hydrocephalus, their caregivers and loved ones. Visit these portals:

Other Hydrocephalus Resources

Reach out to other organizations and hospitals for valuable information and support for individuals living with chronic medical conditions.

1 Comments for : NPH and Caregivers
    • Mary Jo Balistreri
    • February 12, 2017

    I need to speak with someone about my husband’s shunt failure–we are waiting 6 weeks to a new shunt–but is it the right thing to do? His life right now is precarious. Please have someone call me. I need help.

    262-951-8755 cell–during the day
    262-547-6087 home–at night

Leave a Comment

Change in Theme Options or on the cause edit page
Change in Theme Options or on the cause edit page
Change this in Theme Options
Change this in Theme Options