Posts Tagged ‘normal pressure hydrocephalus’
Celebrating the Life of Dr. Shirley McBay
The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.
Read MoreIndividuals Diagnosed with Idiopathic Normal Pressure Hydrocephalus Show Improved Quality of Life after Shunting
A new study found that shunting improved quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (iNPH).
Read MoreGet to Know Dr. Joel Geerling: HA 2019 Innovator Award Grantee
In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).
Read MoreHA Volunteer Educates Senior Citizens About NPH
NPH continues to be relatively unknown among the general public and even in the medical community. In April, Trish Bogucki, a longtime HA volunteer, led a presentation on NPH and cognitive therapy for senior citizens in Midland Park, NJ.
Read MoreNew Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients
Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.
Read MoreThe Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH
A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).
Read MoreBalance Therapy Tips for NPH Patients
A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical. He immediately ordered a CT scan and more Physical Therapy.
Read MoreStanley White: From Aerospace Engineer to NPH Advocate
87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.
Read MoreDepartment of Defense Funds Two Research Studies on Hydrocephalus
Department of Defense funding of two hydrocephalus researchers reflects the success of the Hydrocephalus Association’s Research and Advocacy Initiatives.
Read MoreExercise Tips for NPH patients
Trish recommends finding an activity to help you challenge both your mind and body and have fun while doing it! Read more about her exercise tips for NPH patients.
Read MoreCognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
Read MoreEver Wanted to Push Yourself to RUN?
Ever aspired to run a half or full marathon? Ever thought of running in honor of your loved one living with hydrocephalus? Do you have hydrocephalus and love to run?
Read MoreHydrocephalus Advocates Join Rare Disease Week
HA staff were joined by members of our Hydrocephalus Action Network (HAN) to represent our hydrocephalus community in Rare Disease Week.
Read MoreStudent Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness
Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
Read More2016 Year-In-Review
As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.
Read MoreWe’re Partnering With The Mighty!
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
Read MoreLike Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
Read MoreDevice Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
Read MoreWhy I WALK – For a Better Tomorrow
The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.
Read MoreAnnouncing the 2015 Innovator Award Grantees
2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.
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