Cerebrospinal Fluid

Premature Baby Posthemorragic hydrocephalus

HA Convenes the First International Workshop on Posthemorrhagic Hydrocephalus

Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.

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Ohio Baby Born with Rare Brain Condition Doing Well

Baby born with encephalocele has had his brain gently placed into the proper position and treated with a shunt.

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lymphatic vessels in the brain

New Discovery Makes Researchers Rethink CSF Absorption

The discovery of lymphatic vessels in the brain creates a new focus for researches looking for non-invasive treatments for hydrocephalus.

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Hydrocephalus Association Board Member Receives Prestigious Neurosurgical Award

Pediatric neurosurgeon Dr. John R. W. Kestle is awarded the Robert H. Pudenz Award for Excellence in Cerebrospinal Fluid (CSF) Physiology by Medtronic plc.

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Shunt to treat hydrocephalus on glass model skull

INPUT NEEDED on Device to Detect CSF Build Up at Home

Two bioengineering students out of Rice University are working on a device that can be used by patients for at-home diagnosis of CSF buildup for hydrocephalus patients.

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Hydrocephalus Association Conference

The Patient Voice in Hydrocephalus Research Studies

Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.

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Dr. John R. Kestle and Dawn Mancuso

HA Board Member Receives Distinguished Award in Neuroscience

Dr. John R.W. Kestle is awarded the Robert H. Pudenz Award for Excellence in CSF Physiology by Medtronic

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Bristol is Meeting Ground for 300 Top Neuroscientists

300 top neuroscientists gathered to meet on and discuss a full range of CSF disorders affecting both children and adults, primarily focused on hydrocephalus.

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UCSF Uses Next-Generation Sequencing of CSF to Identify Cause of Hydrocephalus

The New England Journal of Medicine reports on a group of physicians at the University of California, San Francisco, used next-generation sequencing of cerebrospinal fluid (CSF) to identify a rare cause of hydrocephalus in a 14-year old patient.

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Dawn Mancuso, CEO, Hydrocephalus Association

From the CEO: Sowing the Seeds of Exploration into Hydrocephalus

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.

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50th Anniversary of the Recognition of Normal Pressure Hydrocephalus

March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.

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New Sensor Works with Shunt to Monitor Brain Pressure

Researchers at the Fraunhofer Institute for Microelectronic Circuits and Systems IMS in Duisburg, Germany, working jointly with Christoph Miethke GmbH and Aesculap AG, engineered a cerebral pressure sensor that is implanted with a shunt that allows physicians to read brain pressure using a hand-held meter.

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Research UPDATE: A Clue to Better Understand and Treat Hydrocephalus

Dr. Tamara Simon and her research team out of Seattle Children’s Hospital have uncovered a host of pathogens never before associated with shunt infections in the CSF of eight children, which could lead to new understandings on treating and preventing shunt infections.

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HCRN at the Pediatric Section Meeting

Summary of the presentations by HCRN investigators at the recent AANS/CNS Section on Pediatric Neurological Surgery held in Toronto, December 3-6, 2013.

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Research UPDATE: HCRN Semi-Annual Investigator Meeting Summary

Summary of the Hydrocephalus Clinical Research Network (HCRN) investigators and coordinators’ Fall meeting, November 7- 8, in Salt Lake City.

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HCRN Update: Shunt Infection Risk and Treatment in Children

Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.

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One Teen, One French Bulldog, and One Common Journey with Hydrocephalus

Nina is a dog lover. She brings one special French Bulldog into her life as they share a common journey with hydrocephalus. She shares her story with the Hydrocephalus Association.

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Research UPDATE: Researchers in Hydrocephalus Convene in Greece

The International Society for Hydrocephalus and CSF Disorders (ISHCSF) held its 5th annual meeting June 28th – July 2nd in Athens, Greece. The meeting brought together hydrocephalus researchers from around the world to discuss the current state of research for all types of hydrocephalus.

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HCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus

Dr. David Limbrick discuss his current research study which aims to develop a complimentary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.

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HA Established Investigator Publishes Research Findings on Congenital Hydrocephalus

James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.

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Brushes with Mortality: 5 Lessons On Dealing with Hard Times

Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog, “Brushes with Mortality: 5 Lessons On Dealing with Hard Times.” Be inspired.

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New Hydrocephalus Shunt Systems Page Launched!

The Hydrocephalus Association is pleased to announce the launch of our Shunt System page on our website. Learn more about shunt system components, valve mechanisms, most common shunt systems, overdrainage control devices, Siphon-resistive devices (SRD) and the different symptoms of malfunction and/or infection.

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Research UPDATE: 2013 Research Award with RSRI in Full Swing

The Hydrocephalus Association 2013 Research Award in Cerebrospinal Fluid Production, Flow and Regulation Therapeutics and Diagnostics in partnership with the Rudi Schulte Research Institute (RSRI) is in full swing.

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Brain 101: The Ventricles and CSF Flow

As a follow up to the previous article on the anatomy and physiology of the brain, the Hydrocephalus Association would like to continue our learning and explore the terms we so often hear when dealing with hydrocephalus.

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Research UPDATE: Investigating Alternative Treatment Options for Hydrocephalus

The Hydrocephalus Association (HA) Research Department update focuses on the research of Dr. Sonia Podvin who aims to develop safe, specific drugs to treat hydrocephalus. She is the recipient of a Mentored Young Investigator (MYI) award from HA.

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Announcing Our 2013 Scientific and Medical Review Committee

The Hydrocephalus Association is excited to announce the formation of our 2013 Scientific and Medical Review Committee (SMRC) for our current grant opportunity in partnership with the Rudi Schulte Research Institute.

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HA Partners with Rudi Schulte Research Institute for Research Grant

The Hydrocephalus Association is excited to announce the next stage in our relationship with the Rudi Schulte Research Institute (RSRI) as we partner with them to find significant advances in the treatment of hydrocephalus. Together HA and RSRI have launched a major new Request for Applications (RFA) targeted at gaining a better understanding of the dynamics of Cerebrospinal Fluid (CSF).

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