Webinars

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.

Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.


Next Webinar

Normal Pressure Hydrocephalus (NPH): What Your Doctors are Thinking Before and After the Shunt is Placed
December 13, 2017 – 7:00 PM Eastern

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The road to diagnosis of NPH is not always straight and narrow and neither is the management once NPH has been diagnosed and treated. While most adults who receive shunts for normal pressure hydrocephalus (NPH) can look forward to good outcomes, it is important to know what other diagnoses can mimic NPH and how your physicians go about sorting out who needs a shunt and who needs more evaluation or alternative treatment.

In this session, two clinical experts in Neurology and Neurosurgery will share their collective experience in the pre-surgical and post-surgical management of NPH from the time of initial evaluation through long-term follow-up.  They will discuss the differential diagnosis of NPH, the value of further diagnostic testing, and shunt placement.  They will also focus on the complications of shunts and what to do if the patient is not getting better, including how to evaluate whether the shunt is functioning and what other diagnoses or disorders may be contributing to the NPH-like symptoms.

Presenters

Christopher J. Farrell, MD
Assistant Professor
Department of Neurological Surgery
Thomas Jefferson University
Philadelphia, Pennsylvania

James Golomb, MD
Clinical Assistant Professor, Department of Neurology
Clinical Assistant Professor, Department of Psychiatry
NYU Langone Medical Center
New York, New York

Suggested Audience

This webinar is appropriate for families affected by normal pressure hydrocephalus who would like to learn more about NPH diagnosis, management, and complications.

Sponsor

This Webinar is made possible through the generosity of our industry partner Integra Limit Uncertainty Codman Specialty Surgical who we thank for supporting this important program!

For more information on iNPH, visit LifeNPH.com.


Future Webinars

Please stay tuned for more information regarding our future webinars. Webinar topics and dates are subject to change.


View Past Webinars

How to Help Your Teen Find a College Where They Will Be HAPPY and SUCCESSFUL – September 27, 2017

Suggested Audience

This webinar is ideal for parents and caretakers of school aged teenagers and educators who want to learn more about college planning, preparation, and placement process as it relates to hydrocephalus. The presentation will focus on practical skills that will allow your child to be HAPPY and SUCCESSFUL in college.

Resources

Normal Pressure Hydrocephalus (NPH): Treatments and Current Research – August 9, 2017

Suggested Audience

This content is appropriate for patients and families affected by normal pressure hydrocephalus (NPH) as well as for care providers at all levels interested in learning about the history, diagnosis, and treatment of NPH and NPH research conducted by the Adult Hydrocephalus Clinical Research Network (AHCRN).

Go.Be.Mobile. How Technology is Empowering Hydrocephalus Patients – July 25, 2017

Suggested Audience

This content is appropriate for patients and families affected by hydrocephalus as well as for care providers at all levels interested in learning about a new tool for personalized data tracking of hydrocephalus treatments and how this can affect outcomes as well as enhance knowledge and empower patients.

Advocacy for Teenagers and Young Adults – May 16, 2017

Suggested Audience

This webinar is ideal for teenagers and young adults (between the ages of 12-25) who are enthusiastic and interested in becoming hydrocephalus advocates.

Genetic Causes of Congenital Hydrocephalus – March 14, 2017

Suggested Audience

This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.

Resources

Participate in this study:

Learn more about Genetics and Hydrocephalus:

Participate in other Clinical Research Studies:

Learn more about the Research HA is Funding:

Health Insurance Exchanges: The Patient Experience – November 4, 2015

Suggested Audience

This webinar is ideal for anyone touched by hydrocephalus who wants to gain a better understanding on how to select an exchange plan and enroll in the coverage that best matches their needs. We welcome patients, caregivers, and their families living to join us.

Adult Hydrocephalus Clinical Research Network Update – October, 5, 2015

Suggested Audience

This webinar is ideal for anyone who wants to know more about work of the Adult Hydrocephalus Clinical Research Network (AHCRN.org). The AHCRN is a multi-center network focused on conducting research to improve the lives of adults with hydrocephalus.

The Next Generation of Hydrocephalus Researchers Part II – June, 16, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Speak Up: Owning Your Condition – April 30, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and want to learn how to speak about hydrocephalus and become advocates for themselves and others.

The Next Generation of Hydrocephalus Researchers – April 14, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Hydrocephalus Treatment Part I: Past, Present, Future of Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) – March 4, 2015

Suggested Audience

This webinar is ideal for anyone who wants to learn more about the latest on hydrocephalus treatment, including ETV and ETV/CPC.

Resources

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus – January 7, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and interested in becoming hydrocephalus advocates.

Handouts and resources:

Hope in Progress: Research Update – December 11, 2014

Suggested Audience

This webinar is ideal for anyone who wants to learn more about hydrocephalus research, the Adult Hydrocephalus Clinical Research Network, and HA funded research. We welcome patients, their families, health professionals and researchers to tune in to hear the latest on hydrocephalus research.

Developing an Effective IEP – October 22, 2014

Suggested Audience

This webinar is ideal for parents and caretakers of school aged children, teens, and educators who want to learn more about the IEP process as it relates to individuals with hydrocephalus.

Handouts

For more information on this topic please click here.

What if it isn’t Alzheimer’s or Parkinson’s Disease? – September 10, 2013

Suggested Audience

This webinar is ideal for individuals who have been diagnosed with NPH or may have been exhibiting the classic symptoms of the condition, caregivers of older adults, medical professionals, nursing home staff and anyone who has been treated with Parkinson’s, Alzheimer’s and dementia.


Sponsors

This Webinar Series is made possible through the generosity of our industry partners: Medtronic, Codman DePuy Synthes, Aesculap and Sophysa who we thank for supporting this important program!

 

Medtronic

Codman Neuro DePuy Synthes

Aesculap

Sophysa

 

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