The Hydrocephalus Association Mission:
To eliminate the challenges of hydrocephalus.
Hydrocephalus (hi'dro-sef'a-lus) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.
From The BlogDr. John Kestle to Return to Primary Children’s Hospital in June 2014
Dr. John Kestle is returning to Primary Children’s Hospital as a pediatric neurosurgeon and Vice Chair of Clinical Research, for the University of Utah Department of Neurosurgery. After an evaluation of the role of Chief of Surgery at University of British Columbia, Dr. Kestle decided to return to his core passions of pediatric neurosurgery, conducting clinical research into hydrocephalus and other neurosurgical conditions, and mentoring others in these areas. Dr. Kestle will also continue his work with the adult study group for hydrocephalus initiated by the Hydrocephalus Association.
BC Children’s Hospital’s Dr. Doug Cochrane will continue in his role as the PI in HCRN for that institution maintaining Hydrocephalus Clinical Research Network’s nine center presence across North America.
NEW Video Blog Series with Debby Buffa
Announcing our new video blog series! Join Debby Buffa each month as she answers a new question from our community. The Hydrocephalus Association would like to thank everyone who submitted questions to Debby.
50th Anniversary of the Recognition of Normal Pressure Hydrocephalus
By Carlos Hakim, Ph.D., and Marvin Sussman, Ph.D.
Today, March 10, 2014, marks the 50th anniversary of the recognition of Normal Pressure Hydrocephalus (NPH) as a distinct medical syndrome by Salomón Hakim, M.D., Ph.D., with his publication of the first thesis on this condition. NPH is a chronic neurological disorder characterized by an accumulation of cerebrospinal fluid that causes the ventricles in the brain to gradually enlarge, sometimes with little or no increase in intracranial pressure. It is most commonly seen in older adults, and is accompanied by some or all of a triad of symptoms that include gait disturbances, dementia, and impaired bladder control. The current treatment for NPH is the insertion of a shunt into (more…)
Innovative Analysis of Publicly-Funded Hydrocephalus Research
A review of the history of public funding of hydrocephalus research funded by the National Institutes of Health (NIH) was recently published in the Journal of Neurosurgery: Pediatrics. The review is the result of the collaboration between Hydrocephalus Clinical Research Network (HCRN) Co-Founders Paul Gross and Dr. John Kestle with the Hydrocephalus Association (HA). It was found that over the 10-year period from 2002 to 2011, NIH funded $54M of which nearly half ($25M) was spent on the Management of Myelomeningocele Study (MOMS) randomized control trial. The next largest investment was nearly $10M spent on device development. On basic science research, $9 million was spent. (more…)
A Million Reasons Strong
Hydrocephalus in the News
- Brain Injury App Helps with Speech and Learning Disorders
- Emergency Drug Could Reduce Risk of Epilepsy for TBI Victims
- Probes May Reduce Memory Loss Caused by Brain Injury
- Researchers Map Core White Matter Pathways in the Brain
- Money and Superstition Delay Treatment of Hydrocephalus for Nigerian Children