Webinars

We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.

Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.


Next Webinar

Advocacy for Teenagers and Young Adults
Tuesday, May 16, 2017
7:00 pm ET

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Presenter

Megan Rivkin is a freshman at Tufts University. She is a former congressional community organizer and an advocate for hydrocephalus research. At Tufts, her advocacy efforts have been focused on human rights and genocide prevention.

Megan’s younger brother, Brady, was diagnosed with hydrocephalus at birth in 2003 and Megan dedicated herself to finding a cure. Megan was one of the original Advisory Council members of Teens Take Charge. She joined to have a voice and participate in advocacy and fundraising efforts. As a council member, she raised awareness of hydrocephalus at her high school by creating “Brady’s Dream”. She sold glow in the dark bracelets with the phrase “Brady’s Dream” on the front, and “a cure for hydrocephalus” in the inside.

Megan’s high school alma mater has an annual event called Spirit Fest. During Spirit Fest the school adopts charitable causes and the students participate in activities and events to raise money for those particular causes. In 2014 and 2015 Megan was instrumental in having her school raise funds for the Hydrocephalus Association. In 2014 they raised approximately $13,000.00 and in 2015 they donated 80% of the money raised to the Hydrocephalus Association. The 2015 event was covered by the Chicago Tribune.

 

Suggested Audience

This webinar is ideal for teenagers and young adults (between the ages of 12-25) who are enthusiastic and interested in becoming hydrocephalus advocates.


Upcoming Webinars

Please stay tuned for more information regarding our upcoming webinars. Webinar topics and dates are subject to change.

Go.Be.Mobile: How Technology is Empowering Patients – July 25, 2017

Adult Hydrocephalus Research Update – August 2017

Essentials of College Planning for Students Who Learn Differently – September 2017

Normal Pressure Hydrocephalus – November 2017


View Past Webinars

Genetic Causes of Congenital Hydrocephalus – March 14, 2017

Suggested Audience

This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.

Resources

Participate in this study:

Learn more about Genetics and Hydrocephalus:

Participate in other Clinical Research Studies:

Learn more about the Research HA is Funding:

Health Insurance Exchanges: The Patient Experience – November 4, 2015

Suggested Audience

This webinar is ideal for anyone touched by hydrocephalus who wants to gain a better understanding on how to select an exchange plan and enroll in the coverage that best matches their needs. We welcome patients, caregivers, and their families living to join us.

Adult Hydrocephalus Clinical Research Network Update – October, 5, 2015

Suggested Audience

This webinar is ideal for anyone who wants to know more about work of the Adult Hydrocephalus Clinical Research Network (AHCRN.org). The AHCRN is a multi-center network focused on conducting research to improve the lives of adults with hydrocephalus.

The Next Generation of Hydrocephalus Researchers Part II – June, 16, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Speak Up: Owning Your Condition – April 30, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and want to learn how to speak about hydrocephalus and become advocates for themselves and others.

The Next Generation of Hydrocephalus Researchers – April 14, 2015

Suggested Audience

This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.

Hydrocephalus Treatment Part I: Past, Present, Future of Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) – March 4, 2015

Suggested Audience

This webinar is ideal for anyone who wants to learn more about the latest on hydrocephalus treatment, including ETV and ETV/CPC.

Resources

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus – January 7, 2015

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and interested in becoming hydrocephalus advocates.

Handouts and resources:

Hope in Progress: Research Update – December 11, 2014

Suggested Audience

This webinar is ideal for anyone who wants to learn more about hydrocephalus research, the Adult Hydrocephalus Clinical Research Network, and HA funded research. We welcome patients, their families, health professionals and researchers to tune in to hear the latest on hydrocephalus research.

Developing an Effective IEP – October 22, 2014

Suggested Audience

This webinar is ideal for parents and caretakers of school aged children, teens, and educators who want to learn more about the IEP process as it relates to individuals with hydrocephalus.

Handouts

For more information on this topic please click here.

What if it isn’t Alzheimer’s or Parkinson’s Disease? – September 10, 2013

Suggested Audience

This webinar is ideal for individuals who have been diagnosed with NPH or may have been exhibiting the classic symptoms of the condition, caregivers of older adults, medical professionals, nursing home staff and anyone who has been treated with Parkinson’s, Alzheimer’s and dementia.


Sponsors

This Webinar Series is made possible through the generosity of our industry partners: Medtronic, Codman DePuy Synthes, Aesculap and Sophysa who we thank for supporting this important program!

 

 

 

 

Medtronic

Codman Neuro DePuy Synthes

Aesculap

Sophysa

 

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