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Looking Back…Moving Forward: A Sister’s Love

Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.

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HCRN Update: First Report from HCRN’s Large Registry

Dr. Jay Riva-Cambrin, Hydrocephalus Clinical Research Network (HCRN) lead investigator, presented the first analysis of the data collected on children with hydrocephalus in the HCRN registry. Findings will help advise families and guide HCRN’s future research.

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