Posts Tagged ‘pediatric hydrocephalus’
Moms on a MISSION: Vicki Brown, Visionary
One week of celebrating our MOMS ON A MISSION! Mom #1 – Vicki Brown, The Visionary. Happy Mother’s Day!
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FIGHTER! Hydrocephalus and CP Don’t Stop THIS Guy!
Today is Cerebral Palsy (CP) Awareness Day, part of CP Awareness Month! Meet William, living with both hydrocephalus and CP.
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My 4-H Speech about Hydrocephalus
India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.
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Making the Hydrocephalus Association a Part of My Legacy
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
Read MoreThe ABLE Act Offers Tax Benefits for Hydrocephalus Families
The ABLE Act allows families with children with disabilities to save for college and other expenses in tax-deferred accounts. A must read with tax season upon us!
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A Sad Farewell to a Friend of our Community: Jerome Kersey
It is with deep sadness that we share the news of the passing of retired NBA player Jerome Kersey, a keynote speaker at our 2014 Hydrocephalus Conference.
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Research 101: Levels of Evidence in Hydrocephalus Clinical Research Studies
Clinical studies are often reported in the news, but how do you know if the study is strong? Dr. Koschnitzky describes how to interpret the results of a study.
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Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)
What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.
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One Big Family
Life at 14 can be tough, but Jillian’s determined to live FULLY and overcome any challenge presented to her by hydrocephalus or just being a teen.
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Research UPDATE: Using the Newest Technology to Understand Hydrocephalus
How do the cells of an infant’s developing brain react to the pressures of hydrocephalus? Our former MYI recipient, Dr. Eskandari’s, goal is to find out.
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Dr. Marion “Jack” Walker Honored for his Contributions to Pediatric Neurosurgery
The AANS/CNS Section on Pediatric Neurosurgery awards Dr. Marion L. Walker the 2014 Franc D. Ingraham Award for Distinguished Service and Achievement.
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Mary Decker Mentorship Award: Call for Nominations
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
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Pediatric Hydrocephalus Guidelines on Treatment and Management
Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.
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Preparing for Transition to Adulthood with Baby Steps (that become huge milestones)! It Starts with YOU.
Preparing children to become adult medical patients can happen earlier than you might think, as Cristin Lind shares in her recent article.
Read MoreHydrocephalus Association Resident’s Prize Award
Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.
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HCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant
PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.
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Announcing our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Through the NOSE! Non-invasive Modulation of CSF Absorption
A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.
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Bachelorette Contestant Wins our Hearts in Hershey
The Hydrocephalus Association would like to thank Brian Osborne, a season 10 Bachelorette contestant, for supporting our Hydrocephalus Association Hershey, PA WALK.
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Announcing Our 2014 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Scholarship Recipients.
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