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  • The Hydrocephalus Association Mission:

    To eliminate the challenges of hydrocephalus.


    Hydrocephalus (hi'dro-sef'a-lus) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.


     


    From The Blog

    AARP Bulletin Features Normal Pressure Hydrocephalus
    Normal Pressure Hydrocephalus mimics dementia, AARP article

    “8 Treatable Conditions That Mimic Dementia,” AARP Bulletin April 2014

    By Marvin Sussman, Ph.D.

    The April 2014 issue of the AARP Bulletin featured an article entitled “Am I Losing My Mind? – Conditions That Mimic Dementia” by Margery D. Rosen. The article presents eight forms of dementia which mimic Alzheimer’s Disease (AD) but may be treatable. Dementia is a chronic or persistent disorder of the mental processes caused by a variety of brain diseases or injuries marked by memory disorders, personality changes, and impaired reasoning. The first cause discussed in the article is Normal Pressure Hydrocephalus or NPH. NPH is an accumulation of cerebrospinal fluid that causes the ventricles in the brain to gradually enlarge, sometimes with little or no increase in intracranial pressure. A distinct medical syndrome most commonly seen in older adults, it is accompanied by some or all of a triad (3) of symptoms that include gait disturbances, dementia, and impaired bladder control.

    The article recounts the experience of (more…)


    Conference is only 3 short months away!

    Conference is only 3 short months away! You don’t want to miss this wonderful opportunity to connect with others and hear from experts in the field.


    HCRN PI’s offer point and counterpoint of shunting and ETV/CPC

    HCRN Logo

    By Paul Gross, Past Chair of the Board of Directors, Co-Chair of the Research Committee
    Reposted with permission from the HCRN Blog

    HCRN Chairman John Kestle and HCRN investigator Jay Riva-Cambrin were published in AANS Neurosurgeon this month in counterbalancing articles about changes in treatment of hydrocephalus and the impact of new procedures going forward. Dr. Riva-Cambrin discusses his observations in nuances of the treatment of hydrocephalus since he was trained as a neurosurgeon in the late 1990s. He highlights the re-emergence of the endoscopic third ventriculostomy with the addition of choroid plexus coagulation and the potential for changing the default treatment of hydrocephalus with a shunt. Dr. Kestle’s article provides the counterpoint that despite these innovations, shunts are the “workhorse” of hydrocephalus treatment and we must continue to improve the outcomes for patients treated with a shunt. Both of these articles make for interesting reading about the evolution of hydrocephalus treatment.


    Bringing Normal Pressure Hydrocephalus Out of Obscurity

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    Dr. Salomon Hakim, NPHIn the 1960s, a treatable form of neurodegeneration or dementia, was a controversial claim. Most clinicians did not believe that such conditions could be reversed surgically by diverting excess of cerebrospinal fluid (CSF) in the brains of affected patients using a shunt. Dr. Salomon Hakim’s background in neurology, neurosurgery, and neuropathology along with his mechanical expertise and intrinsic curiosity enabled him to formulate and present his hypothesis on Normal Pressure Hydrocephalus (NPH) 50 years ago, this year. He questioned things that others were simply content to accept, to take the NPH puzzle out of autopsy labs and relative obscurity and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome.  Even after many decades of clinical and scientific study on this subject, Dr. Hakim’s story remains largely untold and, unfortunately, many people suffering from this condition remain misdiagnosed or undiagnosed by the general medical community. We invite you to learn more about Dr. Salomon Hakim and the medical syndrome and patients he dedicated his life to, namely, those living with Normal Pressure Hydrocephalus. (more…)