Strategy and Goals

The Hydrocephalus Association’s advocacy strategy spans a broad range of activities from local, grassroots awareness efforts such as our Hydrocephalus Action Network (HAN), to state level efforts to establish hydrocephalus awareness days/months, to our federal efforts which focus on research programs at the National Institutes of Health (NIH) and legislation with Congress. Our primary advocacy goal is to assure that the federal government is investing adequate funds to accomplish the following:

  1. To understand the breadth and depth of impact of hydrocephalus on our people;
  2. To make funding hydrocephalus research for improved treatments and cures a priority;
  3. To support those affected with hydrocephalus with appropriate programs.

These goals require targeted awareness campaigns to assure that decision makers understand that hydrocephalus is a condition that affects a broad array of people, is not cured with the insertion of a shunt, and is a growing problem with significant burden on our people and the economy.


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