It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. The Hydrocephalus Association provides programs and support services to connect you with peers, volunteers and medical professionals.
We provide one-on-one support, so please contact us:
Our staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. Our Medical Advisory Board is comprised of clinicians and scientists eager to answer your questions, speak to your concerns and share their knowledge of hydrocephalus. Expect a listening ear from staff and access to informed and current resources to help you understand and deal with the complexities of hydrocephalus.
Join us as we walk to spread awareness and raise funds to improve the lives of individuals affected by hydrocephalus. These one day events held in cities across the USA are a great way to meet others in the hydrocephalus community.
HA’s Community Network provides opportunities to get involved and connect at the local level. Our local networks host educational meetings, support group meetings, family fun events, and advocacy activities. Visit our Community Network page for information about your local Community Network.
Teens Take Charge (TTC) teaches teenagers and young adults who are affected by hydrocephalus to advocate for themselves specifically with health professionals and with their legislators. If you are between the ages of 12 – 25, visit our TTC page to learn more.
HA publishes a variety of resources that provide current, relevant information about research, medical technologies and protocols, and educational resources. Our publications have been reviewed by medical professionals, giving you a trusted source for information.
Other Hydrocephalus Resources
Reach out to other organizations and hospitals for valuable information and support for individuals living with chronic medical conditions. Click here for resources for parents and teens. Click here for resources for adults.