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From The Blog

12th National Conference: Tips on how you can afford it!

The National Conference on Hydrocephalus is our biennial gathering to self-educate and make or renew connections. Join doctors, nurses, parents, children, people living with hydrocephalus and people affected by it, as we celebrate our community.

While we strive to keep costs down for attendees and provide some financial aid for registration, there are other costs to consider, such as airfare and accommodations. Because of the chronic nature of hydrocephalus, many of us struggle to make ends meet. So we have put together a tip sheet to give you ideas on identifying sources that might provide financial assistance. (more…)

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Astronaut Mark Kelly to Headline our 12th National Conference

By Dawn Mancuso, HA CEO

Captain Kelly’s biographical information generously provided by Keppler Speakers

I am so excited about this news I just had to make it the subject of my blog this month – Captain Mark Kelly will be speaking at our hydrocephalus conference in June!

Mark Kelly is an American astronaut, retired US Navy Captain, best-selling author, prostate cancer survivor, and an experienced naval aviator who flew combat missions during the Gulf War. The winner of many awards, including the Legion of Merit, two Defense Superior Service Medals and two Distinguished Flying Crosses, Kelly was selected as an astronaut in 1996. He flew his first of four missions in 2001 aboard Space Shuttle Endeavour, the same space shuttle that he commanded on its final flight in May 2011. He has also commanded Space Shuttle Discovery and is one of only two individuals who have visited the International Space Station on four different occasions. (more…)

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The Hydrocephalus Association co-hosts the 2012 Research Conference

This July, the Hydrocephalus Association is co-hosting a ground-breaking research conference designed to bring together pre-eminent researchers and scientists to advance research around hydrocephalus.  (more…)

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New HA School WALK Program, a Win-Win

By Randi Corey, National Director of Special Events and Volunteer Support

At the 2012 Veteran WALK Chair’s meeting Hydrocephalus Association introduced its new School WALK program.  The program was the brainchild of Long Island WALK Co-Chair, Mia Padron.   The event Mia coordinated last fall raised over $4,000 with 114 kids participating in their own “mini-WALK” after school.  Most importantly, all of the school’s 4th graders learned all about hydrocephalus through educational sessions. A shunt manufacturer’s representative accompanied Mia for the education portions of the program, bringing visual aids to share with the class – a shunt model, brain anatomy models, etc. Then Mia’s son, Tyler, answered his classmates’ questions about his condition and treatment. (more…)

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