It is interesting to see how many families truly are affected by hydrocephalus. It’s something a lot of people have never heard of… yet through social media, we connected with 4 different families all dealing with the same thing.
The day I was told you had hydrocephalus my heart felt like it was breaking, not because I felt there was anything wrong with you, but because I was afraid you would have to endure pain.
In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.
In her monthly blog, TTC member Madeleine shares how participating in HA WALKs in Florida helps her find new friends, raise awareness and funds, and have fun too!
WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.
OurColoradoNews.com features the upcoming Denver WALK, led by Phyllis Rogers. 700 walkers are expected to attend the event to raise funds to support research and education to eliminate the challenges of hydrocephalus.
As we continue our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Jennifer Taylor, our HA WALK Chair in Atlanta, Georgia, to ask her about volunteering for HA, chairing a HA WALK, and other thoughts about our association.
Welcome to the 2013 HA WALK season! Our new year of Hydrocephalus Association WALKs and special events is underway. We are pleased to announce that we have 33 WALK sites this year plus the Virtual WALK, for people who don’t have a HA WALK in their area.
Randi Corey, Director of Special Events & Volunteer Support for the Hydrocephalus Association, is wrapping up our Veteran WALK Chairs’ annual meeting held this weekend in Charlotte, NC.
Our Teens Take Charge (TTC) program provides support, training, awareness and fundraising opportunities so that teens can be an effective force in making their stories heard. As part of our interview series in commemoration of our 30th anniversary, our intern, Jessica Ford, sits down with Haylea Lynn Blank, to talk about growing up with hydrocephalus and her thoughts on the Hydrocephalus Association.
Over the last 30 years, the Hydrocephalus Association has significantly impacted the health care and scientific communities as well as the lives of individuals affected by hydrocephalus. We look back on the last 30 years presented in a timeline of our significant milestones.
HA WALKS are about raising awareness about Hydrocephalus and funds for the Hydrocephalus Association’s core services of support, education, advocacy, and research. But, the WALKS are also about bringing people together and making life-long connections and friendships.
The Hydrocephalus Association had a successful year of WALKS and Special Events, thanks to the dedication of our WALK and Special Event Chairs. A look back at our 2012 events…
The Hydrocephalus Association’s advocacy strategy spans a broad range of activities from local, grassroots awareness efforts such as our WALK program, to state level efforts to establish hydrocephalus awareness days/months, to our federal efforts which focus on research programs at the National Institutes of Health (NIH) and legislation with Congress. Our primary advocacy goal is […]
James Phillips of the Daily Mountain Eagle shares a moving story of support for 5-year-old Addox Morrow as Addox’s team prepares to walk on November 11th in the 5th Annual Alabama Hydrocephalus Association WALK.
Chara Crowley McLaughen, a University of Tennessee (UTC) alumna, is highighted by her alma mater UTC Chattanooga, for her dedication to organizing the 2nd Annual Greater Chattanooga Hydrocephalus Association WALK 2012 which will take place at Coolidge Park on Saturday, October 27th.
Mark Paulissen and Mary Sodano take a break from their cross-country “Spirit of America Ride for Hydrocephalus” bike ride to join the inaugural Houston Hydrocephalus WALK.
Four years ago, Mia Padron of Long Island, New York, was on a mission to make a difference for the life of her son and all other individuals living with hydrocephalus. Her son, Tyler, who is now 10, was born with hydrocephalus but not diagnosed until he was 23 months old. Those 23 months were […]
NY State Senator John Flanagan proclaims September Hydrocephalus Awareness Month. Joined by Mia Padron, Senator Flanagan presented the Hydrocephalus Association with a resolution he sponsored to help raise awareness of the hydrocephalus.
Tracy Taback raises awareness about hydrocephalus, shares her personal journey, and announces the upcoming Middlebury, Connecticut WALK scheduled for October 6th. To read the full article, click here.
The Smyrna-Clayton Sun-Times highlights the upcoming Delaware Hydrocephalus WALK which will take place on September 22, 2012 at Smyrna High School. To read the full article, click here.
Connecticut News Channel WTNH spotlights the upcoming Middlebury WALK that will take place on October 6, 2012 at Meadowview Park. To read the full article, click here.
Local reporter, Matthew Schwerha, highlights the upcoming Chicago WALK occurring September 15, 2012. To read the full article, click here.
By Randi Corey, National Director of Special Events and Volunteer Support At the 2012 Veteran WALK Chair’s meeting Hydrocephalus Association introduced its new School WALK program. The program was the brainchild of Long Island WALK Co-Chair, Mia Padron. The event Mia coordinated last fall raised over $4,000 with 114 kids participating in their own “mini-WALK” […]
By Randi Corey, HA Director of Special Events New WALK Chair’s Training Meeting: In February Hydrocephalus Association held the 2nd annual training meeting for HA’s New WALK Chairs in Charlotte, NC. New Chairs included Shawn and Julie Robinson (starting a new WALK in Northern Kentucky/Cincinnati), Genia Hastings and Melissa Arsenault (taking on a new WALK […]
Thinking About Starting a Hydrocephalus Association (HA) WALK? My Experience Chairing a New HA WALK!
By Rachel Inskeep, Chair – 2011 Inaugural Wichita WALK for HA Hello prospective WALK chairs! My name is Rachel Inskeep from Wichita, KS. I am 35 and I work full time as a registered respiratory therapist at a local hospital. My husband and I have been married for 8 years; we have a 15-year old son […]
By Jordan Faigen, National Campaigns Manager Are you looking for great ways to raise money as a WALK participant? Eileen Rodger, the HA South Florida WALK Chair, spent an evening on the ice and raised over $1,000 in a matter of hours. Read her inspiring story and explore your community for creative fundraising opportunities, then […]
By Jordan Faigen, National Campaigns Manager While our HA WALK events are reaching new cities year after year, many times families and individuals still cannot attend even the closest event. We started our Virtual WALK program last year and we are pleased to announce that we are launching our 2012 Virtual WALK website! By registering […]
By Randi Corey, HA Director of Special Events 2011 has been a spectacular year for HA WALKs and Special Events. HA’s 2011 WALKs and Special Event season raised over $1,000,000! This is a 55% increase over last year’s total. And all of it is due to HA’s WALK Chairs and all of the volunteers who […]
By Jordan Faigen, National Campaigns Manager Throughout the 2011 WALK season I have worked with over 60 WALK Chairs to coordinate 30 plus events all over the country. The Hydrocephalus Association’s (HA) WALK program started in 1983 with a few families walking across the Bay Bridge in San Francisco, CA to support each other and […]
By Elijah Lawrence I was diagnosed with hydrocephalus before I was born. When I was four days old, I had my first shunt put in. Since then, I have had four revisions, but I have had my current shunt for five years. I am treated at the Children’s National Medical Center in Washington D.C. I […]