The Hydrocephalus Association Mission:
To eliminate the challenges of hydrocephalus.
Hydrocephalus (hi'dro-sef'a-lus) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.
From The BlogThe Difficulties of Transitioning to Adult Medical Care
The article in the Wall Street Journal, The Challenges After Surviving a Childhood Disease, puts on the national stage an issue that has been a growing concern for many in our community, including the dedicated pediatric neurosurgeons and neurologists that work with our families. The concern is the difficulties in transitioning from pediatric- to adult-centered care for the on-going management of hydrocephalus. (more…)
Bachelorette Contestant Wins our Hearts in Hershey
The Hydrocephalus Association would like to thank Brian Osborne, a season 10 Bachelorette contestant, for supporting our Hydrocephalus Association Hershey, PA WALK, on August 3, 2014. Brian has been an active advocate for hydrocephalus awareness since signing on, actively tweeting about the WALK as well as doing a number of press interviews about hydrocephalus and the Hydrocephalus Association. Brian’s neighbor of over 15 years, Anne Kocsis, is our new Hershey WALK Co-Chair with veteran Chair Danielle Gutshall. Anne’s son, Matt, has hydrocephalus and is a Cumberland Valley High School senior. The families have been close over the years and Brian was inspired to WALK with Matt this year to help raise awareness. (more…)
A Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner
It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA.
“On behalf of the board of directors and staff of the Hydrocephalus Association, I offer condolences to the family and friends of Dick Wagner, the maestro of rock, a friend of our organization and a supporter of our cause,” said Dawn Mancuso, CEO of the Hydrocephalus Association. (more…)
Health Research Alliance Features HA in Their Member Spotlight
The Health Research Alliance is featuring the Hydrocephalus Association on their homepage as part of their new Member Spotlight feature. We are honored to be the member organization chosen for this week. Click here to view our member spotlight and learn more about HRA. The Health Research Alliance fosters collaboration among not-for-profit, non-governmental funders to support the continuum of health research and training from biomedical science to applications that advance health. Organizations participating in the Health Research Alliance represent a variety of types of nongovernmental funders of health research, including voluntary health agencies, private foundations, and operating foundations. All of these organizations share a common interest in speeding the translation of biomedical science discoveries into applications that improve health, and in identifying and adopting best practices in funding health research. You can learn more about HRA by visiting their website or downloading their fact sheet here.
A Million Reasons Strong
Hydrocephalus in the News
- Mom Working to Improve Hospital Errors that Led to Son’s Death
- New Partnership Will Focus on Advancing Treatment for Communicating Hydrocephalus
- Kids Wish Network Grants California Boy with Hydrocephalus a Disney Adventure
- Frisco Commons Park Partners with the Inaugural Hydrocephalus Association WALK in Dallas, TX
- Matt Kocsis WALKing Proud for Hydrocephalus Awareness