Watch Recorded Sessions from HA CONNECT 2018!

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Recorded sessions now available!

It’s not too late to view recordings of the 19 Live-streamed sessions from the 15th National Conference on Hydrocephalus, HA CONNECT! Register as a virtual attendee for $20 to access 19 session recordings!

Once registered and payment is successfully made, you will receive a payment confirmation email with the link and your unique password.

All paid registrants received an email with login information to access the recordings. If you did not receive the email, please contact Jennifer Bechard at jennifer@hydroassoc.org.

Save the Date!

The 16th National Conference on Hydrocephalus, HA CONNECT will be held in Houston, Texas on Thursday, June 25, 2020 – Saturday, June 27, 2020. For more details, click here.

Listed below are the sessions that were recorded.

New Participant Orientation & Luncheon

Speakers

Amanda Garzon, MA
Diana Gray, MA
James P. (Pat) McAllister, II, PhD

Description

If this is your first time attending the Hydrocephalus Association’s (HA) National Conference, or if you’ve come to Conference on your own and you want to make some connections early, be sure to attend this introductory session. This session will give you an opportunity to meet others, hear ideas about how to get the most from Conference, and know what to expect over the next few days. Both new and returning participants are welcome. We are glad you are here!

Conference Welcome

Speakers

Aseem Chandra
Jefferson W. Chen, MD
Diana Gray, MA
Michael G. Muhonen, MD
Marion L. Walker, MD
Michael A. Williams, MD

Scientific Keynote: Robert Pudenz Lectureship

Speakers

Kristopher T. Kahle, MD, PhD
Jenna Koschnitzky, PhD
J. Gordon McComb, MD
Chevis Shannon, MBA, MPH, DrPH
Mandeep S. Tamber, MD, PhD, FRCSC

Description

This session is sponsored by: Rudi Schulte Research Institute.
The Rudi Schulte Research Institute, a not-for-profit private operating foundation established in 1974 by Rudi Schulte, conducts studies to elucidate and seek improved treatments for hydrocephalus and other neurological disorders. Dr. Robert Pudenz, a long-time board member of the Institute, passed away in 1998. The Robert Pudenz Lectureship was established in 1999 to acknowledge Dr. Pudenz’s work in the area of hydrocephalus and his overall contribution to the advances made in the diagnosis and treatment of pediatric neurological diseases. This year’s session will focus on patient engagement in hydrocephalus research and the launch of the HA Patient Powered Interactive Engagement Registry (HAPPIER).

Learning Challenges Posed by Hydrocephalus: Maximizing Your Child’s Learning Potential in the Classroom

Speaker

Andrew Zabel, PhD, ABPP

Description

This presentation will explore how hydrocephalus impacts the brain and its ability to process and hold information. Dr. Zabel will identify the learning challenges most commonly confronted by children with hydrocephalus at various ages and stages of their education.

Pediatric and Adult Health Care: The Importance of Transition Planning

Speakers

Mark G. Hamilton, MDCM, FRCSC, FAANS
Michael A. Williams, MD
David Wood, MD, MPH, FAAP

Description

As adolescents become young adults, they typically must leave the pediatric health care system for the adult health care system, a process called transition. They will have new physicians and practitioners in a new setting that is very different from the pediatric system, and that often places more responsibility on patients for managing their own health. Planning for transition is key to its success; however, this process can be complex and overwhelming. This session will give an overview of the process and goals of transition, and the challenges and barriers associated with it. The speakers will review strategies to prepare teens, young adults, and parents for a successful transition. Issues that are specific to hydrocephalus and related health care problems will be covered. Audience members will have the opportunity to submit written questions.

Luncheon: Inspirational Keynote and State of the Association Address

Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC)

Speaker

Alan Cohen, MD, FACS, FAAP, FAANS

Description

Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) are promising alternative treatments to shunting. Endoscopic Third Ventriculostomy (ETV) is available for some types of hydrocephalus while ETV/CPC is being explored in infants with hydrocephalus. This session will discuss the procedures, criteria for patient selection and the procedure’s benefits and possible risks and complications that can arise with ETV and ETV/CPC. By the end of this session, participants will be able to cite relevant literature for ETV and ETV/CPC and understand clinical indications for the procedure, the surgical technique used and the risks and benefits associated with the procedures.

Research Update – Shunt Infections

Speaker

Tamara Simon, MD, MSPH

Description

Shunt infections remain as the most challenging common complication of shunting and continue to result in multiple operations and risk for those with hydrocephalus. They can sometimes be hard to diagnose and treatment is not always successful. This talk reviews the sources of infection, how they can be recognized and the common ways to treat them. Where do they come from? What do they do? How do we detect and eliminate them? And, what research is being conducted to stop them?

Panel: Teen and Young Adult Perspective – A Q&A for Parents led by Teenagers and Young Adults

Moderator:

Michael A. Williams, MD

Panel:

Tomás F. Rodríguez
Madeleine Darowiche
Ashley G. Fuller, M.A. CCC-SLP
Tyler Padron

Description

Are you a parent of a child or teen with hydrocephalus? Do you struggle with whether or how to discuss information with your child about their condition? In a moderated panel discussion, teens and young adults living with hydrocephalus will share their unique perspective and often surprising insights on growing up and living with hydrocephalus. Audience members will have the opportunity to submit written questions to the moderator.

Raising our Voice on Capitol Hill

Speaker

John Lawrence

Description

Every voice counts when we are advocating for our hydrocephalus community with our elected officials. The last two years have seen big wins in Congress that have led to increased funding opportunities at both the National Institutes of Health and the Department of Defense. Learn about key legislation we are tracking in health, labor, and education that will impact our hydrocephalus community as well as how you can be an advocate for change with elected officials.

Hydrocephalus Association (HA) Research Update

Speakers

Mark G. Hamilton, MDCM, FRCSC, FAANS
John Kestle, MD, PhD
Jenna Koschnitzky, PhD

Description

Please join us for an HA Research Update. Learn about HA’s research program; what we have accomplished and where we are going. Then stay tuned for updates from the Hydrocephalus Clinical Research Network (HCRN) and Adult Hydrocephalus Research Network (AHCRN). Learn about the progress both Networks have made and the exciting new research projects on the horizon!

Relationships and Hydrocephalus

Speakers

Amy Thomas
Greg Tocco
Georgana Tocco, MBA
SarahAnn Whitbeck, MBA, CHCP

Description

Relationships are complex – and even more so when complicated by hydrocephalus, headaches, shunts, revisions, and more.  Join us as we have an interactive discussion about tips and tricks for managing relationships with family members, friends, colleagues, and significant others.  Our panel of discussants will reflect on and share strategies for success they have identified from their experiences.  You won’t want to miss it!

NPH from Symptoms to Diagnosis to Treatment (NPH 101)

Speakers

Christopher J. Farrell, MD
Abhay Moghekar, MBBS

Description

The symptoms of NPH (difficulty with walking and balance, bladder control, and memory and thinking) are the most common symptoms of the aging population, but symptoms alone don’t mean that a person has NPH.  How do doctors make this determination? A neurologist and neurosurgeon will present a discussion of the symptoms of NPH, how they are distinguished from other disorders that can cause the same symptoms as we age, the types of tests used for diagnosis (e.g., scans, removal of spinal fluid), how the decision for shunt surgery is made, and what shunt surgery involves, including its risks.  Audience members will have the opportunity to submit written questions.

Linking Brain Function to the Challenges of Living with Hydrocephalus

Speaker

Taeun Chang, MD

Description

Many people develop hydrocephalus in infancy and early childhood when the brain is growing and learning at an extremely fast pace. In this session, you will learn about how hydrocephalus can affect the development of brain structures and the connections between brain structures during this critical time as well as learn about how these changes can influence behavior and cognition. Dr. Taeun Chang will talk about the tools pediatric neurologists use to image the brain and how they use this information to predict functional challenges that may become apparent later in life. Dr. Chang will also talk about how these imaging tools are being use in conjunction with behavioral therapies to try to improve outcomes.

Practical Tips and Tools for Dealing with Memory and Executive Function Challenges

Speakers

Cynthia Smith, PhD, ABPP/CN
Andrew Zabel, PhD, ABPP

Description

Common routines can be uncommonly difficult for individuals faced with memory and executive function challenges. This session will help attendees gain a new perspective on what is meant by the term “executive dysfunction” and how executive functions are essential in day-to-day functioning. The session will provide practical tips and tools to support individuals living with these challenges to help increase their level of independence.

Luncheon: Awards and Special Announcements

Everybody with Hydrocephalus Needs Longitudinal Care

Speakers

Michael A. Williams, MD
Mark G. Hamilton, MDCM, FRCSC, FAANS

Description

Many patients with hydrocephalus are told that they do not need to see a doctor unless “something bad happens”, but many physicians on our Medical Advisory Board think that this is bad advice and that patients should see their doctors periodically for assessment. The presenters, Dr. Mark Hamilton and Dr. Mike Williams, are leaders in the development of the longitudinal care model for patients with hydrocephalus and will review the reasons it is important to your care, what you should expect to happen during a visit, and why this model needs to be disseminated more widely.  Audience members will have the opportunity to submit written questions.

Managing Cognitive and Emotional Changes with NPH

Speaker

Krista Hanson, PhD, ABPP-CN

Description

This presentation will provide attendees with information regarding mood disorders that frequently occur in individuals with normal pressure hydrocephalus. The session will also include discussion of compensation strategies for cognitive changes associated with NPH.  It will additionally address methods for improving mood and developing coping strategies for caregivers and individuals with hydrocephalus.

Slit Ventricle Syndrome

Speaker

David Limbrick, MD, PhD

Description

This session will discuss the incidence and management of slit ventricle syndrome in patients shunted early in life. The discussion will include the typical findings on imaging studies as well as the clinical course and options for management. The intended audience for this session is patients and/or parents who were shunted in infancy who have small ventricles.

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