Brain Injury

Hydrocephalus Action Network

TAKE ACTION! Help Veterans Receive Telehealth Benefits

Take action today to support moves in the Senate and the House to support telehealth medicine for our veterans.

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Hydrocephalus Action Network

Election 2016: What Does this Mean for the Hydrocephalus Community?

The incoming Administration and Congressional Members will take office with new policy priorities. On healthcare, some will remain the same, while others will change.

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Families Unite with Scientists to Prevent Leading Cause of Brain Surgery in Children

The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research initiative that aims to prevent or minimize the development of hydrocephalus after a brain bleed.

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Benefits of Yoga for Brain Recovery

The Love Your Brain Foundation in Denver, CO, has specialized yoga workshops for survivors of traumatic brain injury (TBI).

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Brown University Study Suggests Window to Prevent Brain Injury

A study out of Brown University suggests that there may be a window for therapeutic intervention aimed at minimizing further damage after a traumatic brain injury (TBI).

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Susan Fiorella, hydrocephalus advocate, with her son.

Together Towards Tomorrow

If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.

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Hydrocephalus WALK in Indiana

Why I WALK – For a Better Tomorrow

The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.

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Cognitive Training Therapy May Aid Those with Brain Injury

Neurology Now Magazine shares an interesting new therapy that may benefit individuals in our ‪‎hydrocephalus community when it becomes available.

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UNCP Hopes to Push TBI Research Forward With Help of Recent Grants

University of North Carolina has been awarded a grant to fund a study for neurotoxin action. Lead Scientist Dr. Bahr hopes the recent grants will push forward traumatic brain injury program and Alzheimer’s research.

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Concussions: A Serious Problem for Students

Kathryn Theisen explains the importance of teachers, counselors, medical professionals and students working to support students suffering from concussions.

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Boy with hydrocephalus and cerebral palsy

FIGHTER! Hydrocephalus and CP Don’t Stop THIS Guy!

Today is Cerebral Palsy (CP) Awareness Day, part of CP Awareness Month! Meet William, living with both hydrocephalus and CP.

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Research 101: Levels of Evidence in Hydrocephalus Clinical Research Studies

Clinical studies are often reported in the news, but how do you know if the study is strong? Dr. Koschnitzky describes how to interpret the results of a study.

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Endoscopic Third Ventriculostomy

Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)

What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.

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Image of brain with labels

Research UPDATE: Using the Newest Technology to Understand Hydrocephalus

How do the cells of an infant’s developing brain react to the pressures of hydrocephalus? Our former MYI recipient, Dr. Eskandari’s, goal is to find out.

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Injury to Brain Matter

What’s the Matter?

This blog explains the difference between white and grey matter injuries and their effects on the brain.

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Focusing on Emotional Recovery Post Brain Injury

Researchers at VCU are focusing on helping survivors and their loved ones recover emotionally from brain injuries which often result in depression, anxiety, and other ailments.

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New Study on How the Brain Cells Respond to Injury

The National Science Foundation has awarded two bioengineering professors at the University of Arkansas a grant to study how brain cells respond to traumatic brain injury.

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American Heart Association Grant to Study Brain Swelling

The American Heart Association has granted a second-year resident in the Department of Neurology at the George Washington University School of Medicine and Health Sciences a $154K grant to study brain swelling and injury after an intracerebral hemorrhage.

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Dr. Andrew Zabel Tackles Anxiety and Hydrocephalus

Dr. Andrew Zabel, Ph.D., ABPP, Kennedy Krieger Institute, returns to the Hydrocephalus Association’s 13th National Conference on Hydrocephalus to lead two sessions – the ABCs of IEPs and Anxiety, Depression and Hydrocephalus. Join us in Portland, OR, July 9-11.

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Hydrocephalus Conference Scientific Keynote: Dr. Stephen A. Back

Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!

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AARP Bulletin Features Normal Pressure Hydrocephalus

The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.

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Brain Injury App Helps with Speech and Learning Disorders

The Boston Herald reports on a brain injury app called Constant Therapy that is designed for patients with traumatic brain injuries as well as patients with speech and learning disorders. The app combines science-based tasks with advanced analytics.

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Emergency Drug Could Reduce Risk of Epilepsy for TBI Victims

Researchers at the University of California, Berkeley, are working on a drug to help prevent a common protein found circulating in our blood from crossing the blood-brain barrier after a brain injury. This protein was found to cause seizures and the possible development of epilepsy in brain injury victims.

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Boxing and Mixed Martial Arts Commit $600,000 to Brain Trauma Research

The Washington Post reports leading Boxing and Mixed Martial Arts groups met with Senator Harry Reid (D-NV) and Senator John McCain (R-AZ) to commit $600,000 for a study on repeated brain trauma by Cleveland Clinic’s Lou Ruvo Center for Brain Health in Las Vegas.

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GE and NFL Fund Study of Biomarking for Brain Injury

The NFL and General Electric (GE) will fund a University of California, Santa Barbara (UCSB) study that will look at an early detection method using imaging known as biomarking, a tool capable of measuring physiological or molecular processes and is used as a standard in clinical health.

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Are we looking for innovation or revolution?

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso explores how a simple paradigm shift in thinking presented at a recent conference at Children’s Hospital of Alabama, might cause a revolutionary change in the rate of progress for research around hydrocephalus.

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Study on CTE and Athletes Focuses on Early Symptoms

A new study of former athletes with chronic traumatic encephalopathy (CTE) hopes to find ways to detect early stages of the condition and, thereby, early diagnosis for treatment interventions prior to significant symptom onset.

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Learning How Brains Heal

Burke Medical Research Institute’s Early Brain Injury Recovery Program is researching how the brains of children learn to compensate for the damage they have suffered from stroke and other brain injury.

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Good Housekeeping Magazine Raises Awareness of Hydrocephalus

Cortney Pellettieri of Los Angeles, CA, is selected as one of 5 women committed to a cause and making a difference. She is the co-chair for the Los Angeles Hydrocephalus WALK, which will raise funds and awareness for a condition that affects 1 million Americans and is the leading cause for brain surgery in children.

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Hand Held Scanner to Detect Brain Bleeds

A philanthropic organization based in Virginia Beach named Hillier Ignite has awarded its first Lifesaving Innovation Award to InfraScan Inc.. InfraScan is a medical device company that focuses on developing hand-held diagnostic devices based on near infrared technology for head injury and stroke assessment.

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Scientists Discover Brain Rewires Itself After Injury

A UCLA Newsroom press release details the findings of life scientists from UCLA and Australia showing that when the brain’s primary “learning center” is damaged, parts of the prefrontal cortex take over. The findings could help in the development of new treatments for Alzheimer’s disease, stroke and other conditions involving damage to the brain.

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What is SPML Anyway (and try saying it 3X quickly)?

Lori Poliski shares her family’s experience with SPML, a surgical treatment for children and adults primarily with Spastic Diplegia Cerebral Palsy (SDCP).

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Kessler Institute will Host a Conference on Brain Injury September 27-28

The Kessler Institute for Rehabilitation in West Orange, NJ will host a two-day conference, “Brain Injury: From Research to Rebuilding Lives.”

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New Legislation in NY Changes the Management of Brain Injuries in School Athletics

The New York State Concussion Management and Awareness Act will change the way head injuries are treated and how adults supervise school athletics. The legislation was signed into law in September 2011 and took effect in July 1, 2012.

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