Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.
While shunt implantation is a typical treatment option for people with hydrocephalus, there have been surprisingly few advances to decrease shunt failure rates since the 1950s
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.
Two bioengineering students out of Rice University are working on a device that can be used by patients for at-home diagnosis of CSF buildup for hydrocephalus patients.
In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.
PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.
The Australian government chose not appropriate $200,000 for a national registry of shunt operations in the Australia federal budget, despite honoring a commitment from the previous Labor government for a $150,000 start-up grant to the Neurosurgical Society of Australasia.
The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!
Dr. Tamara Simon and her research team out of Seattle Children’s Hospital have uncovered a host of pathogens never before associated with shunt infections in the CSF of eight children, which could lead to new understandings on treating and preventing shunt infections.
Tamara Williams of Battle Creek, Michigan, returned to school after 5 months in and out of hospitals recovering from a shunt revision for hydrocephalus.
For all of the health and financial burdens hydrocephalus places on individuals and society, far too little is being invested in research, especially when compared to diseases with similar burdens like cystic fibrosis and Parkinson’s disease. That’s why, in 2009, the Hydrocephalus Association expanded our mission to include funding hydrocephalus research. We launched a Research Initiative to stimulate the research ecosystem, improve outcomes and quality of life, and study the root causes of the disease, with an ultimate mission of finding a prevention or cure.
In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.
As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.
CBS-affiliate WCIA News Channel 3 reporter Jeff Wagner reports on Morgan Miller, 14 years old living with hydrocephalus, who has been hospitalized since Friday after acute shunt failure and cardiac arrest. The Hydrocephalus Association sends our thoughts and support to Morgan and her family.
Dr. Jay Riva-Cambrin, Hydrocephalus Clinical Research Network (HCRN) lead investigator, presented the first analysis of the data collected on children with hydrocephalus in the HCRN registry. Findings will help advise families and guide HCRN’s future research.
The Hydrocephalus Association discusses Medical Alert IDs and their importance for hydrocephalus patients in an emergency situation – without proper identification, common symptoms, such as headaches, dizziness, sleepiness and vomiting can be misdiagnosed and appropriate care could be jeopardized or delayed.
The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.
As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with one of our earliest supporters, Dr. Marvin Sussman, former Director of Research and Technology at Cordis Neuroscience Business (now Integra LifeSciences) and member of the HA Board of Directors for 13 years.