A hydrocephalus diagnosis or a new challenge in your journey can feel overwhelming and difficult to manage. Since every experience with hydrocephalus is unique, we aim to connect you with someone who has “been there” and faced a situation similar to yours.

Through our HydrocephalusConnect program, you'll be matched with trained Peer Support Volunteers based on factors like diagnosis, age, gender, relationship to hydrocephalus (patient, caregiver, parent), complications, and more.

HA Peer Support Volunteers are ready to:

• Listen with compassion
• Share their experience
• Provide basic information about hydrocephalus
• Connect you with valuable information about HA and other resources available to help you and/or your loved one live fully with hydrocephalus!

To get connected with an HA Peer please complete the Form below and your HA Peer will reach out to you very soon!