Thriving with NPH

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Have you been recently diagnosed with normal pressure hydrocephalus (NPH)?  Did the diagnosis come out of nowhere and knock you for a loop?  Has the diagnosis given you or your family concerns about realizing your plans for the future?

If you answered yes to any of these questions, then your reactions are perfectly normal!  You are joining a special group of hydrocephalus warriors, and we’d like to introduce you to individuals who have been where you are right now.  They emerged from their surgery successfully and have gone on to accomplish new goals, learn new hobbies, help others in a similar situation, and educate their communities on the condition.  These are people from all over the US and different walks of life, but they have two things in common – they are thriving with NPH, and they are volunteers for the Hydrocephalus Association.

What You Need to Know

Trish Bogucki Circle

Thriving with NPH – Trish Bogucki’s Story

Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym, line dancing, volunteering for HA, and spending time with her husband.

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Thriving with NPH – Gary Chaffee's Story

Gary was 59 years old when he received a shunt -- nearly 25 years after the initial diagnosis. After all the years of doctors treating Gary like his condition was all in his head, it turns out they were right, but the excess cerebral spinal fluid (CSF) was the problem and not some psychological problem. A shunt made a dramatic improvement in Gary’s life. Now, he spends his time with family, volunteering for HA and painting!

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Thriving with NPH – Dorothy Sorlie's Story

Dorothy was 73 years old when she started experiencing symptoms of NPH. Her condition was advanced and she was in a nursing home for several weeks following surgery where she received PT, OT, and speech therapies. Now, Dorothy volunteers for HA and gives presentations to community organizations, small groups on symptoms, progression, and treatment of NPH. Her goal is to help others find an accurate diagnosis and treatment to avoid what she, and so many, have experienced."

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