shunt failure

Is an ETV an Option After Shunt Failure?

Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.

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From Patient to Progress: New insights into preventing shunt blockages

While shunt implantation is a typical treatment option for people with hydrocephalus, there have been surprisingly few advances to decrease shunt failure rates since the 1950s

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Dan Kricke, living with hydrocephalus

The Day-to-Day of Headaches and Hydrocephalus

Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.

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Doctor holding a brain shunt

ISHCSF Highlights HCRN Studies on Shunt Failure and Infection

ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.

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Hydrocephalus Surgery Team Haiti

Mixed Emotions: Heartbreak

Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.

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Shunt to treat hydrocephalus on glass model skull

INPUT NEEDED on Device to Detect CSF Build Up at Home

Two bioengineering students out of Rice University are working on a device that can be used by patients for at-home diagnosis of CSF buildup for hydrocephalus patients.

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Cell growth in shunt

Research into Shunt Obstruction Earns Award from SRHSB

Dr. Carolyn Harris awarded the first annual Gift of Knowledge by the SRHSB for research into hydrocephalus shunt obstruction.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Sharing about your Hydrocephalus with College Roommates and Friends – When is the Right Time?

In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.

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Brain Shunt to Treat Hydrocephalus

HCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant

PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.

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Dawn Mancuso, CEO, Hydrocephalus Association

From the CEO: Sowing the Seeds of Exploration into Hydrocephalus

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.

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Australian Government Denies Hydrocephalus Registry

The Australian government chose not appropriate $200,000 for a national registry of shunt operations in the Australia federal budget, despite honoring a commitment from the previous Labor government for a $150,000 start-up grant to the Neurosurgical Society of Australasia.

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Hydrocephalus Research

Help us determine the direction of hydrocephalus research!

The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!

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Hydrocephalus Association Teens Take Charge Guest Blogger

Breaking the ICE

We have a NEW guest blogger for the Hydrocephalus Association Teens Take Charge program. Meet Henry and join the conversation on Twitter. Use #TeensTC.

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Research UPDATE: A Clue to Better Understand and Treat Hydrocephalus

Dr. Tamara Simon and her research team out of Seattle Children’s Hospital have uncovered a host of pathogens never before associated with shunt infections in the CSF of eight children, which could lead to new understandings on treating and preventing shunt infections.

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Michigan Teen Shows Strong Will to Recover after Shunt Revision

Tamara Williams of Battle Creek, Michigan, returned to school after 5 months in and out of hospitals recovering from a shunt revision for hydrocephalus.

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Hydrocephalus Getting the Attention It Deserves

For all of the health and financial burdens hydrocephalus places on individuals and society, far too little is being invested in research, especially when compared to diseases with similar burdens like cystic fibrosis and Parkinson’s disease. That’s why, in 2009, the Hydrocephalus Association expanded our mission to include funding hydrocephalus research. We launched a Research Initiative to stimulate the research ecosystem, improve outcomes and quality of life, and study the root causes of the disease, with an ultimate mission of finding a prevention or cure.

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Research UPDATE: Preventing Hydrocephalus in Premature Infants

In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.

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Research UPDATE: Low Dose CT Scans in Children

Seattle Children’s adopts a low dose CT scan strategy as a diagnostic tool for evaluating shunt malfunction in children with hydrocephalus.

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Looking Back…Moving Forward: The Need to Value Shunt Management

As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.

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A Community Unites Around a Local Teen

CBS-affiliate WCIA News Channel 3 reporter Jeff Wagner reports on Morgan Miller, 14 years old living with hydrocephalus, who has been hospitalized since Friday after acute shunt failure and cardiac arrest. The Hydrocephalus Association sends our thoughts and support to Morgan and her family.

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HCRN Update: First Report from HCRN’s Large Registry

Dr. Jay Riva-Cambrin, Hydrocephalus Clinical Research Network (HCRN) lead investigator, presented the first analysis of the data collected on children with hydrocephalus in the HCRN registry. Findings will help advise families and guide HCRN’s future research.

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Medical Alert IDs and Hydrocephalus

The Hydrocephalus Association discusses Medical Alert IDs and their importance for hydrocephalus patients in an emergency situation – without proper identification, common symptoms, such as headaches, dizziness, sleepiness and vomiting can be misdiagnosed and appropriate care could be jeopardized or delayed.

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Behind the Recall: Codman Provides Details

The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.

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Looking Back…Moving Forward: Focusing on the PATIENT

As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with one of our earliest supporters, Dr. Marvin Sussman, former Director of Research and Technology at Cordis Neuroscience Business (now Integra LifeSciences) and member of the HA Board of Directors for 13 years.

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Stepping Out of Your Comfort Zone

Mindy was diagnosed with hydrocephalus at the age of fourteen but she didn’t want to be labeled as “the girl who had brain surgery and almost died.” Now she’s married, the mom of two beautiful boys, and found that she’s surrounded by a group of co-workers from Foster Web Marketing who are ready to support her in her journey.

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