Hydro Heroes Unite Podcast: Episode 4

What is hydrocephalus? How is it most commonly treated? And what should families know about living with this complex neurological condition? In this episode, we’ll hear from Dr. Ramin Eskandari, a leading neurosurgeon, about the realities of hydrocephalus care.

We discuss:

• What hydrocephalus is and how it affects patients
• The most common treatment options, including shunts and ETV
• Warning signs of shunt malfunctions
• New research and advances in treatment
• The debate on activity restrictions for patients with hydrocephalus
• Developmental, psychological, and psychiatric concerns for patients and caregivers
• Why improving quality of life matters just as much as quantity of life

Whether you’re newly diagnosed, a longtime caregiver, or simply looking to better understand hydrocephalus, this episode offers clarity, guidance, and hope from one of the field’s most experienced voices.

Resources:

• Request a Hydro Hero shoutout on the show
• Hydrocephalus in Infants and Children
• Shunt Systems
• Complications of Shunt Systems
• Shunt Malfunctions FAQ
• Endoscopic Third Ventriculostomy (ETV)
• Emerging Technology
• Newly Diagnosed – Next Steps
• Essential Guide: Developmental Milestones in Hydrocephalus
• Individualized Education Program (IEP)
• Consensus Statement on Physical Activities for Children with Hydrocephalus
• Staying Active
• Emotional Well-being
• RAISE Resilience Program
• Research HA Funds
• Research Priorities

Created in partnership with actor and podcaster Taisha Cameron.

Follow on Instagram: @taishaycameron, @hydroassoc