normal pressure hydrocephalus

The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH

A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH). This study measured patient outcomes and documented each patient’s experience through diagnosis, treatment, and recovery in order to guide clinical counseling.

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Watch Recorded Sessions from HA CONNECT 2018!

Miss the 15th National Conference on Hydrocephalus, HA CONNECT? Recordings of the 19 live streamed sessions are now available! Register as a virtual attendee for $20 to access the 19 recordings!

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Balance Therapy Tips for NPH Patients

A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical.  He immediately ordered a CT scan and more Physical Therapy. 

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Stanley White: From Aerospace Engineer to NPH Advocate

87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.

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Countdown to Conference: Tips on making it affordable!

The 15th National Conference on Hydrocephalus, HACONNECT, takes place June 28-30, 2018 in Orange County, California. Join us! Here are tips to help make it affordable.

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Announcing National Conference Financial Aid

The Hydrocephalus Association is pleased to announce a financial aid program for the 15th National Conference on Hydrocephalus which will be held in Orange County, California June 28-30, 2018.

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Conference Program Available!

The Hydrocephalus Association staff and the program planning committee are happy to announce the release of our conference agenda for the 15th National Conference on Hydrocephalus, HACONNECT!

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Conference Registration is OPEN!

Registration for our 15th National Conference on Hydrocephalus is OPEN! Join us in Orange County, California, June 28 – 30, 2018.

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Department of Defense Funds Two Research Studies on Hydrocephalus

Department of Defense funding of two hydrocephalus researchers reflects the success of the Hydrocephalus Association’s Research and Advocacy Initiatives.

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Exercise Tips for NPH patients

I recommend finding an activity to help you challenge both your mind and body, and have fun while doing it!

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Hydrocephalus Action Network

TAKE ACTION! Help Veterans Receive Telehealth Benefits

Take action today to support moves in the Senate and the House to support telehealth medicine for our veterans.

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What is Hydrocephalus? An Overview

Hydrocephalus is a neurological condition caused by an abnormal accumulation of cerebrospinal fluid, resulting in pressure on the brain. There is currently no cure, but it can be treated.

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What is Hydrocephalus?

Hydrocephalus is a chronic, neurological condition caused by an abnormal accumulation of cerebrospinal fluid (CSF), resulting in pressure on the brain. It affects over 1 million Americans, ranging from infants to seniors.

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Get to Know Our Conference Host City

For those that are traveling we hope you will take a couple days to explore this wonderful host city for our conference and enjoy the world-famous theme parks and, stunning beaches, designer shopping, delightful fairs and so much more.

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Meet our Conference Team!

HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus

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Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Renaissance Newport Beach in Orange County, California. Book your hotel!

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Cognitive Therapy for NPH Patients

If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.

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The Hydrocephalus Association wants to THANK YOU!

By filling out our online surveys, participating in the clinical research networks, and making donations, we are moving hydrocephalus research forward!

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Jeff marathon runner hydrocephalus

Ever Wanted to Push Yourself to RUN?

Ever aspired to run a half or full marathon? Ever thought of running in honor of your loved one living with hydrocephalus? Do you have hydrocephalus and love to run?

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Hydrocephalus Advocates Join Rare Disease Week

HA staff were joined by members of our Hydrocephalus Action Network (HAN) to represent our hydrocephalus community in Rare Disease Week.

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Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness

Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.

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Staff of the Hydrocephalus Association

2016 Year-In-Review

As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.

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The Mighty

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.

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NPH

Like Father, Like Son: An NPH Journey

One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.

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Hydrocephalus Professional Member Society

Why Join the Hydrocephalus Professional Member Society?

Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.

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Hydrocephalus Action Network

Election 2016: What Does this Mean for the Hydrocephalus Community?

The incoming Administration and Congressional Members will take office with new policy priorities. On healthcare, some will remain the same, while others will change.

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Election

The Candidates on Healthcare

It is important to know before you vote what each candidate’s position is on healthcare and how it will impact you and your family managing hydrocephalus.

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Hydrocephalus Association Education Days

Hydrocephalus Education Days Provide Connections

Complementing our National Conference on Hydrocephalus, we are proud to host Hydrocephalus Education Days in select cities across the USA.

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Seattle Neurologist Honored for 18 Years of Service to Patients with Debilitating Brain Condition

Dr. Michael A. Williams received the Leadership Award by the Hydrocephalus Association to honor his career dedicated to caring for patients with hydrocephalus.

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Adults living with hydrocephalus

Double Your Impact for Adult Hydrocephalus Research!

Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!

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Chicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK

Arthur DiPatri, MD, announced as the Medical Honoree of the Chicago Hydrocephalus Association WALK on Saturday, September 27, at the Lincoln Park South Rowing Lagoon.

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Alcyone Lifesciences Inc

Device Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery

ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.

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Adults living with hydrocephalus

A National Registry Would Shed Life-Saving Light on Hydrocephalus

Support is needed for research initiatives that aim to better understand the distribution and determinants of [hydrocephalus] and to develop new therapies and other interventions.

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Hydrocephalus Action Network

This August It’s All About #CuresNOW!

Have you joined the thousands of advocates around the country speaking out for Hydrocephalus treatments and cures? If not, join the #CuresNOW campaign today!

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Hydrocephalus Community Network

2016 Member Impact Report

I hope you take great pride in all that we continue to accomplish with your support.

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Hydrocephalus WALK in Indiana

Why I WALK – For a Better Tomorrow

The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.

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Hydrocephalus Action Network

Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus

The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.

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Adult living with hydrocephalus

Finding that Perfect Fit

It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,

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Adult with Hydrocephalus

The Power of Sharing

I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information…

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Coping with Normal Pressure Hydrocephalus

Ontario man shares his journey with Normal Pressure Hydrocephalus and the support he received to cope with the diagnosis.

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