This study is the first to evaluate the size of the ETV hole using MR imaging over a period of time. This research is important because it shows us how useful MR imaging can be to neurosurgeons who want to evaluate an ETV.
The IIHS gathered data from more than 20 hospitals around the world, compared the effectiveness of shunts versus endoscopic third ventriculostomies (ETVs). This study started in 2005 and these are the five year outcomes.
Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.
There are two common treatment options available for infants that suffer from Aqueductal stenosis: implantation of a shunt or an endoscopic third ventriculostomy
By filling out our online surveys, participating in the clinical research networks, and making donations, we are moving hydrocephalus research forward!
HA is proud to fund the AHCRN as they move research from bench to bedside to find new treatments, preventions and cures for adults living with hydrocephalus and NPH.
The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research initiative that aims to prevent or minimize the development of hydrocephalus after a brain bleed.
Members of the Virginia Hydrocephalus Association Community Network meet Governor Terry McAuliffe and share their personal hydrocephalus stories.
Dr. Jay Riva-Cambrin of Alberta Children’s Hospital is featured in Calgary Metro for his use of the Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization in infants born with hydrocephalus.
Because of the country’s high numbers of children with hydrocephalus, doctors, including Dr. David Limbrick of St. Louis Children’s Hospital, traveled to Uganda so they could learn the technique. Two years ago, Limbrick traveled 8,000 miles to the East African country for more than a week of intensive training.
TTC Blogger Madeleine Darowiche shares her insights about the challenge of accepting yourself and where you are today, in order to grow tomorrow.
Hydrocephalus Association CEO Dawn Mancuso shares the aggressive strategic plan adopted by the Board of Directors that will guide the work of HA over the next 5 years – our Roadmap to a Cure.
The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)
What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.
Tomorrow evening Craig and Vicki Brown will host the 2nd annual Vision Dinner in New York City. The event is featured in an October 10, 2014, article in The Greenville News titled, “Drive Owner Hosts Rare Disease Fundraiser.”
Lisa Jasper shares the story of her 35 year old son, Tommy, and his complicated journey with hydrocephalus. Tommy’s spirit and Lisa’s honesty come through in this touching piece.
Counterbalancing articles in AANS Neurosurgeon about changes in the treatment of hydrocephalus and the impact of new procedures going forward make for interesting reading about the evolution of hydrocephalus treatment.
Haylea Blank shares the take-aways from attending two Hydrocephalus Association national conferences that have helped her manage her hydrocephalus into adulthood.
Dr. Rob Naftel of Vanderbilt University traveled to Uganda to learn the new surgical treatment for hydrocephalus, endoscopic third ventriculostomy (ETV) combined with choroid plexus cauterization (CPC). Training under Dr. Benjamin Warf of Boston Children’s Hospital, who pioneered the procedure, Dr. Naftel will be able to apply the technique to his current practice, expanding a multi-site outcomes research study led by the Hydrocephalus Clinical Research Network (HCRN), which Vanderbilt joined in 2013.
Meredith Vitrano acquired hydrocephalus as a pre-teen. The now 24 year-old has been shunt free for 2 years after Dr. Edward Ahn of Johns Hopkins Children’s Center performed an endoscopic third ventriculostomy.
Summary of the Hydrocephalus Clinical Research Network (HCRN) investigators and coordinators’ Fall meeting, November 7- 8, in Salt Lake City.
Matthew Schwerha, reporting for the Barrington Courier-Review, interviews one of our current Chicago WALK Chairs, Katie Cook, who’s son Conor has hydrocephalus. The Chicago WALK took place on August 18, 2013 at Soldier’s Field.
Matthew Schwerha, reporting for The NapervilleSun, interviews Amber Hiland, who’s son Carter passed away from complications of hydrocephalus, at the Hydrocephalus Association Chicago WALK, which took place on August 18, 2013 at Soldier’s Field.
As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.
The International Society for Hydrocephalus and CSF Disorders (ISHCSF) held its 5th annual meeting June 28th – July 2nd in Athens, Greece. The meeting brought together hydrocephalus researchers from around the world to discuss the current state of research for all types of hydrocephalus.