Hydrocephalus Association eNewsletter | AUGUST 2020
 
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FEATURED ARTICLES
 
 
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This Year it's WALK Your Way!
 
Hydrocephalus doesn't stop for COVID-19 and neither can we! So, while many of our WALKs to End Hydrocephalus will look different this year, we're still raising awareness and funds to end hydrocephalus. Register now and participate in our virtual movement! 
 
Register Now
 
 
HACONNECT Recordings
 
 
HA CONNECT Recordings NOW Available!
 
Did you miss HA CONNECT, our virtual National Conference on Hydrocephalus? Now, you can view recordings of the sessions! The recordings are bundled into tracks: All Ages, Adults Living With Hydrocephalus, NPH, and Parents. Each track is only $20.20 or you can purchase all of the conference sessions for $59.99.
 
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UPCOMING EVENTS
 
9/05
 
NW Arkansas WALK to End Hydrocephalus
 
9/10 
 
Research Webinar:  Health Risks of Radiation & Medical Imaging
 9/12 
 
Baltimore VIRTUAL WALK to End Hydrocephalus
 
9/12 
 
Western NY WALK To End Hydrocephalus
 
 

WALK to End Hydrocephalus events are being held throughout September, October and November virtually

and in-person. Click here to find and register for a WALK near you! 

 

Virtual Meet Ups are being hosted in our local Community Networks. Click here to join your local group


 

 


OTHER STORIES
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Research webinar

Register for Our Research Webinar

 
For people living with hydrocephalus, MRIs and CT scans are often a part of life. Learn about the "Health Risks of Radiation from Medical Imaging" during a webinar on Sept. 10th, featuring Drs. Diane Armao and Carolyn Quinsey. The webinar will explore the risks of repeated radiation exposure and how to reduce exposure when imaging is necessary. Register now for this FREE learning opportunity!
 
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Dorothy Sorlie
 
Dorothy Sorlie: A Teacher’s Unbreakable Spirit
 
Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
 
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SHARE YOUR STORY: Marcos
 

Growing up Marcos faced multiple surgeries and long hospital stays. But he has overcome it all with remarkable resilience. Read his incredible story to find out how the countless nights in the hospital helped him find his mission in life!

 
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Engin Deniz
 
Get to Know Dr. Engin Deniz, HA Innovator Award Grantee
 
Learn about some of the research we fund on our blog! Dr. Engin Deniz, who received an HA Innovator Award, is studying how cilia, small hair like structures that move CSF, contribute to the development of hydrocephalus. He hopes his research will provide insight into how to reverse or prevent hydrocephalus.
 
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YOU Made 2019 a Success!
 

You – everyone in the hydrocephalus community – were our inspiration for our 2019 Annual Report! That's because while we accomplished so much last year, none of it would have been possible without YOU! Check out our online 2019 Annual Report. You may even see yourself in our Photo Gallery!

 
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Our mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.
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