Posts Tagged ‘pediatric hydrocephalus’
What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
Read MoreMary Decker Mentorship Award: Call for Nominations
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
Read MoreAn Invisible Medical Condition and a Handicap Placard
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
Read MoreHawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
Read MoreAnnouncing 2015 Hydrocephalus Association TTC Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreAnnouncing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
Read MoreThe Patient Voice in Hydrocephalus Research Studies
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
Read MoreRealizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
Read MoreMoms on a Mission: The Trailblazers
It is only fitting that we close out our Mother’s Day celebration with the mothers that started it all. Our Trailblazers – Emily Fudge, Cynthia Solomon, Pip Marks.
Read MoreMoms on a Mission: April Christian, Champion
Our mom and (S)HEro #6 April Christian continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
Read MoreMoms on a Mission: Jennifer Pope, Power Forward
Our mom and (S)HEro #5 Jennifer Pope continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
Read MoreMoms on a MISSION: Chara McLaughen, Promoter
Tireless organizer and promoter describe Mom #4 – Chara McLaughen. Our Mother’s Day profiles of 7 (S)HEroes of our #hydrocephalus community continues.
Read MoreMoms on a MISSION: Jan Kell, Connector
Bringing people together. That’s Mom #3 – Jan Kell, The Connector. Our profiles of 7 (S)HEroes of our #hydrocephalus community continues. Happy Mother’s Day!
Read MoreMoms on a MISSION: Susan Fiorella, Advocate
Mom #2 – Susan Fiorella, The Advocate. Join us as we profile 7 (S)HEroes of our #hydrocephalus community – MOMS ON A MISSION! Happy Mother’s Day!
Read MoreMoms on a MISSION: Vicki Brown, Visionary
One week of celebrating our MOMS ON A MISSION! Mom #1 – Vicki Brown, The Visionary. Happy Mother’s Day!
Read MoreFIGHTER! Hydrocephalus and CP Don’t Stop THIS Guy!
Today is Cerebral Palsy (CP) Awareness Day, part of CP Awareness Month! Meet William, living with both hydrocephalus and CP.
Read MoreMy 4-H Speech about Hydrocephalus
India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.
Read MoreMaking the Hydrocephalus Association a Part of My Legacy
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
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