pediatric hydrocephalus
Countdown to Conference: Tips on making it affordable!
The 15th National Conference on Hydrocephalus, HACONNECT, takes place June 28-30, 2018 in Orange County, California. Join us! Here are tips to help make it affordable.
Announcing National Conference Financial Aid
The Hydrocephalus Association is pleased to announce a financial aid program for the 15th National Conference on Hydrocephalus which will be held in Orange County, California June 28-30, 2018.
Conference Registration is OPEN!
Registration for our 15th National Conference on Hydrocephalus is OPEN! Join us in Orange County, California, June 28 – 30, 2018.
2018 Scholarship Cycle OPEN!
We are now accepting applications for our 2018 Hydrocephalus Association Scholarship Program.
A Reason for Hope this Holiday Season
Local Lucas, Kansas, performer sings to raise awareness for her son living with hydrocephalus, a chronic brain condition that has no cure.
Get to Know Our Conference Host City
For those that are traveling we hope you will take a couple days to explore this wonderful host city for our conference and enjoy the world-famous theme parks and, stunning beaches, designer shopping, delightful fairs and so much more.
Meet our Conference Team!
HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus
Book Your Hotel for Conference!
Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Renaissance Newport Beach in Orange County, California. Book your hotel!
En Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
Why Join the Hydrocephalus Professional Member Society?
Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.
What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Hydrocephalus Education Days Provide Connections
Complementing our National Conference on Hydrocephalus, we are proud to host Hydrocephalus Education Days in select cities across the USA.
Mary Decker Mentorship Award: Call for Nominations
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
Hydrocephalus Association Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)
The Hydrocephalus Association joins more than 300 organizations to ask Congress to provide robust, sustained, and predictable budget increases for the NIH
A Business with Hydrocephalus as Part of Its Mission
Jason Spears started his hard cider company with a mission. At the heart of that mission is his daughter, Lucy, living with hydrocephalus.
Living with Anxiety and Hydrocephalus Part 4
I rarely spoke a word during my first year in college. I was so anxious. It seemed like everything that could go wrong, definitely did…Madeleine continues her blog series.
Katie’s Top Ten Reasons You Should Attend Conference
What would it look like if we all worked together as one voice and made hydrocephalus a word that people know and are ultimately interested in curing?
Splash Into Summer Fun with Summer Camp
Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.
Superbowl Champ to Keynote Hydrocephalus Conference
Mr. Taurean Nixon of the Super Bowl Champion Denver Broncos will serve as the Inspirational Keynote Speaker at the National Conference on Hydrocephalus.
Hydrocephalus Clinical Research Network Adds Five New Centers
The Hydrocephalus Clinical Research Network (HCRN) adds five new research institutes to the network.
St. Louis Doctors Among Few Performing ETVs
Because of the country’s high numbers of children with hydrocephalus, doctors, including Dr. David Limbrick of St. Louis Children’s Hospital, traveled to Uganda so they could learn the technique. Two years ago, Limbrick traveled 8,000 miles to the East African country for more than a week of intensive training.
An Invisible Medical Condition and a Handicap Placard
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
Hawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
MOI Opens Special Camp for Children with Nerve Issues
Muhimbili Orthopedic Institute (MOI), in collaboration with Friends of Children with Cancer (FOCC), has launched a special camp to conduct operations for the children with neurosurgical problems.
6-Year-Old to be Hydrocephalus Awareness Ambassador
Elyse was selected as one of two children to serve as this year’s “National Ambassador of Hydrocephalus Awareness,” for the Pediatric Hydrocephalus Foundation, to help raise the level of awareness and education about Hydrocephalus in the United States.
Rwandan Hospital Leading the Way in Treating Hydrocephalus
Gikonko is the only health center with facilities to treat the medical condition; other medical centers treat hydrocephalus, but most of them refer patients to Gikonko Health Centre where specialists are based.
Conference Registration is OPEN!
Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.
Doctors Find Possible Link Between Zika and Hydrocephalus
Doctors in Brazil have discovered hydrocephalus in two babies with congenital malformation. Some suspect the ongoing Zika pandemic in the country caused these cases.
Australia Continues to Push for Registry
An Australian family has welcomed the aid of Senator Bob Day in pushing for a national shunt registry. One of Day’s staff members lost a child to the complications of hydrocephalus.
10 Reasons to Attend Conference!
Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!
Young Man Recalls the Story of his Lifesaving Surgery
A young man reminisces about his surgery from ten years ago. He had had a tumor that brought upon hydrocephalus.
Young Woman Prepares for 121st Surgery
A Minnesota 20-year-old will undergo here 121st surgery to replace an infected shunt.
2016 Scholarship Cycle OPEN!
The Hydrocephalus Association (HA) proudly offers fourteen scholarships to young adults with hydrocephalus. The 2016 Scholarship cycle is now open. Apply today!
Countdown to Conference: Tips on making it affordable!
The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.
How Roald Dahl Revolutionized Shunt Design
When his son got hydrocephalus, the famous Charlie and the Chocolate Factory author decided to design a new and better shunt for him.
New Treatment Procedure Could Help Eliminate Infant Deaths from Hydrocephalus
A Loyola University Medical Center neurosurgeon has challenged neurosurgeons worldwide to stop infant deaths from hydrocephalus. Dr. Prabhu believes a new procedure could help those in developing countries treat the condition.
The Gift of Life: 2015 Year End Research Campaign
Finding a cure for hydrocephalus will take our commitment, determination, and perseverance—the very things we demand of hydrocephalus patients every single day.
LEARN MORE: National Conference on Hydrocephalus
LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!