Webinars

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.

Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.


Next Webinar

Go.Be.Mobile. How Technology is Empowering Hydrocephalus Patients
Tuesday, July 25, 2017
7:00 pm ET

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Smartphones have changed the way patients manage their medical conditions. It has also changed the way medical practitioners interact with patients and their colleagues. In this Webinar, Dr. Jesse Skoch, pediatric neurosurgeon at Cincinnati Children’s Hospital, and Amanda Garzon, HA Director of Communications, will discuss HA’s mobile app, HydroAssist®. The webinar will cover the impact of the app from both the patient and ​provider perspective as well as discuss future directions for development.

Presenters

Dr. Jesse Skoch is an assistant professor of neurosurgery at Cincinnati Children’s Hospital with specialty interests in epilepsy, hydrocephalus, brain tumors, craniofacial disorders, and spinal deformity. His research interests include using optical imaging techniques to detect seizure activity and development of sensors for shunt monitoring. Dr. Skoch has published more than 50 papers in peer-reviewed journals, authored book chapters, and garnered several awards for his scientific research. ​​He is a lead developer of the HydroAssist smartphone app for patients with hydrocephalus. He is a member of the American Association of Neurological Surgeons (AANS), and the Congress of Neurological Surgeons (CNS) as well as the International Society for Pediatric Neurosurgery (ISPN).

Amanda Garzon, MA is the Director of Communications and Marketing at the Hydrocephalus Association, responsible for the development, management, administration and implementation of all aspects of communications and marketing. As a mother of a daughter with hydrocephalus, Amanda joins her passion for the cause with her responsibility of raising awareness of the challenges of hydrocephalus and greater support for the work of HA.

Suggested Audience

This content is appropriate for patients and families affected by hydrocephalus as well as for care providers at all levels interested in learning about a new tool for personalized data tracking of hydrocephalus treatments and how this can affect outcomes as well as enhance knowledge and empower patients.


Upcoming Webinars

Please stay tuned for more information regarding our upcoming webinars. Webinar topics and dates are subject to change.

Normal Pressure Hydrocephalus (NPH): Treatments and Current Research

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Wednesday, August 9, 2017
7:00 pm ET

Please join the Hydrocephalus Association and Drs. Abhay Moghekar and Mark Luciano as they discuss normal Pressure hydrocephalus treatment (NPH) and research from the Adult Hydrocephalus Clinical Research Network (AHCRN).

The webinar will tackle the risk and benefits of treatment versus no treatment for people diagnosed with Normal Pressure Hydrocephalus and will include discussion about a new study that will soon be underway and the development of the AHCRN Cerebrospinal Fluid Biobank.

Presenters

Dr. Abhay Moghekar is an Assistant Professor of Neurology and Research Director of the Cerebral Fluid Center at Johns Hopkins Hospital. He is board certified in Neurology and Clinical Neurophysiology and has over 40 publications in peer-reviewed journals. His research focuses on understanding biomarkers in cerebrospinal fluid in patients with hydrocephalus and Alzheimer’s disease.

Dr. Mark Luciano is a Professor of Neurosurgery and Director of the Cerebral Fluid Center at Johns Hopkins Hospital. A renowned leader in treating hydrocephalus, Dr. Luciano is distinguished both nationally and internationally for his research and educational and clinical work in neuroendoscopy. Among his accomplishments in neuroscience research and biomedical engineering are his investigation of the cerebrovascular response to hydrocephalus and the invention of a unique device for control of intracranial pressure (ICP) pulsatility to increase blood flow.

Suggested Audience

This webinar is appropriate for families affected by normal pressure hydrocephalus who would like to learn more about NPH treatment and the research from the Adult Hydrocephalus Clinical Research Network.


Future Webinars

Essentials of College Planning for Students Who Learn Differently – September 2017

Normal Pressure Hydrocephalus – November 2017

Relationships and Hydrocephalus – December 2017


View Past Webinars

Advocacy for Teenagers and Young Adults – May 16, 2017

Suggested Audience

This webinar is ideal for teenagers and young adults (between the ages of 12-25) who are enthusiastic and interested in becoming hydrocephalus advocates.

Genetic Causes of Congenital Hydrocephalus – March 14, 2017

Suggested Audience

This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.

Resources

Participate in this study:

Learn more about Genetics and Hydrocephalus:

Participate in other Clinical Research Studies:

Learn more about the Research HA is Funding:

Health Insurance Exchanges: The Patient Experience – November 4, 2015

Suggested Audience

This webinar is ideal for anyone touched by hydrocephalus who wants to gain a better understanding on how to select an exchange plan and enroll in the coverage that best matches their needs. We welcome patients, caregivers, and their families living to join us.

Adult Hydrocephalus Clinical Research Network Update – October, 5, 2015

Suggested Audience

This webinar is ideal for anyone who wants to know more about work of the Adult Hydrocephalus Clinical Research Network (AHCRN.org). The AHCRN is a multi-center network focused on conducting research to improve the lives of adults with hydrocephalus.

The Next Generation of Hydrocephalus Researchers Part II – June, 16, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Speak Up: Owning Your Condition – April 30, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and want to learn how to speak about hydrocephalus and become advocates for themselves and others.

The Next Generation of Hydrocephalus Researchers – April 14, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Hydrocephalus Treatment Part I: Past, Present, Future of Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) – March 4, 2015

Suggested Audience

This webinar is ideal for anyone who wants to learn more about the latest on hydrocephalus treatment, including ETV and ETV/CPC.

Resources

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus – January 7, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and interested in becoming hydrocephalus advocates.

Handouts and resources:

Hope in Progress: Research Update – December 11, 2014

Suggested Audience

This webinar is ideal for anyone who wants to learn more about hydrocephalus research, the Adult Hydrocephalus Clinical Research Network, and HA funded research. We welcome patients, their families, health professionals and researchers to tune in to hear the latest on hydrocephalus research.

Developing an Effective IEP – October 22, 2014

Suggested Audience

This webinar is ideal for parents and caretakers of school aged children, teens, and educators who want to learn more about the IEP process as it relates to individuals with hydrocephalus.

Handouts

For more information on this topic please click here.

What if it isn’t Alzheimer’s or Parkinson’s Disease? – September 10, 2013

Suggested Audience

This webinar is ideal for individuals who have been diagnosed with NPH or may have been exhibiting the classic symptoms of the condition, caregivers of older adults, medical professionals, nursing home staff and anyone who has been treated with Parkinson’s, Alzheimer’s and dementia.


Sponsors

This Webinar Series is made possible through the generosity of our industry partners: Medtronic, Codman DePuy Synthes, Aesculap and Sophysa who we thank for supporting this important program!

 

 

 

 

Medtronic

Codman Neuro DePuy Synthes

Aesculap

Sophysa

 

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