Posts Tagged ‘congenital hydrocephalus’
Hydrocephalus Association Highlights Revolutionary Women in Medical Research
Celebrate Influential Leaders during National Women’s History Month. Dr. Robinson & Dr. Jantzie are both revolutionary women making strides for hydrocephalus
Read MoreA Writer’s World
Blair Patrick Schuyler talks about the challenges and elation of writing his first book, “Adolescence Interrupted”, and on growing up with hydrocephalus..
Read MoreGenetic Mutations and their Role in Congenital Hydrocephalus
Hydrocephalus has been shown to have multiple causes, including numerous genetic origins. Dr. Jenna Koschnitzky explores genetic mutations in a three blog series.
Read MoreWhat Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
Read MoreHappy 10th Anniversary to the Hydrocephalus Clinical Research Network!
The Hydrocephalus Clinical Research Network celebrates 10 years of pursuing impactful research into childhood hydrocephalus.
Read MoreHA Convenes the First International Workshop on Posthemorrhagic Hydrocephalus
Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.
Read MoreHydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
Read MoreInspiring 26 Miles: A Posse of Penguins Take On the LA Marathon
Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.
Read MoreThat Feeling of Helplessness
One mom openly and honestly shares the many emotions that challenge parents of children living with hydrocephalus.
Read MoreMixed Emotions: Heartbreak
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
Read MoreMixed Emotions: Joy
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
Read MoreRealizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
Read MoreMixed Emotions: Nerves
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
Read MoreMoms on a Mission: The Trailblazers
It is only fitting that we close out our Mother’s Day celebration with the mothers that started it all. Our Trailblazers – Emily Fudge, Cynthia Solomon, Pip Marks.
Read MoreMoms on a Mission: April Christian, Champion
Our mom and (S)HEro #6 April Christian continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
Read MoreMoms on a Mission: Jennifer Pope, Power Forward
Our mom and (S)HEro #5 Jennifer Pope continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
Read MoreMoms on a MISSION: Chara McLaughen, Promoter
Tireless organizer and promoter describe Mom #4 – Chara McLaughen. Our Mother’s Day profiles of 7 (S)HEroes of our #hydrocephalus community continues.
Read MoreMoms on a MISSION: Jan Kell, Connector
Bringing people together. That’s Mom #3 – Jan Kell, The Connector. Our profiles of 7 (S)HEroes of our #hydrocephalus community continues. Happy Mother’s Day!
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