Get Support

The Hydrocephalus Association (HA) is here to help. We are eager to guide you to the support you need for your particular situation. Our staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. Expect a listening ear from staff and access to informed and current resources to help you understand and deal with the complexities of hydrocephalus.

Helpline

It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. In addition to educational resources and programs, we offer a toll-free helpline to provide support when you need it most. Through the helpline, we answer your questions and refer you to helpful educational resources and support programs.

Read about what kind of support you can get with our Helpline >

HydrocephalusCONNECT Peer Support

Hydrocephalus affects everyone differently, that’s why it’s important to have someone you can count on to support you in the way that you need. HydrocephalusCONNECT provides you with access to trained volunteers, via phone or email, who have been coping with the complexities of hydrocephalus.

See the links to support groups for all ages >

Pen Pal Program: Ages 7-12

Our Pen pal program is designed to support kids ages 7-12 in finding real and lasting friendships with others that understand the journey with hydrocephalus. Being and having a Pen pal can help your child develop a sense of connection and genuine friendship.

Get your child started with our Pen Pal Program >

Find a Support Group

It’s important to know that you’re not alone as you deal with hydrocephalus. Our support groups, also known as Community Networks, provide localized support, education, and empowerment through community. Our network hosts educational events, support group meetings, and other gatherings that enable individuals and families to connect.

Find links to several different support groups from online to offline >