Join Us for World Hydrocephalus Day

September 20

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Each year almost 400,000 children across the globe receive a diagnosis of hydrocephalus. Additionally, there is an estimated count of 8 million seniors worldwide with normal pressure hydrocephalus (NPH), with a significant number remaining undiagnosed or deprived of the life-saving treatment they require.

Hydrocephalus presents a universal challenge, and it's time that we unite to foster global awareness so we can show the world the importance of this life-threatening condition, and the need for better treatments.

World Hydrocephalus Day aims to shed light on this often-misunderstood condition and promote worldwide unity among patients, caregivers, healthcare professionals, and advocacy organizations. By fostering understanding and compassion, the day seeks to improve the lives of those affected by hydrocephalus.

Goals for World Hydrocephalus Day 2023

  1. Raise Awareness: Hydrocephalus affects people of all ages. On this day, we encourage communities, organizations, and individuals to share information and boost awareness and understanding.
  2. Support Those Affected: This day offers a platform for those with hydrocephalus and their caregivers to share their stories and connect, fostering a global support network.
  3. Advocate for Research: Research is vital for better treatments and improving lives. World Hydrocephalus Day champions increased funding and collaboration for research.
  4. Promote Early Diagnosis: Early diagnosis and intervention greatly improve outcomes for hydrocephalus. This day highlights the crucial need for prompt diagnosis and treatment.
  5. Celebrate Resilience: Individuals with hydrocephalus display incredible resilience. This day will celebrate their achievements and highlight their contributions to society.

Ways to Get Involved

  • Wear Blue: Show your support by wearing blue clothing or accessories on September 20th.
  • Social Media Campaign: Share your hydrocephalus story, facts, and resources using the hashtag #WorldHydrocephalusDay to raise awareness.
  • Local Events: Organize local events such as awareness walks, seminars, or support group meetings to bring the community together.
  • Educational Initiatives: Partner with schools and colleges to conduct educational sessions about hydrocephalus.
  • Fundraising: Support hydrocephalus research and patient advocacy groups by organizing fundraising activities.

Social Media Toolkit

Social Media Posts


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Instagram/Facebook Stories

Use these hydrocephalus facts and stats to educate your social media followers. Together, we can build public awareness about this condition!

  1. Each year almost 400,000 children across the globe receive a diagnosis of hydrocephalus.
  2. Anyone, at any age, can develop hydrocephalus.
  3. There is no way to prevent hydrocephalus and there is no cure. The only known treatment requires brain surgery.
  4. The most common surgical treatment for hydrocephalus is the surgical placement of a medical device called a shunt, which has one of the highest failure rates of any medical device on the market.
  5. Hydrocephalus and a shunt can mean a lifetime of multiple brain surgeries. Dozens of brain surgeries are common and 100 or more is not unheard of.
  6. The core technology used to develop the shunt has not changed significantly since the 1950’s.
  7. There is an estimated count of 8 million seniors worldwide with normal pressure hydrocephalus (NPH).

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Happening Around The World

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Join Harry's Hat by posting a photo with their
#WorldHydrocephalusDay sign!
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Join Hydrocephalus Canada by posting a video finishing this sentence
 "I believe there is a need for World Hydrocephalus Day because..."

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