pediatric hydrocephalus

Get to Know Our Conference Host City

For those that are traveling we hope you will take a couple days to explore this wonderful host city for our conference and enjoy the world-famous theme parks and, stunning beaches, designer shopping, delightful fairs and so much more.

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Meet our Conference Team!

HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus

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Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Irvine Marriott in Orange County, California. Book your hotel!

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En Garde! The Sport of Fencing and Hydrocephalus

Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.

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Hydrocephalus Professional Member Society

Why Join the Hydrocephalus Professional Member Society?

Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.

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What Can’t You Live Without?

Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.

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Hydrocephalus Association Education Days

Hydrocephalus Education Days Provide Connections

Complementing our National Conference on Hydrocephalus, we are proud to host Hydrocephalus Education Days in select cities across the USA.

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Neuroscience Nurse

Mary Decker Mentorship Award: Call for Nominations

Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!

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Hydrocephalus Teens Take Charge Scholarships

Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Hydrocephalus Association Scholarships

Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.

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Hydrocephalus Association Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)

The Hydrocephalus Association joins more than 300 organizations to ask Congress to provide robust, sustained, and predictable budget increases for the NIH

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A Business with Hydrocephalus as Part of Its Mission

Jason Spears started his hard cider company with a mission. At the heart of that mission is his daughter, Lucy, living with hydrocephalus.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus Part 4

I rarely spoke a word during my first year in college. I was so anxious. It seemed like everything that could go wrong, definitely did…Madeleine continues her blog series.

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Chicago Hydrocephalus Association WALK Chairs

Katie’s Top Ten Reasons You Should Attend Conference

What would it look like if we all worked together as one voice and made hydrocephalus a word that people know and are ultimately interested in curing?

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Summer camp for special needs kids

Splash Into Summer Fun with Summer Camp

Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.

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Taurean Nixon

Superbowl Champ to Keynote Hydrocephalus Conference

Mr. Taurean Nixon of the Super Bowl Champion Denver Broncos will serve as the Inspirational Keynote Speaker at the National Conference on Hydrocephalus.

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Hydrocephalus Clinical Research Network

Hydrocephalus Clinical Research Network Adds Five New Centers

The Hydrocephalus Clinical Research Network (HCRN) adds five new research institutes to the network.

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St. Louis Doctors Among Few Performing ETVs

Because of the country’s high numbers of children with hydrocephalus, doctors, including Dr. David Limbrick of St. Louis Children’s Hospital, traveled to Uganda so they could learn the technique. Two years ago, Limbrick traveled 8,000 miles to the East African country for more than a week of intensive training.

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An Invisible Medical Condition and a Handicap Placard

Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.

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Dallas Hydrocephalus WALK Family

Hawk and Why I WALK

A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.

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MOI Opens Special Camp for Children with Nerve Issues

Muhimbili Orthopedic Institute (MOI), in collaboration with Friends of Children with Cancer (FOCC), has launched a special camp to conduct operations for the children with neurosurgical problems.

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6-Year-Old to be Hydrocephalus Awareness Ambassador

Elyse was selected as one of two children to serve as this year’s “National Ambassador of Hydrocephalus Awareness,” for the Pediatric Hydrocephalus Foundation, to help raise the level of awareness and education about Hydrocephalus in the United States.

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Rwandan Hospital Leading the Way in Treating Hydrocephalus

Gikonko is the only health center with facilities to treat the medical condition; other medical centers treat hydrocephalus, but most of them refer patients to Gikonko Health Centre where specialists are based.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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Doctors Find Possible Link Between Zika and Hydrocephalus

Doctors in Brazil have discovered hydrocephalus in two babies with congenital malformation. Some suspect the ongoing Zika pandemic in the country caused these cases.

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Australia Continues to Push for Registry

An Australian family has welcomed the aid of Senator Bob Day in pushing for a national shunt registry. One of Day’s staff members lost a child to the complications of hydrocephalus.

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10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

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Young Man Recalls the Story of his Lifesaving Surgery

A young man reminisces about his surgery from ten years ago. He had had a tumor that brought upon hydrocephalus.

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Young Woman Prepares for 121st Surgery

A Minnesota 20-year-old will undergo here 121st surgery to replace an infected shunt.

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Hydrocephalus Scholarship

2016 Scholarship Cycle OPEN!

The Hydrocephalus Association (HA) proudly offers fourteen scholarships to young adults with hydrocephalus. The 2016 Scholarship cycle is now open. Apply today!

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National Hydrocephalus Conference

Countdown to Conference: Tips on making it affordable!

The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.

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How Roald Dahl Revolutionized Shunt Design

When his son got hydrocephalus, the famous Charlie and the Chocolate Factory author decided to design a new and better shunt for him.

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New Treatment Procedure Could Help Eliminate Infant Deaths from Hydrocephalus

A Loyola University Medical Center neurosurgeon has challenged neurosurgeons worldwide to stop infant deaths from hydrocephalus. Dr. Prabhu believes a new procedure could help those in developing countries treat the condition.

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Gift of Life Hydrocephalus Research Campaign

The Gift of Life: 2015 Year End Research Campaign

Finding a cure for hydrocephalus will take our commitment, determination, and perseverance—the very things we demand of hydrocephalus patients every single day.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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GivingTuesday Hydrocephalus Association

Double your Gift of Hope

This #GivingTuesday, for every dollar you donate to the Hydrocephalus Association, a generous donor will match it up to $15,000!

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Hydrocephalus Conference

Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus June 16-19 in Minneapolis, Minnesota. Book your hotel!

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Hydrocephalus Association Announces New Chief Executive Officer

The largest hydrocephalus patient advocacy organization, the Hydrocephalus Association (HA), selects Diana Gray as the new Chief Executive Officer (CEO) to lead an aggressive growth strategy.

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Generalizability in Research Studies

Research 101: Generalizability

The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.

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Hydrocephalus Teens Take Charge Scholarships

Announcing 2015 TTC Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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