Hydrocephalus Resource Library (HRL)


Welcome to the Hydrocephalus Resource Library, a new tool to help you find the answers not contained elsewhere in our site, or on the internet.

Hydrocephalus is a condition fraught with complications. As always, we strive to provide our members with the best information possible.

To begin, please enter your question or a search word in the query box below.

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diagnosis(27)
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5 Comments for : Hydrocephalus Resource Library (HRL)
  1. Reply

    What is the difference in 80 or 100 or more settings of the shunt.

    • LaTonya Perry
    • September 5, 2017
    Reply

    My son is 10 now and was diagnosed with Hydrocephalus when he was only 7 in August 2014. He had surgery October 2014 with a new procedure called the ETV! It’s a bypass that drains the fluid through his body. He has frequent headaches that can be treated with meds. We are from Richland,Ms. Hr was told that he can’t play any contact sports and he loves football and it just breaks my heart when he wants to play so bad but can’t. The kids at school always telling him he has a big head and he comes home at times crying. Please give me some advice

      • Paul Davidson
      • September 15, 2017
      Reply

      LaTonya,
      I can identify so much. I had a ventriculo-peritoneal shunt put in when I was 7. At that time the doctors said I may not live. I have had 8 surgeries over the years. I am fine and am now 64.
      God bless you both.

  2. Reply

    Hello,
    I was diagnosed with right side obstructive hydrocephalus in late May 2016. I underwent laparoscopic brain surgery in June 2016. In this procedure the neurosurgeon went down to the center of my brain and punctured a hole in the membrane that divides the hemispheres of the brain in hopes to drain the fluid without shunt placement. In August 2016 I had an MRI that showed I still have a moderate amount of fluid in my brain and have sustained permanent brain damage from the fluid. I am seeking information on many different subjects. I have never had a head injury or meningitis and do not know the origin of my hydrocephalus. I would like information on stem cell research, if a shunt would help me at this point and other treatment options. This is so very new to me, I have been told I should no longer work. I was an occupational therapy assistant for over 20 years prior to this. Any information or advise would be greatly appreciated!
    Sincerely,
    Erin Bakke

      • Paul
      • September 16, 2017
      Reply

      Erin,
      There is a neurosurgeon whom I really respect, dr. Daniel Amen. He uses SPECT scans to find out problems in the brain. You can check him out at amenclinics.com He has offices mostly in the NE and in California. The phone for the clinic is 888-564-2700.
      Paul Davidson
      pauldavidson4153@gmail.com

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