From The Blog
Hydrocephalus Association Walk Chairs are Extraordinary
by Randi Corey
We’re approaching the fall of 2010 (where did the summer go?) – when the majority of HA WALKs are held. Between September 1st and November 7th 16 of HA’s 24 annual WALKs are scheduled! This is my first “walk season” with HA and I’m really looking forward to attending some Walks and hearing about the others. (more…)
An Evening on the Cape
by David Moore
On a Saturday evening in Cape Cod, there are a myriad of activities one can do to entertain themselves. So why would anyone want to spend that evening learning about Hydrocephalus? Yet, that is exactly what 35 people did on the evening of July 31— joining Barrett O’Connor and her husband Paul Rogers for a lovely evening of cocktails and hors d’ oeuvres to raise awareness of, and raise funds for, hydrocephalus research.
Trust and Let Go
by Pip Marks
The issue of transition is very close to my heart – it has been since the day my oldest child was born. My first questions to the docs after his birth were “Will he be able to live away from home one day? Will he be able to take care of himself? Will he be able to make decisions for himself? “I had endless questions about transition from living at home to independent living. And I am sure all parents who have children with special health care needs have asked similar questions. I believe transition starts at a very young age. It is a long term process that changes and adapts to a child’s level of awareness, and the focus will and should change as they mature. As parents, we need to foster opportunity beginning at a very young age to develop self confidence, self-esteem, the feeling of being valued by others, determination and a positive outlook. And of course, let’s not forget about sense of humor! We must empower our children to WANT to take charge of their own lives, including their own health care. To paraphrase a comment I once read: “Pip, you may not want to hear this, but remember that this condition is not yours. It’s your son’s and until you give it back to him, he will never thrive. Give it back to him and he will thrive in many more ways than just having spina bifida and hydrocephalus.” And man –were they ever right!
Announcing the 2010 Hydrocephalus Association Scholarship Awards
By Tom Smith
The Hydrocephalus Association (HA) is both pleased and privileged to award eight scholarships to persons with hydrocephalus seeking higher education. Each year we receive dozens of application and as you might imagine, is is always difficult to choose among the many outstanding applicants.
However, we are pleased to announce that these young adults with hydrocephalus have been selected to receive the following scholarships for the year 2010. (more…)
