The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.
The causes of hydrocephalus are varied, but one with a clear genetic linkage is X-linked hydrocephalus, a genetic disorder that occurs in about 1 of 30,000 births.
In this video blog episode, Debby shares her daughters’ diagnoses of hydrocephalus and briefly discusses their journey and the various causes of hydrocephalus, including genetics.
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