Hydrocephalus Association eNewsletter | JULY 2020

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FEATURED ARTICLES

Have you registered yet for a WALK to End Hydrocephalus near you?! This year we're dialing up the FUN by walking, jogging, swimming, hula hooping, (ANYTHING!) to raise awareness and funds for a cure! And you can join us wherever you are right now!

Thank You for Attending HA's First Virtual Conference!

THANK YOU to everyone who participated in our first-ever VIRTUAL National Conference on Hydrocephalus, HA CONNECT! Over 2,000 people from over 60 countries attended our two-day learning event last month. Read a recap of the conference!

UPCOMING EVENTS

7/27

Camp Headstrong: Virtual Summer Camp for Kids & Teens with Hydrocephalus

8/8

Seattle VIRTUAL WALK to End Hydrocephalus

9/05

NW Arkansas WALK to End Hydrocephalus

9/12

Baltimore VIRTUAL WALK To End Hydrocephalus

WALK to End Hydrocephalus events are being held throughout September, October and November virtually

and in-person. Click here to register for a WALK near you!

Virtual Meet Ups are being hosted in our local Community Networks. Click here to join your local group

OTHER STORIES

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Help HA Determine its Research Priorities!

Share your voice! HA is developing a 'Top 10' list of research priorities. Make sure your views are heard by completing this 5-minute survey.

See What we Accomplished in 2019!

2019 was an incredible year for the Hydrocephalus Association and none of it would have been possible without YOUR support! Check out our 2019 Annual Report to see highlights from what we accomplished last year and thanks for continuing to inspire us everyday to work harder towards a cure!

SHARE YOUR STORY: Eric

After Eric’s premature birth his parents didn’t get to hold him for two months. Now, 23 years later, Eric is hoping to become a doctor and finds strength from his hydrocephalus. Read his amazing story on our website and then share your own story of resilience and hope!

New Study Compares Hydrocephalus Treatments Among Children

A new Hydrocephalus Clinical Research Network (HCRN) study, published in the Journal of Neurosurgery: Pediatrics, examined differences in the number of subsequent surgeries a child with hydrocephalus had to undergo after their initial treatment. Each child was treated with a shunt, an endoscopic third ventriculostomy (ETV), or an ETV with chorioid plexus cauterization (ETV-CPC).

Participate in Genetic Causes of Hydrocephalus Study

There's so much we don't know about the genetic causes of hydrocephalus. Help us learn more by participating the Yale University Study, "The Genetic Causes of Congenital Hydrocephalus" led by HA-funded researcher Dr. Kristopher Kahle!

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Our mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

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