pediatric

En Garde! The Sport of Fencing and Hydrocephalus

Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.

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The Challenges of Transitioning to Adult Care

HA has long been aware of inequality in care for children and adults with hydrocephalus, and we are taking steps to bridge the gap.

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Research UPDATE: Preventing Hydrocephalus in Premature Infants

In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.

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Use of Limited Sequence CT Scans in Pediatric Hydrocephalus

It is not uncommon for children with hydrocephalus to undergo numerous CT scans throughout their life, raising the concern about the effects of the radiation exposure for the future. Edward Ahn, MD, and colleagues at Johns Hopkins Hospital suggest the use of limited-sequence head CT scans for children with hydrocephalus to limit the amount of radiation they receive during CT scans.

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Tennessee Mom Calls for Research Funding of Hydrocephalus

Chara McLaughen raises awareness and calls for increased funding for research into hydrocephalus.

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