13th National Conference on Hydrocephalus: Community. Clarity. Cure.

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2014 Conference LogoBy Karima Roumila, MPH, Director of Support and Education

The goal of our conference is to provide tools and connections to address the medical, educational and social complexities of living with hydrocephalus, and to provide the opportunity for an enjoyable get together! Hydrocephalus is a chronic condition for which there is no cure. Our patient-centered conferences empower all of us to understand, seek out, and put into place care programs and services that will meet our needs now and well into the future.

Highlights of the conference scheduled for July 9-11th include a keynote address, the Robert Pudenz Lectureship, a hands-on brain anatomy and physiology lab, our ever-popular interconnection sessions where you can meet other people in similar situations, and the cornerstone educational sessions by our team of health professionals, researchers and service providers. We open our conference with a reception where attendees get to reunite with old friends and make new connections. Our dinner dance with talent show brings us together to celebrate our community.

One of the key ingredients of a great conference is the participants, and we invite you to join us in creating our best community gathering ever. The 13th National Conference on Hydrocephalus: Community. Clarity. Cure, is for you – patients, family, friends, care takers and health professionals – and we hope it will be an empowering time for us all.

Our conference Medical Chairs are: Nathan Selden, MD, PhD, Michael A. Williams, MD and Marion L. Walker, MD. We are pleased they can join us and help us plan the program of the conference. To learn more about our chairs, click here.

Learn more at our conference website.

Conference Registration:

Registration is now available online. Click here to register.  If you are unable to register via the web, please email us at info@hydroassoc.com if you would like a registration form.

Conference Schedule:

We have a full schedule of workshops, plenary sessions, social events and much more scheduled for the 13th National Conference. Here is a glance at the timeline of the conference:

Wednesday, July 9th
General and Breakout Sessions (Interpersonal Sessions) 3:00 pm-5:30 pm
Opening Reception 5:30 pm- 6:30 pm

Thursday, July 10th
General and Breakout Sessions 8:00 am-5:00 pm

Friday, July 11th
General and Breakout Sessions 8:00 am-5:15 pm
Dinner Dance 6:30 pm-10:00 pm

Much of the richness of the conference lies in connections and conversations outside of scheduled sessions.


The 13th National Conference on Hydrocephalus will be held at the DoubleTree by Hilton Portland, 1000 NE Multnomah Street, Portland, OR 97232. The conference will begin mid-afternoon on Wednesday, July 9, and conclude by 10:00 pm on Friday, July 11, 2014. For more details on the conference hotel and how to make reservation please visit our accommodation page.

Transportation and Travel to the conference:


Portland International Airport
7000 NE Airport Way
Portland, OR 97218
Distance from hotel: 11 miles, 20 minutes

Airline Discounts

Conference attendees flying into Portland International Airport are offered a 5% discount on American Airlines by booking through the following website: www.aa.com/group. Begin your flight search under Book your Destination on the upper right hand side of the page – please use the promotion code: 6274DT.

Getting to the Conference Hotel from the Airport

MAX (Metropolitan Area Express) Light Rail
Cost: $2.50 for Adults, $1.65 for Youth
Time: 31 minutes


  • Board MAX Red Line to City Center and Beverton TC
  • Get off at Lloyd Center/NE 11th Ave MAX Station
  • Walk 0.2 miles northwest to NE Multnomah & 9th
  • Arrive at Doubletree Hotel located at 1000 NE Multnomah St


The estimated cost for a taxi ride from Portland International Airport to the Doubletree by Hilton Portland is approximately $35.00.

Airport Shuttles

Shared-ride shuttles are an inexpensive, convenient way to get to and from PDX. Most shuttle services charge a flat rate and have a predetermined pick-up location, although some companies will come pick you up from your hotel and will drop you off at the terminal. There are many companies offering this service. Please visit the Port of Portland website for a detailed list of the shuttle services.

Financial Aid:

A limited amount of financial aid is available to members of our community to cover conference registration fees. Financial aid is awarded based on need. Please email us at info@hydroassoc.com to request a conference financial aid application form.

Childcare/Kids Camp:

Our biennial conferences offer specialized programs and workshops for people of every age, including children. Kids Camp is an opportunity for children living with hydrocephalus and their siblings to engage in activities, attend offsite field trips to local museums, zoo and other attractions, learn valuable skills and connect with others who may become lifelong friends.

Kids Camp will be available again this year on Thursday, July 10th, and Friday, July 11th, from 8:00 am – 5:00 pm. We have planned two days of fun and interactive activities for children ages 3-11 years old. If you have any questions about the Kids Camp, please call Sarah Hughes at Site Solutions Worldwide at 518-399-7181.

Kids Camp Fees: Children ages 3-6 years old $100; Children ages 7-11 years old $160. The fees include breakfast, lunch, and snacks on both days as well as the Dinner Dance on Friday evening and a free t-shirt.

Sponsorship and Partnership opportunities:

We are grateful to our conference sponsors who generously underwrite a significant portion of the conference, which allows us to keep the registration fees well below the cost to produce the conference. Many of these sponsors will exhibit at the conference and will have models for you to see and touch. We encourage you visit with and learn from them during the designated times. To learn more how to become a sponsor and partner of the 13th National Conference on Hydrocephalus, please contact Aisha Heath, Director of Development at development@hydroassoc.com or visit our conference website.

Did you see our past blogs? Take a peek!

Book your Hotel for Conference!

Meet the Medical Chairs of the 13th National Conference on Hydrocephalus

Countdown to Conference: How Conference Changed One Teen’s Life…

Portland: Here We Come! 2014 Hydrocephalus Conference

12th National Conference on Hydrocephalus

11th National Conference on Hydrocephalus

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