Patient Studies

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Enrolling in clinical research trials is one way our community can become active participants in the quest to improve outcomes and find a cure for hydrocephalus. On this page you can learn about ongoing trials.


Clinical Trials


Genetic Causes of Congenital Hydrocephalus

Lead Investigator: Kristopher Kahle, MD, PhD
Location: Yale University, The Anlyan Center, 300 Cedar Street, Rm S311, New Haven, CT 06519
Recruiting: locally, regionally, and nationally
Eligibility: Families affected by congenital (developmental) hydrocephalus

Click here for more information


Hydrocephalus: Underlying Genes & Signaling (HUGS)

Enrollment is temporarily on HOLD

Lead Investigator: Timothy Vogel, MD
Location: Cincinnati Children’s Hospital Medical Center, 3333 Burnet Ave. Cincinnati, OH 45229
Recruiting: locally, regionally, and nationally
Eligibility: People of all ages with or without hydrocephalus


 

Advanced Imaging in Pediatric Hydrocephalus

Enrolling NOW at the Albert Einstein College of Medicine of Yeshiva University, Montefiore Medical Center

Lead Investigator: Mark Wagshul, PhD
Location: Gruss MRRC at Einstein College of Medicine, 1300 Morris Park Ave, Bronx, NY 10461
Eligibility: Children and Young Adults aged 6-25

Click here for more information


 

A Randomized Controlled Trial of Anterior versus Posterior Entry Site for CSF Shunt Insertion

Enrolling NOW at participating HCRN Centers

Lead Investigator: William Whitehead, MD, Texas Children’s Hospital
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age and getting their first permanent shunt

Click here for more information


 

A Standardized Protocol to Reduce Cerebrospinal Fluid Shunt Infection

Enrolling NOW at participating HCRN Centers

Lead Investigator: John Kestle, MD, University of Utah
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age


Ventricular Size Involvement in Neuropsychological Outcomes in Pediatric Hydrocephalus

Enrollment is now COMPLETE

Lead Investigator: Jay Riva-Cambrin, MD, University of Utah
Location: HCRN Centers in United States and Canada
Eligibility: Children 6-18 years of age

Click here for more information


 

Patient Registries


 

AHCRN Core Data Project

Open to patients at participating AHCRN Centers

Lead Investigator: Mark Hamilton, MD, University of Calgary
Location: AHCRN Centers in United States and Canada
Eligibility: Adults older than 18 years of age

Click here for more information about the AHCRN


 

HCRN Core Data Project

Open to patients at participating HCRN Centers

Lead Investigator: Jay Riva-Cambrin, MD, University of Utah
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age

Click here for more information

Click here for more information about the HCRN


 

HCRN Core Data Project: Characterizing Patient Populations within the HCRN: Shunt Infection Registry

Open to patients at participating HCRN Centers

Lead Investigator: Tamara Simon, MD, Seattle Children’s Hospital
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age


 

HCRN Core Data Project: Characterizing Patient Populations within the HCRN: Endoscopic Third Ventriculostomy Registry

Open to patients at participating HCRN Centers

Lead Investigator: Abhaya Kulkarni, MD, The Hospital for Sick Children
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age


To search for more hydrocephalus clinical trials visit clinicaltrials.gov


2 Comments for : Patient Studies
    • AUdrey Obach
    • August 23, 2016
    Reply

    My name is Audrey Obach. I was born with Hydrocephalus 58 years ago. When I was 8 months old I had to have surgery that saved my life. Can someone tell me what the Shunts were made of that long ago? It showed up on the head X Ray I had done 7 years ago when I broke my jaw.

    • Amy D. Bell
    • August 23, 2016
    Reply

    I was diagnosed with NPH at age 28—because it was found so late, I am unshunted. I am interested in possibly contributing to clinical studies, although I see from your website that there aren’t any clinical studies being conducted at the University of Texas Medical Branch in Houston, Texas and I wonder why?? I am unable to afford to travel to the east coast or Utah for clinical studies. I would ALSO like to be on the registry…..how can I go about doing this?

    Thank you for your attention.
    Sincerely yours,
    Amy D. Bell

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