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  • The Hydrocephalus Association Mission:

    To eliminate the challenges of hydrocephalus.


    Hydrocephalus (hī′drō-sef′ă-lŭs) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.

  • Welcome to the Hydrocephalus Association website and to our hydrocephalus community. We hope that the information and support you find here will be of help.

     


    From The Blog

    From the CEO: Another way to say “I Care”

    HA CEO Dawn MancusoAs I sit and write this blog to you, I am thinking about what the month of February means to the hydrocephalus community. Now, for many people, it is the month when the Super Bowl takes place – the culmination of the season-long competition to find out which team goes home with the coveted prize – a Super Bowl ring. To others, especially many here in DC, it’s all about the ongoing political primaries which will ultimately determine who is running for the most coveted office in the country – that of the President of the United States. For those more romantic at heart, February hosts Valentine’s Day, when we are reminded to say “I love you” to all those special people in our lives. (more…)


    Normal Pressure Hydrocephalus Guidelines

    By Tom Smith and Michael Williams, MD

    In 2000, the late Anthony Marmarou, PhD convened an independent study group to begin the process of addressing one of the major issues surrounding Normal Pressure Hydrocephalus (NPH).  After convening, these experts published five guidelines concerning NPH. (more…)


    Hydrocephalus Awareness Hits the Ice

    By Jordan Faigen, National Campaigns Manager

    hockey vAre you looking for great ways to raise money as a WALK participant? Eileen Rodger, the HA South Florida WALK Chair, spent an evening on the ice and raised over $1,000 in a matter of hours. Read her inspiring story and explore your community for creative fundraising opportunities, then share your success with us, email jordan@hydroassoc.org.

    (more…)


    Tributes to a Passionate NPH Physician Advocate — The Passing of Harold O. Conn, MD

    dr. harold conn

    Harold O. Conn, MD was a world-famous doctor specializing in diseases of the liver.  After his retirement he developed Normal Pressure Hydrocephalus (NPH) and thus embarked on his second career which was to study and spread awareness of this condition.  His perspective was unique and informed, and his work was generous and insightful.  In this article HA board member Marvin Sussman, PhD and Carlos Hakim, PhD pay tribute to Dr. Conn and his work. (more…)