History and Research Mission
Since the first National Institutes of Health (NIH)-sponsored workshop “Hydrocephalus Myths, New Facts and Clear Directions” in 2005, in which HA played an instrumental role, increased hydrocephalus-related research has been a cause for hope for the hydrocephalus community. In 2009, HA launched its Research Initiative and has since directly funded both basic and clinical research. HA remains committed to stimulating and funding research that improves the quality of life for people living with hydrocephalus, while encouraging more scientists – both junior and senior — to focus on this condition.
Priority Area 1: Stimulate the Research Ecosystem
Significant advancements in the care and treatment of hydrocephalus require a vibrant, multidisciplinary research community. To promote this community, HA is taking a two-fold approach. First, HA is sponsoring research workshops and conferences designed to foster collaboration and innovation among researchers and clinicians from diverse backgrounds and expertise. Second, HA is supporting the work of young investigators through early career grants. This support not only directly advances hydrocephalus research but helps drive the future of hydrocephalus research.
Priority Area 2: Improve Clinical Outcomes and Quality of Life
The current treatments for hydrocephalus have unacceptably high failure and complication rates. To improve the lives of people who currently have hydrocephalus, HA is committed to identifying and improving clinical best practices, reducing common problems associated with shunting, and developing a consensus in the scientific and clinical community on common clinical assessments and outcome measures. HA is able to directly accomplish these goals by supporting high quality, high impact clinical studies conducted by the Hydrocephalus Clinical Research Network (HCRN) and the Adult Hydrocephalus Clinical Research Network (AHCRN).
Priority Area 3: Advance the Study of the Root Causes
It is difficult to cure a disorder when the root causes and primary consequences are poorly understood. HA is striving to support research in areas such as cerebral spinal fluid (CSF) production, flow, and absorption, as well as, biomarker identification and genetic variation. Understanding the basic mechanisms that lead to hydrocephalus will ultimately aid in diagnosis and treatment of the condition and improve quality of life.
Find out more about our Research Programs
Find out more about our Research Conferences and Workshops