The Hydrocephalus Association Mission:
To eliminate the challenges of hydrocephalus.
Hydrocephalus (hi'dro-sef'a-lus) is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.
From The BlogManheim Golf Tournament Raises $30,000 to Support the Hydrocephalus Association
The Hydrocephalus Association (HA) was selected to be the beneficiary of the 2013 Manheim Golf Tournament Classic, an event held each year to support charities important to Manheim employees. Manheim, a subsidiary of Atlanta-based Cox Enterprises, is a wholesale vehicle auction operation transforming the wholesale vehicle buying and selling experience through investments in technology and innovative products and services. With 20,000 employees in 107 operating locations around the globe, Manheim is an established industry leader in its field. It also prides itself on being a company that cares about its employees, the environment and the communities it serves. From fundraising drives to tutoring kids after school to supporting long-term conservation efforts, Manheim and its employees are dedicated to protecting the environment and giving back to their communities. HA is honored to be selected as its 2013 Golf Tournament Classic beneficiary. (more…)
Princess for a Day
Ema is one week post-op after three back to back brain surgeries – a shunt revision, a shunt infection, and the placement of a new shunt. As Chara McLaughen, our 2014 Greater Chattanooga Hydrocephalus Association WALK Chair, sat by her daughter’s hospital bedside, she shared their recent experience on her CaringBridge blog as well as through Twitter and Facebook. She tagged Darby Schumacher, a current contestant in the Miss Tennessee Scholarship Pageant, who was part of a group of Miss Tennessee contestants who volunteered at last year’s Chattanooga WALK. She also tweeted the current reigning Miss Tennessee, Shelby Claire Thompson. She did not expect to receive a response. Before she knew it, Darby and Shelby had invited Little Miss Ema to attend the opening night ceremony of the Miss Tennessee Pageant. Ema, with a newly shaved head and her shunt showing prominently under her scalp, running from her brain, behind her ear, and down to her abdomen, draining cerebrospinal fluid to relieve pressure and prohibit brain swelling, would not pass up this opportunity. So her mother and grandmother loaded up the car and headed down to Jackson, TN, for the festivities. (more…)
Dealing with Fear and Uncertainty
In this installment of our video blog series, Through a Mother’s Eye’s, Debby Buffa addresses the question of how to deal with the fear and uncertainty experienced by parents and caregivers supporting a loved one with hydrocephalus. Make sure to read the list of resources included below the video.
HOT Conference Deal!
Have you heard the news? The Hydrocephalus Association is holding a special conference give-away drawing! Register for the upcoming 13th National Conference on Hydrocephalus by Friday, June 20, 2014, and you will be entered for a CHANCE TO WIN 4 full registrations for our 2016 Conference! (more…)
A Million Reasons Strong