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Hydrocephalus Teens Take Charge Guest Blogger

Meet Emily Lucht . . . Fellow Traveler on the Teen Hydrocephalus Journey

Meet our newest TTC Blogger Emily Lucht! She shares her journey’s extra baggage. Read what she means and let’s start a conversation using #TalkTTC.

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Hope in Progress

We have made great strides in hydrocephalus research, from understanding the basic causes, to exploring alternative treatments, to reducing shunt infections. There is hope.

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Clay Matthews, Hydrocephalus Challenge

And the Hydrocephalus Challenge WINNERS are…

The Hydrocephalus Association would like to extend a huge THANK YOU to Clay Matthews and Alison Sweeney for their generous donations for Hydrocephalus Challenges.

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HA WALKS – Making New Friends & Raising Awareness

In her monthly blog, TTC member Madeleine shares how participating in HA WALKs in Florida helps her find new friends, raise awareness and funds, and have fun too!

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Austin’s Season for Caring includes a Special Hydrocephalus Family

The Reyes family shares a heartwarming series of family photos with The Austin-Statesman, highlighting them as one of this year’s recipient’s of the Statesman’s Season fro Caring program.

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Pediatric Hydrocephalus

Pediatric Hydrocephalus Guidelines on Treatment and Management

Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.

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Florida Boy Anchors State Championship Bowling Team

Petey Vergos, diagnosed with hydrocephalus at 6, is the two time Bowler of the Year title holder and a two time State Champion with his team.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Teen Dating and Hydrocephalus

Dara’s 5 Top 5 Dating Rules

There is no guide on how to build the perfect relationship or how to be the perfect boyfriend or girlfriend. I have written a list which includes the five rules that I believe are the best pieces of advice I can give to other teenagers when it comes to dating.

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Guidelines for the Treatment of Pediatric Hydrocephalus

The Journal of Neurosurgery published an evaluation of current treatments for pediatric hydrocephalus and guidelines for continued treatment.

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Teen dating and hydrocephalus

Dating and Hydrocephalus is a Tricky Subject

TTC Advisory Council Member Wyatt Barris talks about the tricky situation of dating when you have a medical condition like hydrocephalus.

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University of Hartford Lacrosse Team Welcomes New Squad Member

Team IMPACT and the University of Hartford Men’s Lacrosse Team welcomes it’s newest squad member, Ian Woodward, 14, who has hydrocephalus.

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Brown Family Hydrocephalus Vision Dinner

The Greenville News Shares One Couple’s “Vision”

Tomorrow evening Craig and Vicki Brown will host the 2nd annual Vision Dinner in New York City. The event is featured in an October 10, 2014, article in The Greenville News titled, “Drive Owner Hosts Rare Disease Fundraiser.”

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Hydrocephalus Association Board Member Hosts Vision Dinner

Liv Osby of Greenville News interviews Craig Brown, senior vice chair of the HA Board of Directors, who, with his wife Vicki, will host the Vision Dinner in New York City to increase public awareness, stimulate research, and spark physician interest in specializing in hydrocephalus. Craig and Vicki have a son and a nephew with hydrocephalus.

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Spread the word about hydrocephalus

Are YOU Up for the Challenge?

Do you want to raise awareness about hydrocephalus? THIS IS THE PERFECT OPPORTUNITY. Read how.

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Chattanooga Mom on a Mission

Chara McLaughen, our Hydrocephalus Association Chattanooga WALK Chair, is on a mission to educate the public about hydrocephalus. She and her daughter Ema are interviewed by WRCB TV’s Latrice Curry about their journey with the condition and the upcoming WALK to raise funds to find a cure.

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Married to Hydrocephalus

“When I first met my wife, Jennifer, I had no idea what hydrocephalus was…” In an open, heartfelt blog, Andrew shares a husband’s journey with hydrocephalus.

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Brain Shunt to Treat Hydrocephalus

HCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant

PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.

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Wish to Spread Hydrocephalus Awareness Granted

KTBS3 and Pay It Forward Networking worked together to grant 5 year-old Kasin Bazer, born with hydrocephalus, his wish to raise awareness on television.

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Hundreds of Blue Balloons Raise Hydrocephalus Awareness

WGGB ABC40 reports on a blue balloon release in Holyoke, Massachusetts, held raise awareness for hydrocephalus during Hydrocephalus Awareness Month. The event was organized by the Colon family in honor of Zachary.

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Hydrocephalus Teens Take Charge Scholarships

Congratulations 2014 TTC Scholarship Recipients

The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Long Island Hydrocephalus WALK Featured on Fios1 News

The Long Island WALK is featured on Fios1 News as it unites 1000 individuals to raise their voices for hydrocephalus awareness at their annual Hydrocephalus Association Long Island WALK.

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The Clay Matthews Challenge and a Boy Named Charlie

Robyn Shulman of ChicagoNOW writing with Scott Paul share the story of Scott’s son, Charlie, who has hydrocephalus, and encourage readers to support the Clay Matthews Hydrocephalus Challenge,

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Tempe in Motion features the Phoenix Hydrocephalus Association Walk

The upcoming Phoenix Hydrocephalus Association Walk is featured in the Tempe in Motion. The 5th annual WALK hopes to raise awareness and funds to support research into hydrocephalus and provide information about a disease that affects children, the elderly and even pets.

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The Doctors Television Program Features Hydrocephalus

The Doctors dedicate a segment to hydrocephalus, focusing on infants born with hydrocephalus. The segment follows up on baby Roona Begum from India who gained national attention when her untreated hydrocephalus caused an international outpouring of support for her treatment.

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Telemundo Features a Local Dallas Toddler Living with Hydrocephalus

Rocio Martinez shares the story of her son, Gabriel, who has hydrocephalus, on Telemundo39 out of Dallas, TX. Rocio is determined to raise awareness of hydrocephalus and will participate in our Dallas/Fort Worth Hydrocephalus Association WALK on September 27 at Frisco Commons Park.

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Boston Mom Raises Hydrocephalus Awareness

Jennifer Martinage, Hydrocephalus Association Greater New England WALK Co-Chair, shares her family’s journey with hydrocephalus with her local paper.

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Top Medical Centers Co-Sponsor 2014 Houston Hydrocephalus Association WALK

Children’s Memorial Hermann Hospital & Memorial Hermann Mischer Neuroscience Institute are co-sponsoring the 2014 Houston Hydrocephalus Association WALK on Saturday, September 20, at the Houston Zoo.

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Five and Below Support Local Western NY Family in Hydrocephalus WALK

The Five and Below of Niagra Falls, NY, will donate 10% of dollars spent between August 31, 2014 and September 27, 2014, to Team Hope and the Western New York Hydrocephalus Association WALK on September 13, 2014 at Beaver Island State Park in Grand Island, NY.

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Phoenix Family will WALK for Hydrocephalus

The West Valley View features the Weinstein family and their participation in this year’s Phoenix Hydrocephalus Association WALK October 4, 2014.

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Delaware Community Rallies to Raise Awareness

The Smyrna, DE, community is rallying to raise awareness for hydrocephalus and the funds needed to support critical research into better treatment options and a cure for hydrocephalus.

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Charlotte Hydrocephalus Association WALK Co-chair Interviewed on Local News

Susan Slattery-Rogers and her daughter, Zoe, are interviewed on WBTV News about the Charlotte, NC Hydrocephalus Association WALK happening September 13th.

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Florida Doctors Donate Shunt to Abandoned Baby with Hydrocephalus

Baby Elijah, abandoned outside of a Love a Child orphanage in Haiti, received a shunt to treat his hydrocephalus from the heartfelt donation of Dr. David Klein, Dr. Douglas Hershkowitz, and the staff at Fawcett Memorial Hospital in Port Charlotte.

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Twin Cities Hydrocephalus Association WALK Featured on KARE11 News

“Most of the time you can’t see it on the outside, but on the inside people know you’re struggling.” Allie Degrood, her mom and neurosurgeon promote our Twin Cities Hydrocephalus Awareness WALK at the Mall of America on KARE 11 News. ‪

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CBS 2 Chicago Morning Anchor Announced Honorary Chair of the Hydrocephalus Association Chicago WALK

ABC12.com shares that Harry Porterfield, CBS 2 Chicago 11 am news co-anchor with Roseanne Tellez, will serve as the Honorary Chair of the 10th Annual Chicago Hydrocephalus Association WALK on Sunday, September 6, 2014.

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Non-profit Helps Raise Hydrocephalus Awareness

Favorite Things for a Cause educates about hydrocephalus and highlights the second annual Greater Charlotte Hydrocephalus Association Walk on September 13, 2014.

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Charlotte Hydrocephalus Association WALK Featured in The Charlotte Observer

Amanda Harris, writing for the South Charlotte News, a community paper of The Charlotte Observer, shares the story of 3 year-old Zoe, the daughter of our Charlotte WALK Co-chair Susan Slattery-Rogers.

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16 Year Old Leads Local Team in Twin Cities Hydrocephalus WALK

The Kenyon Leader features a local Kenyon-Wanaming teen, 16 year-old Allie Degrood, who will lead a team in this year’s Twin Cities Hydrocephalus Association WALK at the Mall of America on September 7.

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Better Approach to Research Funding?

A thought-provoking piece by Dr. Robert Pearl, CEO of the Permanente Medical Group, on funding medical research, featuring an honest and emotional opening by Susan Fiorella about her son, Jake, who has hydrocephalus.

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500 Surgeries for Hydrocephalus and Still WALKING Strong

Matthew Schwerha with ViewsMix Chicago features 29 year-old Eric Tolbert who has endured over 500 surgeries to manage his hydrocephalus. Eric will join over 600 other walkers at this year’s 10th Annual Chicago Hydrocephalus Association Walk on Sept. 6, at Lincoln Park Zoo.

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