Dealing with your child’s hydrocephalus diagnosis can be overwhelming. It’s common to have countless questions that range from learning more about what hydrocephalus is to what one can expect a child’s experience to be across the life spectrum.
If you’re a teen or young adult affected by hydrocephalus, we want you to know that you are not alone. Browse our teen and young adult pages to learn about resources to help you. This is YOUR place for information and empowerment.
A hydrocephalus diagnosis is overwhelming, whether you’re a recently diagnosed adult, someone who’s been living with the condition for many years, or a friend or family member. Here you will find information enabling you to have more control of your life.
A normal pressure hydrocephalus (NPH) diagnosis is often confusing, complex, scary and frustrating. For those living with NPH and their caregivers, staying informed about the condition is essential to managing care.
It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education and empowerment through community.
Our support staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. We are here for you by phone and email. We also provide programs and support services to connect you with peers, volunteers and medical professionals.