Webinars

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.

Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.


Next Webinar

How to Help Your Teen Find a College Where They Will Be HAPPY and SUCCESSFUL

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Wednesday, September 27, 2017
7:00 pm ET

If you are starting to think about college, you are probably asking many questions. How do you help your son or daughter prepare for college?  How do you assess if your child is ready for college? What supports and services will be available? How do you find the right fit for your student’s needs? Preparing for college is about more than grades, test scores, and a college list. It involves working on academic skills, as well as the less visible skills such as waking up on time, managing long-term projects and advocating for oneself.

Join us for a webinar in which we will discuss these issues and more as we review the college planning, preparation, and placement process.  We’ll focus on practical skills that will allow your student to be HAPPY and SUCCESSFUL in college.  We will explore the six essential skills for college success, what colleges are looking for, the types of accommodations and services that are available, how to promote college readiness and finding the “right fit”.

The College Consulting Collaborative (Joan Wittan, Sue Cook Christakos, Kyle Kane and Lori Vise) is a partnership of independent educational consultants who work with students who have a wide range of abilities and aptitude, as well as a variety of learning differences. They love the challenge of finding and building on students’ strengths and maximizing their potential. They have expertise in working with students who have all kinds of invisible disabilities including language-based learning differences, ADHD, executive dysfunction, Gifted Talented Learning Disabled (GTLD) students, autism spectrum disorders and Nonverbal Learning Differences (NLD).  They also consider special education policies and procedures, college accommodations and adaptations, and assistive technology in their work.  Their website is www.collegeld.com.

Presenters

Sue Cook Christakos is a former attorney who drafted policy pursuant to the Americans with Disabilities Act (ADA). With her expertise in the ADA, Sue advocates for students to assist them in obtaining accommodations and services that will enable them to be successful in elementary school, middle school, high school and beyond. In addition, Sue has volunteered her time to assist first-generation college applicants in pursuing their dream of a college education. As a college consultant, Sue works with students as early as middle school to help them plan and prepare for college, and ultimately find the right college fit.

Sue is active in the disability community and is a member of the International Dyslexia Association (IDA), National Association of College Admission Counseling (NACAC) and Association on Higher Education and Disability (AHEAD). She has a BA in Psychology from Bucknell University and a JD from Georgetown University Law Center.

Lori Vise loves helping students identify schools where they can thrive.  Cited as an expert on the subject in US News and World Report, Lori guides students with different learning styles through every aspect of the college process.  She deliberately limits the number of students she works with so she can give each of them, and their parents, the attention they deserve. Her goal is to help students find colleges that are the best fits and have the right learning support in place.

Lori is active in the Washington, DC community.  She is a board member of Washington Independent Services for Educational Resources (WISER) and a member of National Association of College Admission Counselors (NACAC), and Independent Educational Consultants Association (IECA).  She is an honors graduate of University of Pennsylvania and The Wharton School, has completed a program of study on Principles of Educational Consulting, and is actively involved in the field of education.

Suggested Audience

This webinar is ideal for parents and caretakers of school aged teenagers and educators who want to learn more about college planning, preparation, and placement process as it relates to hydrocephalus. The presentation will focus on practical skills that will allow your child to be HAPPY and SUCCESSFUL in college.


Future Webinars

Please stay tuned for more information regarding our future webinars. Webinar topics and dates are subject to change.

Relationships and Hydrocephalus – November 2017

Normal Pressure Hydrocephalus – December 2017


View Past Webinars

Normal Pressure Hydrocephalus (NPH): Treatments and Current Research – Wednesday, August 9, 2017

Suggested Audience

This content is appropriate for patients and families affected by normal pressure hydrocephalus (NPH) as well as for care providers at all levels interested in learning about the history, diagnosis, and treatment of NPH and NPH research conducted by the Adult Hydrocephalus Clinical Research Network (AHCRN).

Go.Be.Mobile. How Technology is Empowering Hydrocephalus Patients – Tuesday, July 25, 2017

Suggested Audience

This content is appropriate for patients and families affected by hydrocephalus as well as for care providers at all levels interested in learning about a new tool for personalized data tracking of hydrocephalus treatments and how this can affect outcomes as well as enhance knowledge and empower patients.

Advocacy for Teenagers and Young Adults – May 16, 2017

Suggested Audience

This webinar is ideal for teenagers and young adults (between the ages of 12-25) who are enthusiastic and interested in becoming hydrocephalus advocates.

Genetic Causes of Congenital Hydrocephalus – March 14, 2017

Suggested Audience

This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.

Resources

Participate in this study:

Learn more about Genetics and Hydrocephalus:

Participate in other Clinical Research Studies:

Learn more about the Research HA is Funding:

Health Insurance Exchanges: The Patient Experience – November 4, 2015

Suggested Audience

This webinar is ideal for anyone touched by hydrocephalus who wants to gain a better understanding on how to select an exchange plan and enroll in the coverage that best matches their needs. We welcome patients, caregivers, and their families living to join us.

Adult Hydrocephalus Clinical Research Network Update – October, 5, 2015

Suggested Audience

This webinar is ideal for anyone who wants to know more about work of the Adult Hydrocephalus Clinical Research Network (AHCRN.org). The AHCRN is a multi-center network focused on conducting research to improve the lives of adults with hydrocephalus.

The Next Generation of Hydrocephalus Researchers Part II – June, 16, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Speak Up: Owning Your Condition – April 30, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and want to learn how to speak about hydrocephalus and become advocates for themselves and others.

The Next Generation of Hydrocephalus Researchers – April 14, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Hydrocephalus Treatment Part I: Past, Present, Future of Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) – March 4, 2015

Suggested Audience

This webinar is ideal for anyone who wants to learn more about the latest on hydrocephalus treatment, including ETV and ETV/CPC.

Resources

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus – January 7, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and interested in becoming hydrocephalus advocates.

Handouts and resources:

Hope in Progress: Research Update – December 11, 2014

Suggested Audience

This webinar is ideal for anyone who wants to learn more about hydrocephalus research, the Adult Hydrocephalus Clinical Research Network, and HA funded research. We welcome patients, their families, health professionals and researchers to tune in to hear the latest on hydrocephalus research.

Developing an Effective IEP – October 22, 2014

Suggested Audience

This webinar is ideal for parents and caretakers of school aged children, teens, and educators who want to learn more about the IEP process as it relates to individuals with hydrocephalus.

Handouts

For more information on this topic please click here.

What if it isn’t Alzheimer’s or Parkinson’s Disease? – September 10, 2013

Suggested Audience

This webinar is ideal for individuals who have been diagnosed with NPH or may have been exhibiting the classic symptoms of the condition, caregivers of older adults, medical professionals, nursing home staff and anyone who has been treated with Parkinson’s, Alzheimer’s and dementia.


Sponsors

This Webinar Series is made possible through the generosity of our industry partners: Medtronic, Codman DePuy Synthes, Aesculap and Sophysa who we thank for supporting this important program!

 

Medtronic

Codman Neuro DePuy Synthes

Aesculap

Sophysa

 

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