normal pressure hydrocephalus
HA Volunteer Educates Senior Citizens About NPH
NPH continues to be relatively unknown among the general public and even in the medical community. In April, Trish Bogucki, a longtime HA volunteer, led a presentation on NPH and cognitive therapy for senior citizens in Midland Park, NJ.
New Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients
Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.
Eau Claire Woman Shares Story In Hopes of Educating Others
After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.
The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH
A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).
Watch Recorded Sessions from HA CONNECT 2018!
Miss the 15th National Conference on Hydrocephalus, HA CONNECT? Recordings of the 19 live streamed sessions are now available! Register as a virtual attendee for $20 to access the 19 recordings!
Balance Therapy Tips for NPH Patients
A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical. He immediately ordered a CT scan and more Physical Therapy.
Stanley White: From Aerospace Engineer to NPH Advocate
87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.
Countdown to Conference: Tips on making it affordable!
The 15th National Conference on Hydrocephalus, HACONNECT, takes place June 28-30, 2018 in Orange County, California. Join us! Here are tips to help make it affordable.
Announcing National Conference Financial Aid
The Hydrocephalus Association is pleased to announce a financial aid program for the 15th National Conference on Hydrocephalus which will be held in Orange County, California June 28-30, 2018.
Conference Program Available!
The Hydrocephalus Association staff and the program planning committee are happy to announce the release of our conference agenda for the 15th National Conference on Hydrocephalus, HACONNECT!
Conference Registration is OPEN!
Registration for our 15th National Conference on Hydrocephalus is OPEN! Join us in Orange County, California, June 28 – 30, 2018.
Department of Defense Funds Two Research Studies on Hydrocephalus
Department of Defense funding of two hydrocephalus researchers reflects the success of the Hydrocephalus Association’s Research and Advocacy Initiatives.
Exercise Tips for NPH patients
I recommend finding an activity to help you challenge both your mind and body, and have fun while doing it!
TAKE ACTION! Help Veterans Receive Telehealth Benefits
Take action today to support moves in the Senate and the House to support telehealth medicine for our veterans.
What is Hydrocephalus? An Overview
Hydrocephalus is a neurological condition caused by an abnormal accumulation of cerebrospinal fluid, resulting in pressure on the brain. There is currently no cure, but it can be treated.
What is Hydrocephalus?
Hydrocephalus is a chronic, neurological condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. It affects over 1 million Americans, ranging from infants to seniors.
Get to Know Our Conference Host City
For those that are traveling we hope you will take a couple days to explore this wonderful host city for our conference and enjoy the world-famous theme parks and, stunning beaches, designer shopping, delightful fairs and so much more.
Meet our Conference Team!
HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus
Book Your Hotel for Conference!
Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Renaissance Newport Beach in Orange County, California. Book your hotel!
Cognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
The Hydrocephalus Association wants to THANK YOU!
By filling out our online surveys, participating in the clinical research networks, and making donations, we are moving hydrocephalus research forward!
Ever Wanted to Push Yourself to RUN?
Ever aspired to run a half or full marathon? Ever thought of running in honor of your loved one living with hydrocephalus? Do you have hydrocephalus and love to run?
Hydrocephalus Advocates Join Rare Disease Week
HA staff were joined by members of our Hydrocephalus Action Network (HAN) to represent our hydrocephalus community in Rare Disease Week.
Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness
Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
2016 Year-In-Review
As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.
We’re Partnering With The Mighty!
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
Like Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
Why Join the Hydrocephalus Professional Member Society?
Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.
Election 2016: What Does this Mean for the Hydrocephalus Community?
The incoming Administration and Congressional Members will take office with new policy priorities. On healthcare, some will remain the same, while others will change.
The Candidates on Healthcare
It is important to know before you vote what each candidate’s position is on healthcare and how it will impact you and your family managing hydrocephalus.
Hydrocephalus Education Days Provide Connections
Complementing our National Conference on Hydrocephalus, we are proud to host Hydrocephalus Education Days in select cities across the USA.
Seattle Neurologist Honored for 18 Years of Service to Patients with Debilitating Brain Condition
Dr. Michael A. Williams received the Leadership Award by the Hydrocephalus Association to honor his career dedicated to caring for patients with hydrocephalus.
Double Your Impact for Adult Hydrocephalus Research!
Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!
Chicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK
Arthur DiPatri, MD, announced as the Medical Honoree of the Chicago Hydrocephalus Association WALK on Saturday, September 27, at the Lincoln Park South Rowing Lagoon.
Device Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
A National Registry Would Shed Life-Saving Light on Hydrocephalus
Support is needed for research initiatives that aim to better understand the distribution and determinants of [hydrocephalus] and to develop new therapies and other interventions.
This August It’s All About #CuresNOW!
Have you joined the thousands of advocates around the country speaking out for Hydrocephalus treatments and cures? If not, join the #CuresNOW campaign today!
2016 Member Impact Report
I hope you take great pride in all that we continue to accomplish with your support.
Why I WALK – For a Better Tomorrow
The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.
Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus
The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.