Welcome to the Hydrocephalus Association website and to our hydrocephalus community. We hope that the information and support you find here will be of help.
From The BlogLooking Back…Moving Forward: Adding a Touch of Pixie Dust
As we continue our interview series commemorating our 30th anniversary, this week we sit down with Tina Daniels, the Hydrocephalus Association’s (HA) support group leader in Owasso, Oklahoma. Tina was born with hydrocephalus and shortly after birth had a shunt inserted. Aside from headaches and eye issues, the condition does not affect her very much. As she states “I am actually one of the ones who has never had a shunt revision!” Tina shares her experiences leading a support group and words of wisdom for caregivers and individuals living with hydrocephalus. (more…)
Swimming with the Sharks!
This past weekend Team Hydro swam in the 21st annual Alcatraz Sharkfest Swim, a swim from Alcatraz Island to Aquatic Park on the shores of the city of San Francisco, CA. Team Hydro brought together 75 swimmers ranging in ages from 12-62 to brave the grueling, cold, open water of the San Francisco Bay for this 1.5 mile swim. As of swim day, the team had raised over $23,000, with the expectation of raising at least $50,000. To date, Team Hydro’s efforts have increased awareness and contributed over $323,000 to hydrocephalus research. (more…)
The Patient’s Perspective
A wise man should consider that health is the greatest of human blessings, and learn how by his own thought to derive benefit from his illnesses. – Hippocrates
I’ve recently had some unexpected health issues that have given me some time to pause and see life from a different perspective. I don’t share this to scare anyone – I am doing fine and mending very well. I share it because I’ve gained insights as a result of this experience that I do want to share with you.
Life as a “patient” is like living on a different planet. At least, that was my initial perception of it. (more…)
Codman Announces Voluntary Recall of CERTAS™ Programmable Valve
Codman announced yesterday that it has made a proactive decision to recall any CERTAS™ programmable valves still in stock at hospitals and medical facilities. According to Codman, this recall was not initiated as a result of reported problems with the shunt in patients. In a letter to neurosurgeons and neurologists, Codman stated that this was a voluntary decision based on a very small percentage of possible cases where the valve setting could change after an MRI procedure, or a problem could arise when trying to use the hand-held programming tool. (more…)
A Million Reasons Strong