The Hydrocephalus Association Mission:
To eliminate the challenges of hydrocephalus.
Hydrocephalus (hi'dro-sef'a-lus) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.
From The BlogA Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner
It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA.
“On behalf of the board of directors and staff of the Hydrocephalus Association, I offer condolences to the family and friends of Dick Wagner, the maestro of rock, a friend of our organization and a supporter of our cause,” said Dawn Mancuso, CEO of the Hydrocephalus Association. (more…)
Health Research Alliance Features HA in Their Member Spotlight
The Health Research Alliance is featuring the Hydrocephalus Association on their homepage as part of their new Member Spotlight feature. We are honored to be the member organization chosen for this week. Click here to view our member spotlight and learn more about HRA. The Health Research Alliance fosters collaboration among not-for-profit, non-governmental funders to support the continuum of health research and training from biomedical science to applications that advance health. Organizations participating in the Health Research Alliance represent a variety of types of nongovernmental funders of health research, including voluntary health agencies, private foundations, and operating foundations. All of these organizations share a common interest in speeding the translation of biomedical science discoveries into applications that improve health, and in identifying and adopting best practices in funding health research. You can learn more about HRA by visiting their website or downloading their fact sheet here.
Congratulations to Our 2014 Scholarship Recipients!
by Jennifer Bechard Johnson, Education Manager
The Hydrocephalus Association (HA) is pleased to announce the 2014 Hydrocephalus Association Scholarship Award recipients. We would like to thank everyone who applied for a scholarship and congratulate those of you who were selected this year. HA’s Scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults and adults who live with the ongoing challenges and complexities of hydrocephalus. Since the scholarship program was established, HA has awarded 111 scholarships to 111 deserving future leaders of our community. We are proud to honor these remarkable young adults. In addition to successfully managing their hydrocephalus, these students continue to excel in the classroom, volunteer and give back to help their local communities, and inspire their peers and all of us, demonstrating that hydrocephalus does not stand in the way of pursuing one’s goals. (more…)
Go For Your Dreams!
In this installment of Debby’s video blog series, she motivates a young viewer by encouraging her to go for her dreams.
Here are some helpful resources on employment:
- Visit our Hydrocephalus Resource Library – Search using the keyword: Employment
- Workplace Communication Tips for People Living with Disabilities
- Job Accommodation Network (JAN)
- 12th National Conference on Hydrocephalus – Breakout Session 702: Workplace Communication Tips for People Living with Disabilities – Dave Carl, MSW and Sam Marks
A Million Reasons Strong