Posts Tagged ‘pediatric hydrocephalus’
Research 101: Generalizability
The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.
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En Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
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What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
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Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
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Mary Decker Mentorship Award: Call for Nominations
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
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Splash Into Summer Fun with Summer Camp
Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.
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An Invisible Medical Condition and a Handicap Placard
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
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Hawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
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Announcing 2015 Hydrocephalus Association TTC Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Announcing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
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Navigating Social Interactions Growing Up with Hydrocephalus
In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.
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The Patient Voice in Hydrocephalus Research Studies
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
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Realizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
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Moms on a Mission: The Trailblazers
It is only fitting that we close out our Mother’s Day celebration with the mothers that started it all. Our Trailblazers – Emily Fudge, Cynthia Solomon, Pip Marks.
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Moms on a Mission: April Christian, Champion
Our mom and (S)HEro #6 April Christian continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
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Moms on a Mission: Jennifer Pope, Power Forward
Our mom and (S)HEro #5 Jennifer Pope continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
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Moms on a MISSION: Chara McLaughen, Promoter
Tireless organizer and promoter describe Mom #4 – Chara McLaughen. Our Mother’s Day profiles of 7 (S)HEroes of our #hydrocephalus community continues.
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Moms on a MISSION: Jan Kell, Connector
Bringing people together. That’s Mom #3 – Jan Kell, The Connector. Our profiles of 7 (S)HEroes of our #hydrocephalus community continues. Happy Mother’s Day!
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Moms on a MISSION: Susan Fiorella, Advocate
Mom #2 – Susan Fiorella, The Advocate. Join us as we profile 7 (S)HEroes of our #hydrocephalus community – MOMS ON A MISSION! Happy Mother’s Day!
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