Unable to join HACONNECT in person? Attend virtually!

Come Together. Connect.
15th National Conference on Hydrocephalus
Orange County, California | June 28-30, 2018

Virtual Attendance available!

We hope you can join us in person at our 15th National Conference on Hydrocephalus: HA CONNECT. But, if you are not able to be in Orange County, this year we will LIVE STREAM and record a select number of our conference sessions.

Register as a Virtual Participant for $25 and have access to 19 conference sessions! As a Virtual Participant, you’ll be able to view the sessions and participate in the Q&A portion from the comfort of your own home. Sessions will be recorded and can also be viewed after the conference.

Once registered, closer to the conference we will email instructions on how to access our live stream.

Listed below are the sessions that will be live streamed.
*conference agenda and sessions may be subject to change

Thursday, June 28th
11:30 AM – 1:30 PM | Session
New Participant Orientation & Luncheon

Speakers
Amanda Garzon, MA
Diana Gray, MA
James P. (Pat) McAllister, II, PhD

Description
If this is your first time attending the Hydrocephalus Association’s (HA) National Conference, or if you’ve come to Conference on your own and you want to make some connections early, be sure to attend this introductory session. This session will give you an opportunity to meet others, hear ideas about how to get the most from Conference, and know what to expect over the next few days. Both new and returning participants are welcome. We are glad you are here!

1:50 PM – 3:00 PM | Session
Conference Welcome

Speakers
Aseem Chandra
Jefferson W. Chen, MD
Diana Gray, MA
Michael G. Muhonen, MD
Marion L. Walker, MD
Michael A. Williams, MD

Friday, June 29th
8:00 AM – 10:00 AM | Session
Scientific Keynote: Robert Pudenz Lectureship

Speakers
Kristopher T. Kahle, MD, PhD
Jenna Koschnitzky, PhD
J. Gordon McComb, MD
Chevis Shannon, MBA, MPH, DrPH
Mandeep S. Tamber, MD, PhD, FRCSC

Description
This session is sponsored by: Rudi Schulte Research Institute.
The Rudi Schulte Research Institute, a not-for-profit private operating foundation established in 1974 by Rudi Schulte, conducts studies to elucidate and seek improved treatments for hydrocephalus and other neurological disorders. Dr. Robert Pudenz, a long-time board member of the Institute, passed away in 1998. The Robert Pudenz Lectureship was established in 1999 to acknowledge Dr. Pudenz’s work in the area of hydrocephalus and his overall contribution to the advances made in the diagnosis and treatment of pediatric neurological diseases. This year’s session will focus on patient engagement in hydrocephalus research and the launch of the HA Patient Powered Interactive Engagement Registry (HAPPIER).

12:00 PM – 1:00 PM | Session
Learning Challenges Posed by Hydrocephalus: Maximizing Your Child’s Learning Potential in the Classroom

Speaker
Andrew Zabel, PhD, ABPP

Description
This presentation will explore how hydrocephalus impacts the brain and its ability to process and hold information. Dr. Zabel will identify the learning challenges most commonly confronted by children with hydrocephalus at various ages and stages of their education.

12:00 PM – 1:00 PM | Session
Pediatric and Adult Health Care: The Importance of Transition Planning

Speakers
Mark G. Hamilton, MDCM, FRCSC, FAANS
Michael A. Williams, MD
David Wood, MD, MPH, FAAP

Description
As adolescents become young adults, they typically must leave the pediatric health care system for the adult health care system, a process called transition. They will have new physicians and practitioners in a new setting that is very different from the pediatric system, and that often places more responsibility on patients for managing their own health. Planning for transition is key to its success; however, this process can be complex and overwhelming. This session will give an overview of the process and goals of transition, and the challenges and barriers associated with it. The speakers will review strategies to prepare teens, young adults, and parents for a successful transition. Issues that are specific to hydrocephalus and related health care problems will be covered. Audience members will have the opportunity to submit written questions.

1:15 PM – 2:25 PM | Session
Luncheon: Inspirational Keynote and State of the Association Address

Stay tuned for more details!

2:55 PM – 3:55 PM | Session
Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC)

Speaker
Alan Cohen, MD, FACS, FAAP, FAANS

Description
Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) are promising alternative treatments to shunting. Endoscopic Third Ventriculostomy (ETV) is available for some types of hydrocephalus while ETV/CPC is being explored in infants with hydrocephalus. This session will discuss the procedures, criteria for patient selection and the procedure’s benefits and possible risks and complications that can arise with ETV and ETV/CPC. By the end of this session, participants will be able to cite relevant literature for ETV and ETV/CPC and understand clinical indications for the procedure, the surgical technique used and the risks and benefits associated with the procedures.

2:55 PM-3:55 PM | Session
Research Update – Shunt Infections

Speaker
Tamara Simon, MD, MSPH

Description
Shunt infections remain as the most challenging common complication of shunting and continue to result in multiple operations and risk for those with hydrocephalus. They can sometimes be hard to diagnose and treatment is not always successful. This talk reviews the sources of infection, how they can be recognized and the common ways to treat them. Where do they come from? What do they do? How do we detect and eliminate them? And, what research is being conducted to stop them?

4:20 PM – 5:20 PM | Session
Panel: Teen and Young Adult Perspective – A Q&A for Parents led by Teenagers and Young Adults

Moderator:
Michael A. Williams, MD

Panel:
Tomás F. Rodríguez
Madeleine Darowiche
Ashley G. Fuller, M.A. CCC-SLP
Tyler Padron

Description
Are you a parent of a child or teen with hydrocephalus? Do you struggle with whether or how to discuss information with your child about their condition? In a moderated panel discussion, teens and young adults living with hydrocephalus will share their unique perspective and often surprising insights on growing up and living with hydrocephalus. Audience members will have the opportunity to submit written questions to the moderator.

4:20 PM – 5:20 pm | Session
Raising our Voice on Capitol Hill

Speaker
John Lawrence

Description
Every voice counts when we are advocating for our hydrocephalus community with our elected officials. The last two years have seen big wins in Congress that have led to increased funding opportunities at both the National Institutes of Health and the Department of Defense. Learn about key legislation we are tracking in health, labor, and education that will impact our hydrocephalus community as well as how you can be an advocate for change with elected officials.

Saturday, June 30th
8:00 AM – 9:30 AM | Session
Hydrocephalus Association (HA) Research Update

Speakers
Mark G. Hamilton, MDCM, FRCSC, FAANS
John Kestle, MD, PhD
Jenna Koschnitzky, PhD

Description
Please join us for an HA Research Update. Learn about HA’s research program; what we have accomplished and where we are going. Then stay tuned for updates from the Hydrocephalus Clinical Research Network (HCRN) and Adult Hydrocephalus Research Network (AHCRN). Learn about the progress both Networks have made and the exciting new research projects on the horizon!

10:00 AM – 11:00 AM | Session
Relationships and Hydrocephalus

Speakers
Amy Thomas
Greg Tocco
Georgana Tocco, MBA
SarahAnn Whitbeck, MBA, CHCP

Description
Relationships are complex – and even more so when complicated by hydrocephalus, headaches, shunts, revisions, and more.  Join us as we have an interactive discussion about tips and tricks for managing relationships with family members, friends, colleagues, and significant others.  Our panel of discussants will reflect on and share strategies for success they have identified from their experiences.  You won’t want to miss it!

10:00 AM – 11:00 AM | Session
NPH from Symptoms to Diagnosis to Treatment (NPH 101)

Speakers
Christopher J. Farrell, MD
Abhay Moghekar, MBBS

Description
The symptoms of NPH (difficulty with walking and balance, bladder control, and memory and thinking) are the most common symptoms of the aging population, but symptoms alone don’t mean that a person has NPH.  How do doctors make this determination? A neurologist and neurosurgeon will present a discussion of the symptoms of NPH, how they are distinguished from other disorders that can cause the same symptoms as we age, the types of tests used for diagnosis (e.g., scans, removal of spinal fluid), how the decision for shunt surgery is made, and what shunt surgery involves, including its risks.  Audience members will have the opportunity to submit written questions.

11:30 AM – 12:30 PM | Session
Linking Brain Function to the Challenges of Living with Hydrocephalus

Speaker
Taeun Chang, MD

Description
Many people develop hydrocephalus in infancy and early childhood when the brain is growing and learning at an extremely fast pace. In this session, you will learn about how hydrocephalus can affect the development of brain structures and the connections between brain structures during this critical time as well as learn about how these changes can influence behavior and cognition. Dr. Taeun Chang will talk about the tools pediatric neurologists use to image the brain and how they use this information to predict functional challenges that may become apparent later in life. Dr. Chang will also talk about how these imaging tools are being use in conjunction with behavioral therapies to try to improve outcomes.

11:30 – 12:30 PM | Session
Practical Tips and Tools for Dealing with Memory and Executive Function Challenges

Speakers
Cynthia Smith, PhD, ABPP/CN
Andrew Zabel, PhD, ABPP

Description
Common routines can be uncommonly difficult for individuals faced with memory and executive function challenges. This session will help attendees gain a new perspective on what is meant by the term “executive dysfunction” and how executive functions are essential in day-to-day functioning. The session will provide practical tips and tools to support individuals living with these challenges to help increase their level of independence.

12:30 PM – 1:45 PM | Session
Luncheon: Awards and Special Announcements

Stay tuned for more details!

1:50 PM – 2:50 PM | Session
Everybody with Hydrocephalus Needs Longitudinal Care

Speakers
Michael A. Williams, MD
Mark G. Hamilton, MDCM, FRCSC, FAANS

Description
Many patients with hydrocephalus are told that they do not need to see a doctor unless “something bad happens”, but many physicians on our Medical Advisory Board think that this is bad advice and that patients should see their doctors periodically for assessment. The presenters, Dr. Mark Hamilton and Dr. Mike Williams, are leaders in the development of the longitudinal care model for patients with hydrocephalus and will review the reasons it is important to your care, what you should expect to happen during a visit, and why this model needs to be disseminated more widely.  Audience members will have the opportunity to submit written questions.

1:50 – 2:50 PM | Session
Managing Cognitive and Emotional Changes with NPH

Speaker
Krista Hanson, PhD, ABPP-CN

Description
This presentation will provide attendees with information regarding mood disorders that frequently occur in individuals with normal pressure hydrocephalus. The session will also include discussion of compensation strategies for cognitive changes associated with NPH.  It will additionally address methods for improving mood and developing coping strategies for caregivers and individuals with hydrocephalus.

3:20 PM – 4:20 PM | Session
Slit Ventricle Syndrome

Speaker
David Limbrick, MD, PhD

Description
This session will discuss the incidence and management of slit ventricle syndrome in patients shunted early in life. The discussion will include the typical findings on imaging studies as well as the clinical course and options for management. The intended audience for this session is patients and/or parents who were shunted in infancy who have small ventricles.

2 Comments for : Unable to join HACONNECT in person? Attend virtually!
    • Maria Larragan
    • May 14, 2018
    Reply

    I live in France and would like to have access to the sessions at a later time (more commensurate to my time zone). Is it possible to see recorded sessions afterwards?

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