Hydrocephalus is relentless. So are we.
"I want my son to know that he's never alone. I'm here for him no matter what."
— Carlos, father of Luke
Our Community Guides our Research Agenda
Our Top 20 Community Research Priorities have been categorized into 5 areas of focus:
Develop non-invasive and one-time therapies
Reduce the burden of current treatments
Improve the screening and diagnosis
Improve quality of life
Improve access to care
Let’s Navigate this together
Trusted resources to help you on your journey.
Recently Diagnosed?
Have you or a loved one recently been diagnosed with hydrocephalus?
Tools for Daily Life
Learn how to manage the day to day symptoms and challenges you might encounter on your journey with hydrocephalus.
Get Support
We're here to help! Find the support you need and talk to people who know what you're going through.
Driving Research Forward
Improving lives now and funding the breakthrough research of tomorrow.
$13 Million
Invested in research
$50 Million
Additional Federal Grants Awarded
11
Potential Drug Therapies
Make An Impact
We come together in so many ways — all of us driven by a passion to find a cure and improve the lives of those impacted by hydrocephalus. Whether you participate in a WALK to End Hydrocephalus or join our advocacy efforts, you’re making a difference!
Community
Our community of patients and caregivers is there for you so you can connect, share life experiences, and find hope.
Research
Researchers need input from people living with hydrocephalus in order to ask the right questions and develop treatments.
Advocate
The best advocates are patients, family members, medical caregivers, and others who are directly affected by the condition.
Shop
Raise awareness about hydrocephalus and look great doing it!
Connect With Us
When you're ready, let's take the next step together. Stay informed with our monthly newsletter! We'll share inspiring stories, and information about our programs, events, and research.
