Hydrocephalus Stories from Our Community
Read stories of people living with hydrocephalus (Patients and Caregivers). These amazing individuals are living life to the fullest regardless of the challenges the condition brings. Want to share your own story of resilience?
Diagnosed at Birth
Carly
Story Written by Author/Self
Carly was diagnosed with hydrocephalus as a premature infant, has had numerous shunt revisions, and now works in healthcare while living life fully.
Diagnosed in Pregnancy
Elliott
Story Written by Mother
Elliot acquired hydrocephalus from aqueductal stenosis. His hydrocephalus was treated with an ETV/CPC. He continues to amaze his family every day with his abilities and determination.
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