Posts Tagged ‘brain shunt’
Solving for X
Ariel Yong, guest blogger for the Hydrocephalus Association Teens Take Charge program, shares her journey with math and her ultimate accomplishment of graduating from college with a degree in mathematics.
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In Memoriam: Cynthia E. Solomon
The Hydrocephalus Association is saddened to share the passing of an icon in the hydrocephalus community and one of our co-founders – Cynthia E. Solomon. She dedicated her life to helping others. She will be greatly missed.
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Voices from Our Community: Dr. Harold Conn’s Decade of NPH Misdiagnosis
The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.
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Mary Decker Mentorship Award Recipient Announced
The Hydrocephalus Association is proud to announce Cathy Cartwright as this year’s Mary Decker Mentorship Award recipient for her tremendous passion, caregiving, and nurturing of children with hydrocephalus
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One Person CAN Change the World
In Megan Redfearn’s installment of her blog series, Emma Lee and Me, Megan talks about the strength of her daughter and the impact it has had on her and…well…the world!
Read MoreAARP Bulletin Features Normal Pressure Hydrocephalus
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
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Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
Read MoreBringing Normal Pressure Hydrocephalus Out of Obscurity
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
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Breaking the ICE
We have a NEW guest blogger for the Hydrocephalus Association Teens Take Charge program. Meet Henry and join the conversation on Twitter. Use #TeensTC.
Read More50th Anniversary of the Recognition of Normal Pressure Hydrocephalus
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia.
Read MoreLooking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus
Jennifer Bechard, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
Read MorePersonifying Determination: Gabby Giffords
Former Congresswoman Gabrielle Giffords, who acquired hydrocephalus after the tragic incident which took place in 2011, shares a personal message to the hydrocephalus community.
Read MoreResearch UPDATE: Preventing Hydrocephalus in Premature Infants
In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.
Read MoreLooking Back…Moving Forward: Advancing the Research Mission
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.
Read MoreHappening NOW: First Annual Vision Dinner in New York City
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
Read MoreLooking Back…Moving Forward: Spina Bifida and Hydrocephalus Do Not Define Me
October is Spina Bifida Awareness Month. Nicole Small reflects on living with both spina bifida and hydrocephalus since birth, as the Hydrocephalus Association continues our interview series commemorating our 30th anniversary.
Read MoreLooking Back…Moving Forward: Moments that Matter
As the Hydrocephalus Association continues its 30th anniversary interview series, Jennifer Balthuis, our Minnesota Community Network leader, shares the moments that have touched her the most while leading the MN Support Group.
Read MoreLooking Back…Moving Forward: There Has to be a Better Way
As the Hydrocephalus Association continues its history series commemorating our 30th anniversary, Barrett O’Connor, chair of the HA board of directors, shares a personal message to the hydrocephalus community.
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Announcing our 2013 Hydrocephalus Association TTC Scholarship Recipients!
Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.
Read MoreHCRN Update: Shunt Infection Risk and Treatment in Children
Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.
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