TTC Blog

Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety & Hydrocephalus, Part 3

I was asked a question I had never been asked in a job interview, and I thought it was a great question. The question was: “What motivates you?”

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Hydrocephalus Action Network

Advocacy Webinar: What You Can Do to Increase Funding for Hydrocephalus Research

Join us for our advocacy webinar covering the Congressional appropriations process and what you can do to help protect medical research program funding.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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Adult living with hydrocephalus

Travelling a Parallel Path

Amy Booher reflects on her experience attending the National Conference on Hydrocephalus. She looks forward to speaking at this year’s conference in Minnesota.

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Bryant Williams, adult living with hydrocephalus

Overcoming Bullying through a Passion for Sports

Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.

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10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety & Hydrocephalus, Part 2

As a college student with anxiety and hydrocephalus, how do I cope with it all? That’s a bit of a tough question to answer, as no one has the same methods.

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Hydrocephalus Scholarship

2016 Scholarship Cycle OPEN!

The Hydrocephalus Association (HA) proudly offers fourteen scholarships to young adults with hydrocephalus. The 2016 Scholarship cycle is now open. Apply today!

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National Hydrocephalus Conference

Countdown to Conference: Tips on making it affordable!

The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus

Madeleine shares her experience of living with the challenges of anxiety and hydrocephalus.

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Hydrocephalus Conference

Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus June 16-19 in Minneapolis, Minnesota. Book your hotel!

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Diana Gray HA CEO

Diana Gray Announced as the New Chief Executive Officer

The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).

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Hydrocephalus Teens Take Charge Scholarships

Announcing 2015 TTC Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Hydrocephalus Action Network

It’s Time to Start Taking Action!

It’s time to start energizing our hydrocephalus grassroots network! Here are a few assignments for you to help make you a star advocate.

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Dara Hydrocephalus Teens Take Charge Mentor

College Bound? Tips on the College Application Process

Hydrocephalus Teens Take Charge Mentor Task Force member offers advice on how to tackle the college application process and shares insight from her personal experience.

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Hydrocephalus Awareness Month 2015

Hydrocephalus Awareness Month 2015 is HERE!

September is Hydrocephalus Awareness Month! Here are 15 ways you can make an impact and raise awareness.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Learning from Experience – A Reflection on Self-Acceptance as a Starting Point for Growth

TTC Blogger Madeleine Darowiche shares her insights about the challenge of accepting yourself and where you are today, in order to grow tomorrow.

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Hydrocephalus Association Scholarships

Congratulations to Our 2015 Scholarship Recipients!

We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!

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Dan Kricke, living with hydrocephalus

Navigating Social Interactions Growing Up with Hydrocephalus

In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.

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Michelle Fernandez living with hydrocephalus

WNYT Albany Raises Hydrocephalus Awareness

Benita Zahn of WNYT-TV in Albany delivers a comprehensive news story on an incurable brain condition called hydrocephalus.

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Survey

How Can We Serve You Better?

We continually strive to provide the best support and education services, and most current, comprehensive information and resources to assist our community. Take a brief survey and help us develop programs and services to better fit your needs.

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Hydrocephalus Patient Conference

MINNEAPOLIS: We are on our way! 2016 Hydrocephalus Conference

SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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Hydrocephalus Teen Webinar

Speak Up: Owning Your Condition Webinar Recording NOW Available!

Tess Jacobsen, presents tips, resources, and solutions on how to own your condition in this recent Webinar recording now available!

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

The First Year of College: An Honest Look at My Experience

Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.

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Teen with money

Money, Money, Money – Helping Out Without Emptying Wallets

TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.

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Hydrocephalus Research Webinar Recording Available

The Next Generation of Hydrocephalus Researchers Webinar Recording NOW AVAILABLE

In this webinar, Dr. Yun Yung discusses his exciting new work focused on understanding and preventing post-hemorrhagic hydrocephalus. Recording now available!

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Hydrocephalus Research Webinar

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers Part II

Next webinar: Optimizing the timing of interventions in neonatal hydrocephalus and new research on how brain cells react and recover under pressure.

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Hydrocephalus Research Webinar Recording Available

Hydrocephalus Treatment Part I Webinar NOW AVAILABLE

The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

One Key to College Success? Good Relationships!

One of the most important things you can do for yourself in college when you have hydrocephalus is establish good relationships with your professors early.

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My 4-H Speech about Hydrocephalus

India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.

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Brain 101 Educational Blog Series

Brain 101: An Overview of the Anatomy and Physiology of the Brain

The brain is a fascinating and complex organ. Research of the brain and understanding the inner workings of the brain will help us to learn about the mechanisms of certain neurological conditions, including hydrocephalus.

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Hydrocephalus Association Webinar Speak Up!

Upcoming Webinar – Speak Up! Owning Your Condition

In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.

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Hydrocephalus Association Webinar Banner

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers

Join us for our next webinar on the latest hydrocephalus research with two former HA-sponsored Mentored Young Investigators.

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Clinical Trial Randomization

Research 101: An Explanation of Clinical Trials Design

Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Sharing about your Hydrocephalus with College Roommates and Friends – When is the Right Time?

In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.

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Endoscopic Third Ventriculostomy

Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)

What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.

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Advocacy Training for Youth Webinar NOW AVAILABLE

As a young adult, does my voice count? Can I make a difference in the hydrocephalus community? Listen to our latest webinar recording for youth to learn how.

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Teens Take Charge Guest Blogger

One Big Family

Life at 14 can be tough, but Jillian’s determined to live FULLY and overcome any challenge presented to her by hydrocephalus or just being a teen.

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Upcoming Webinar: Hydrocephalus Treatment Part I

In the next webinar hosted by the Hydrocephalus Association, Dr. Riva-Cambrin will provide a general overview of ETV and ETV/CPC.

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