Podcast: We Just One-Daying It: Miya + Mila’s Hydrocephalus Story

Hydro Heroes Unite Podcast: Episode 1

In this first episode of Hydro Heroes Unite, Taisha Cameron sits down with Miya — a mother of three whose youngest daughter Mila lives with hydrocephalus and cerebral palsy. Miya opens up about navigating a four-month NICU stay with newborn twins during the pandemic, while also parenting a toddler at home.

We explore what survival mode really looks like, what comes after crisis, and how Miya stays grounded in the long game of raising a child with special medical needs. This conversation is raw, real, and incredibly powerful.

Topics we cover include:

• NICU life with preemie twins
• Balancing home and hospital during COVID
• Processing trauma after survival
• Self-care, grief, and advocacy
• The strength of doing “just one day” at a time

Resources:

• Request a Hydro Hero shoutout on the show
• Shunt Systems Article
• Shunt Malfunction FAQs Article
• Complications of Shunt System Article
• Developing an Emergency Plan for Hydrocephalus Complications Article
• Ask the Expert Video: Barometric Pressure
• Find a Doctor – HA Physicians’ Directory
• Traveling and Hydrocephalus Article
• Download HydroAssist® Mobile Application
• Essential Guide: Developmental Milestones in Hydrocephalus Article
• Your Healthcare Team Article
• Search HA’s Hydrocephalus Resource Library
• Parent Resources
• Get Support
• Caring for the Caregiver Article

Created in partnership with actor and podcaster Taisha Cameron.

Follow on Instagram: @taishaycameron, @hydroassoc