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Happening NOW: HA Attends Annual AANS Meeting

0429130946aEach year the American Association for Neurological Surgeons (AANS) hosts its annual scientific meeting bringing together neurosurgeons from across the country. This year’s meeting entitled,  ”Changing Our Culture to Advance Patient Safety,” focuses on the patient-safety movement. HA staff members Aisha Heath, Director of Development, Karima Roumila, Director of Support and Education, and Ashly Westrick, Research Manager, join esteemed members of the medical community for this exciting event.

“The feel is very welcoming and positive,” reports Westrick, who has had the opportunity to participate in sessions on current research initiatives.

The AANS meeting is an opportunity for our staff to spend time with members of our Board of Directors and Medical Advisory Board who are in attendance  as well as connect with the larger medical professional community. It is an opportunity for us to raise awareness about hydrocephalus and our association as well as connect with new companies in the neurosurgery field and build new relationships.

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Looking Back…Moving Forward: It’s About Relationships

As we continue our interview series commemorating our 30th anniversary, this week we sit down with a member of our board who has also been involved with HA since the early 1990’s. Ralph Kistler has served on the HA Board of Directors since 2002. Prior to joining the board , he was Vice President of Sales at Medtronic Neurosurgery. He has 45 years in the medical device business and, within that 45 year time period, 25 plus years working within the medical neurosurgery field. Read more

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Looking Back…Moving Forward: Growing Up with HA

Youth historically bring a wave of energy and creativity in movements and in organizations. Our young adult and teen community is no different. Our Teens Take Charge (TTC) program provides support, training, awareness and fundraising opportunities so that teens can be an effective force in making their stories heard. It trains teenagers and young adults (and their siblings) who are affected by hydrocephalus to become self-advocates with both health professionals and with their legislators. As part of our interview series in commemoration of our 30th anniversary, our intern, Jessica Ford, sits down with Haylea Lynn Blank, to talk about growing up with hydrocephalus and her thoughts on the Hydrocephalus Association. Read more

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Living with Undiagnosed Normal Pressure Hydrocephalus

Rhode Island NBC channel 10 shares Roberta Healy’s story of being living for years with undiagnosed with Normal Pressure Hydrocephalus (NPH).

Click here to watch the news story.

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Neurosurgeons Trained in Zimbabwe

Twelve doctors and neurosurgeons in Zimbabwe were trained in the neuroendoscopic ventriculostomy surgical technique for the treatment of hydrocephalus. The Neurosurgical Education Development Foundation, led by Dr. Mahmood Qureshi, has been promoting better surgical treatment options leading to fewer shunt insertions in order to address the medical and financial constraints of many African countries.

Click here to read the full article.

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Celebrate Valentine’s Day!

Valentine’s Day brings to mind cards, chocolates, teddy bears, romantic dinners, and bouquets of red roses. While consumerism has focused the holiday on romantic tokens of affection, at its core Valentine’s Day is a day that is dedicated to unconditional love – reminding each of us in our busy lives Read more

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Dr. Charles J. Winters Awareded ‘Top Doctor’ in US News and World Report

The PR Newswire reports that Dr. Charles J. Winters, of Frederick Memorial Hospital, Maryland, is listed by US News and World Report as a ‘Top Doctor.‘ Dr. Winters is a neurosurgeon with a a specialized interest in adult onset hydrocephalus and the surgical treatment of dementia.

Click here to read the press release.

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Hydrocephalus Patients and Caregivers Increasingly Turning to the Internet

Researchers at Children’s of Alabama and the University of Alabama at Birmingham found that adults caring for children with hydrocephalus reported greater regular use of the Internet than the general population (91.7 percent compared with 74 percent)…

Click here to read the full article.

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New Hydrocephalus Treatment Performed on First Seattle Infant

Dr. Samuel Browd, a pediatric neurosurgeon and Director of Hydrocephalus at Seattle Children’s, led the team that performed a relatively new procedure known as Choroid Plexus Cauterization on an infant at Seattle Children’s. This is the first time the procedure was performed at Seattle Children’s. The cauterization is performed during a surgery called Endoscopic Third Ventriculostomy or ETV.

To read the full article, click here.

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The 12th National Conference on Hydrocephalus

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The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Read more

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